Support for new laryngeal cancer patient

5 Posts | Page(s): 1 

Support for new laryngeal cancer patient

by saddenise on Tue Jul 03, 2018 05:16 AM

Quote | Reply

I'm 68; just diagnosed with squamous cell laryngeal cancer. Came out of left field (and I don't even like baseball!). First doc at a well-known NY teaching hospital did a botch job of the seemingly simple surgery. Now I'm looking at a summer of daily radiation. Quite scared. Support is my wonderful husband and mom. Hate to offload all my feelings on them constantly.  Can you help?  Thanks.

RE: Support for new laryngeal cancer patient

by kak123 on Mon Apr 15, 2019 08:51 PM

Quote | Reply

looks like you have had no responses, so I will give you my 2 cents.

You did not mention the stage of your cancer and since surgery was done I would have to assume it was early rather than late.

The daily radiation is difficult but not impossible. if a feeding tube is suggested do it. It was the only way my husband was able to get nutrition for months. Then the sideeffects are  a different kind of hell. There are products to help along the way as the side effects change during the healing process.My husband was DX with late stage 4 base of tongue cancer - inoperable. so his choice for treatmet was 4 doses of chemo along with 37 rounds of radiation. He tolerated that well until the end of treatment. He is a year out and his cancer is back. He was given 3 option - do nothing, do a biopsy but due to the radiation the bx results could not be trusted and third they could remove his tongue.

the fact that your DX sounded early on you may skate through this with little problems. Everyones journey is different so please dont look too hard at the horror stories as so many are very positive,

RE: Support for new laryngeal cancer patient

by saddenise on Wed Apr 17, 2019 09:34 PM

Quote | Reply

Many thanks for your kind words.  It was an early diagnosis.  No surgery, "just" 30 radiation treatments.  It's 9 months since the end of radiation.  My voice is not completely better - just started with a speech pathologist for therapy last week.  And a few other minor annoyances.  I was hoping that the end of radiation meant the end.  It just started a whole host of stupid symptoms. 

Wishing you all the best for your husband and especially for you. 

RE: Support for new laryngeal cancer patient

by kak123 on Thu Apr 18, 2019 01:43 AM

Quote | Reply
I'm. Glad you are doing so well. It is absolutely true that the docs don't tell you that the "healing" time is so much more difficult. My husband has had swallow and speech therapy and he still goes 2x a week 1 year after final treatment. Again everyone's journey is different. Take care and will add you to my prayers

RE: Support for new laryngeal cancer patient

by saddenise on Thu Apr 18, 2019 03:02 PM

Quote | Reply

And you to mine.

5 Posts | Page(s): 1 
Subscribe to this message board discussion

We care about your feedback. Let us know how we can improve your CancerCompass experience.