Advanced Prostate Cancer

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Advanced Prostate Cancer

by bengabs on Thu May 17, 2018 11:41 PM

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Hello All, I've got an advanced prostate cancer(diagnosed on 15 February 2016) and undergoing treatment at the moment (chemotherapy, firmagon injection, Xgeva, and daily 4 tablets of Abiraterone or Zytiga It's metastesised prostate cancer,  it has spread to the bones of my body. Last week, my blood test showed my ( Liver)Alkaline Phosphatase level is 1,200 unit/l. My doctor said the cancer cells have reached my liver organ already. What is the significance of this development on my body ? Will it also affect  my Kidney in the near future ? Anybody in a similar situation ? I really need some feedbacks on this. Thank you so much. Bengabs from Australia

RE: Advanced Prostate Cancer

by genemyers on Sun May 20, 2018 04:02 AM

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ALP is a marker for both the bone and for the liver.  Prostate cancer in the liver is a very serious development and I would ask the doctor how they know it is in the liver. Did they do scanning like a CT/MRI scan to confirm the suspicion of liver mets? If the doctor relied on the ALP, I would ask if they have done another test called a fractionated-ALP to help tell if it is the bone or in the liver. A CT scan or MRI is usually used to confirm a liver metastatic suspicion that arises from blood testing. 

You are definitely on a lot of drugs at the same time which shows you doctor is taking this seriously and is effectively throwing the kitchen sink at your cancer.

Two things to talk to your doctor about for consideration. 1. There are studies going on with Lutetium 177 which gets attached to PSMA which is overexpressed on the prostate cancer cell and has shown some very impressive results in some very advanced patients. See if this is available in your area. It may be available in a trial or otherwise. 2. There is a treatment called Sir-Spheres that is used for colon cancer mets to the liver where an injection is given of a radioactive compound, which has been reported to extend survival in prostate cancer patients.

Best wishes,

Gene

RE: Advanced Prostate Cancer

by Meetha on Fri May 25, 2018 07:17 AM

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I had Lu177 PSMA in Jan, 2018. It has changed my life. Before that I had extensive bone metastasis all alone the spine since Aug, 17. That gave a lot of pain. Was on pain killers for few months. Could not even get up on my own. Seemed like end. Following Lu177,I am now on daily Zytiga. Took bone strengthening IV injections thrice. No, I am in absolutely fine condition. I take 4-5 km long walk in he morning as well as in the evening. Go about my usual business 6- hours everyday. Have gained 5 kg since then. Besides the medical help, Other changes I have made are as following: IP 6 four scoops twice a day Tomato soup three times a day Sunbathing for half an hour daily. Continued wheatgrass juice, turmeric powder, garlic. I do not know what to attribute my total turnaround to- medical or alternative? But alternative was not working till I got Lu177. With finger crossed! I am now enthusiastic and happy. I can't thank CancerCompass enough, esp Calbear, tomato man and others who offered hope, health and help esp. when everything seemed bleak. So friend, cheer up! There is life and happiness waiting. Take care. Meetha

RE: Advanced Prostate Cancer

by tomatoman on Sat May 26, 2018 02:50 PM

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On May 25, 2018 7:17 AM Meetha wrote:

I had Lu177 PSMA in Jan, 2018. It has changed my life. Before that I had extensive bone metastasis all alone the spine since Aug, 17. That gave a lot of pain. Was on pain killers for few months. Could not even get up on my own. Seemed like end. Following Lu177,I am now on daily Zytiga. Took bone strengthening IV injections thrice. No, I am in absolutely fine condition. I take 4-5 km long walk in he morning as well as in the evening. Go about my usual business 6- hours everyday. Have gained 5 kg since then. Besides the medical help, Other changes I have made are as following: IP 6 four scoops twice a day Tomato soup three times a day Sunbathing for half an hour daily. Continued wheatgrass juice, turmeric powder, garlic. I do not know what to attribute my total turnaround to- medical or alternative? But alternative was not working till I got Lu177. With finger crossed! I am now enthusiastic and happy. I can't thank CancerCompass enough, esp Calbear, tomato man and others who offered hope, health and help esp. when everything seemed bleak. So friend, cheer up! There is life and happiness waiting. Take care. Meetha

Just a quick note: I have cut doen a lot on my lycopene intake lately because I have discovered something better.  I now use heat therapy.  Since lycopenes tend to  mask the feeling of growing cancer cells, I actually stopped taking them so that I can better locate the tumors, mostly in my back lymph nodes.  I seem to have reduced significantly the lymph node swellings and pains using applied heat.  I will tell more about it in June after my PSA test if it confirms what I think it will.  All I can say now is that it "seems" to be much more effective than lycopenes. What I don't know is whether it would work on deeper tumors like in kidney or liver or bone.  However, I have eliminated one in my spine which seemed to be wrapping around the spine bone.  More on this after my PSA test in June.

RE: Advanced Prostate Cancer

by Mydad76 on Wed Jun 20, 2018 04:55 AM

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How many LU177 treatments did you have? 

RE: Advanced Prostate Cancer

by Meetha on Fri Jun 22, 2018 08:59 AM

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Only one. In January this year. Takes around one to two months to show results. . Doc plans to repeat PET Scan. Following the outcome, he will decide the next course of treatment. My PSA had reduced dramatically to 4.6 from 26. The lates shows a rise to 10.4. Will have it repeated in July. Let us see. All the best to you. Meetha

RE: Advanced Prostate Cancer

by Meetha on Fri Jun 22, 2018 09:12 AM

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Hi Tomatoman Your constant search for something better is commendable. Pl. share wheather your PSA report confirms your belief in heat therapy. And how do you know where your lymph node swellings are? And how did you know of the tumor which you thought wrapped around the spine? And the fact that now it is eliminated? I mean which test gives you such details? How and where exactly do you apply heat? Earlier, I used cloth bags filled with millets and heated in microwave to apply heat. Can you pl. share the original source of heat therapy as a possible treatment? Thanks Meetha

RE: Advanced Prostate Cancer

by tomatoman on Sun Jun 24, 2018 08:31 PM

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On Jun 22, 2018 9:12 AM Meetha wrote:

Hi Tomatoman Your constant search for something better is commendable. Pl. share wheather your PSA report confirms your belief in heat therapy. And how do you know where your lymph node swellings are? And how did you know of the tumor which you thought wrapped around the spine? And the fact that now it is eliminated? I mean which test gives you such details? How and where exactly do you apply heat? Earlier, I used cloth bags filled with millets and heated in microwave to apply heat. Can you pl. share the original source of heat therapy as a possible treatment? Thanks Meetha

I am stage 4, since December in 2012, which was 6.5 years ago.  I have managed to keep the tumors down with lycopenes, and lately heat therapy.  

My latest PSA report from June 1 was 8.3, up from 6.9 March 2.  However, December reading was 4.3, and the reading had been accellerating since last lupron in June '16.  So on a graph I can see the last two months the rate of increase is declining, although the reading is higher than the last.  Dec. to March increased by 2.6 while March to June increased only by 1.4.  I believe that it is possible that the reading of my PSA was skewed by the heat therapy itself, since we know that PSA is emitted from stimulation such as dri or sexual activity.  So I am tempted to believe that without the heat therapy for a few days my reading would be much less.  I don't take another PSA test until September, so until then I just have to guess what is happening.

Although the PSA reading went up, it surprised me because in the meantime, my pain level has gone way down.  I was expecting a much lower reading based on the lower pain level.  My pains were in lymph nodes in my back and a sharp pain in the spine between shoulder blades.  I can feel a constant pain when the tumors are growing.  But, when I was taking lycopenes regularly the growth was greatly slowed, the pains disappeared, and so I rarely felt any pain except if I stopped taking lycopenes. 

So in mid-April I googled a bit about heat therapy, and got a lot of articles that say that heat kills cancer cells.  Here is an example which I felt was quite useful.

https://beatcancer.org/blog-posts/6-ways-saunas-help-fight-c

It would be hard for me to track down what I read but I remember that cancer cells die at 106 degrees F, a fact that was discovered back around 1930.  Also there is a theory that we are experiencing more cancer because we no longer have fevers as we did before the use of antibiotics.  

So what I did during the period mid-April to mid-June was to use a 2.5 lb weight from a barbell set, which I  boil in water, then cool down to under 150 degrees F.  I then put that hot plate on the floor and lie on it, positioning my body so that the locations of pain in the lymph nodes is heated by the plate.  I use layers of cloth such as a paper towel and I wear a t-shirt to keep the actual surface temperature on  my body to a level where I can tolerate it and not burn myself.  I try to heat for thirty breaths, which is a couple of minutes.  When it gets painfully hot I back off for a few seconds, then reapply.

The spots on my back can be seen on my image.  If you click on my name, tomatoman, you will see my image which shows the  locations of pain which I have put on a diagram for several years.  They have come and gone over the years.

At this time, the only evidence I have that they are eliminated is that I cannot feel them.  It may not mean they are gone but it is a relief to me that there is no pain.  In fact the last spot is near a lower left rib which seems to have been eliminated yesterday.

Last week I bought a portable sauna which I have just used a few times.  I am not certain yet if it is effective.  However, both the hot plate method and the sauna method seem to require me to go for two or three days without to clear the pains  from the "burn" which is like a mild bruise.  The body seems to heal from that over a two day period, and afterwards, there is no pain.

Glad to share, please let me know if any questions.

Mike (tomatoman)

RE: Advanced Prostate Cancer

by tomatoman on Mon Jun 25, 2018 02:41 PM

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I forgot to mention that the tumor between shoulder blades showed up on a couple of scans.  Doctors did not see it, but I got copies of scans and studied them carefully.  Knowing the locations of pain helped me to assess what were "hot spots" on the scans.  I had several scans, PT, CT with fusion, and Metastatic bone xray.  Doctors said they could not see anything except they were concerned about spots on my skull which later showed nothing on the bone metastasis xray.  I believe the spots on my skull went away due to running hot water on my head during the period between the PT scan and the bone scan.  

The tumor between shoulder blades was causing sharp pain.  I sometimes felt like someone was stabbing me with a knife in the back.  But a few heat therapy sessions caused that to vanish.

RE: Advanced Prostate Cancer

by Meetha on Thu Jul 12, 2018 12:12 PM

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Hello Mike

Now these are two contradictory indicators of efficacy of heat therapy. 

You have relief in pain but your PSA is rising even at slower pace. What do you  make of it?

Would you call it effective in treatment of PC?

Is this better than tomatojuice, which has no side effects? 

Will appreciate your answer. 

Thanks

Meetha

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