Diagnosed with prostate cancer and worried!!!

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RE: Diagnosed with prostate cancer and worried!!!

by Himads on Mon Sep 24, 2018 07:35 PM

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Hi John,

Glad to hear your are improving with the incontinence issue. Keep doing those Kegel exercises. While they are kind of a pain to do, I believe they are helpful. I do most of mine in the car while I'm driving. 

Have you heard anytrhing from the post-surgery path report. I hope your margins are clear. 

Alright, hang in there John. 

Himads

RE: Diagnosed with prostate cancer and worried!!!

by genemyers on Fri Sep 28, 2018 05:05 AM

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Sounds like you are doing fine, but another thought that some people do is go to see a pelvic dysfunction physical therapist specialist who has extra training in treating pelvic floor issues.  They can do biofeedback and give you exercises and make sure you are doing them right.

Doctors do not refer RP patients to them, probably because there is no medical literature that this improves outcomes.  The only evidence is antidotal.  The theory is that your best shot at recovery is right after the surgery (not 3 years later), so try to do everything now that is possible while it is the easiest to help the healing process.

If I had to do my RP over again, I would definitely go this route.  All I got from my doctor was a piece of paper with Kegels on it.

Best,

Gene

RE: Diagnosed with prostate cancer and worried!!!

by John-Can on Tue Oct 02, 2018 01:45 AM

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Hi Himads,

Thank you so much for your help and reply. No, I didn't have the pathology reselts yet, I may have them on Oct. 16 when I meet my surgeon. I'm still doing my Kegel exercises and the continence is improving day by day.

Best wishes to you.

John

RE: Diagnosed with prostate cancer and worried!!!

by John-Can on Tue Oct 02, 2018 01:50 AM

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Hi Gene,

Thank you for your reply. My continence is improving gradually and sure I will use a physical therapist if I feel I need one.

I wish you the best.

John

RE: Diagnosed with prostate cancer and worried!!!

by Himads on Tue Oct 02, 2018 02:54 PM

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Hi John,

Good to hear that that the incontinence is continuing to improve. This whole ordeal is quite a trip, isn't it? I'm now almost 5 months post surgery and the incontinence is minimal, only occasional instances of some stress incontinence and those probably would not happen if I would pee every 90 minutes or so.

Best wishes to you as well. 

Himads

RE: Diagnosed with prostate cancer and worried!!!

by compaid on Thu Oct 25, 2018 03:32 PM

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I went for routine blood test plus PSA and found my PSA was 45, sent for biopsy and at results my PSA had increased to 57 after 3 months. CT and Bone scan showed no spread beyond prostate apart from slightly into a seminal vesicle. Placed on hormone treatment and 6 monthly injections immediately.

I was rated at T3b. Recommended 28 days of external beam and Brachytherapy high dose.

Just completed first blood test after treatment and PSA 0.21 and expected to fall in 3 months. .

It can be fixed be very positive. The treatment was carried out within 6 months in Spain. I will have the hormone treatment for 2 years. I am 65.

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