Squamous Cell Carcinoma Rt Tonsil

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Squamous Cell Carcinoma Rt Tonsil

by Tgornan2005 on Tue Jul 24, 2018 04:03 AM

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My cancer has metasticized into the lymph glands under my jaw.  But they don't know when the primary tumor became cancerous.  It was a 10mm size in 2014 and then 2nd one in January.  Biopsied in June 2018 and found the scc.  Now it's 1.4 x 1.2 cm.  All cbc mammo pap/hpv normal lung xray showed nothing except mild copd that was 4 mos ago. But pathologist saw staining of hpv possibly they said, but they are not sure. So pet scan next week.  But can't use contrast due to shellfish and iodine allergy.  Has anyone experience this?  They should have biopsied this well before.  The gp and ent then said it is nothing to worry about, now it is.

RE: Squamous Cell Carcinoma Rt Tonsil

by CRF450R on Thu Jul 26, 2018 04:16 PM

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Hi there I have Squamus Cell Carcinoma. Diagnosed 6 weeks ago, it had spread from a tumor in my chest to my arm, lymph nodes and lungs. I actually have had it for years and didn't know what it was. I started with the Gerson Protocol as a base, and added the best of all I researched. Now 5 weeks later my lymph nodes are not swolen or sore, normal. The lesion on my arm is healing after a year of growing and oozing. I looks and feels like baby skin and there is no more pain. The tomor in my chest went from the size of a lemon to the size of an almond in 5 weeks and each day it continues to get smaller. My lungs have less phlem in them and I don't have trouble breathing. There are clear facts that promote cancer and others that starve and kill cancer without burning, cutting or poisoning.

RE: Squamous Cell Carcinoma Rt Tonsil

by Diamond_David on Thu Jul 26, 2018 05:42 PM

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All I can say is wow and sorry

I had tonsil cancer that went to a lymph node on neck. They took out the lymph node and the tonsils then 7 weeks of radiation and checmo. 10 years later OK

if you aren't happy, go see a different doctor or out of town (MD Anderson; Sloan ketterly)

RE: Squamous Cell Carcinoma Rt Tonsil

by Sdurnell on Thu Jul 26, 2018 09:11 PM

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Was your cancer treated in 22014, and if not why not?  It seems that growth since then has been minimal, fortunately. But it seems highly unusual that you had an identified tumor four years ago and it was not treated then.

Head and neck cancer (including tonsil) is usually not discovered until it has metastasized to the lymph nodes.  As long as it's not gone elsewhere, the prognosis is usually good.  Your PET scan should tell you more.

I agree that if you are not satisfied with what your current doctors say you should seek a second opinion. 

And there is a lot of discussion of this type of cancer at the "Head and neck" section of this site, where you may find more help.

All the best,

Susan

RE: Squamous Cell Carcinoma Rt Tonsil

by DrexelHillJon on Fri Jul 27, 2018 02:33 AM

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I have a similar tale. Two docs said don't worry. Two years went by. Then the tumor in my tonsil got so big it was obvious. I'm participating in a dental study at Penn where I'm being treated (to see if my teeth fall out from radiation.) I told the guy running the study about the two misdaignoses and he said "Everyone who comes in here tells me the same story." Apparently it's difficult to diagnose, or easy to misdiagnose. It sucks. I don't know if it helps to know that your doctors aren't the only ones who miss this. It kind of helped for me. Hang in there. It's a rough ride, but it's generally treatable. I'll be two years post treatment next month. My favorite oncologist at Penn said if you're going to have cancer, this is one of the better ones to have. I'm happy to share any lessons learned. I had concurrent chemo radiation, if that's the route you end up going.

RE: Squamous Cell Carcinoma Rt Tonsil

by NYCSUSAN on Fri Jul 27, 2018 03:10 AM

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      I, also had tonsilar cancer scc, also right tonsil.  I found lump in my neck and the rest is history.  I went to NYU.  This was all in 2008 so I'm considered a sucess story.  I had no surgery, they just radiated off both my tonsils and also all the hot spots on my neck.  It was a very unpleasant treatment but do-able.  I had 7 weeks of rads and 3 blasts of cisplaten (nasty stuff).  I live by myself and managed o.k. and since I had a feeding tube (aka as my buddy) cooking and groceries weren't a problem.  It sounds like you need to get another opinion for sure.  A pet scan showed that none of the scc showed below my neck, which was very fine.  I never did have a biopsy of my tonsil, the diagnosis was from a biopsy of my lymph node. 

It's not a pleasant treatment but then it ends and you start slowly feeling like yourself.

Good luck to you.

Susan

RE: Squamous Cell Carcinoma Rt Tonsil

by CRF450R on Fri Jul 27, 2018 05:39 AM

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What were your symptoms and how far along had the cancer progressed?

RE: Squamous Cell Carcinoma Rt Tonsil

by Dlynn1210 on Fri Jul 27, 2018 10:53 AM

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On Jul 24, 2018 4:03 AM Tgornan2005 wrote:

My cancer has metasticized into the lymph glands under my jaw.  But they don't know when the primary tumor became cancerous.  It was a 10mm size in 2014 and then 2nd one in January.  Biopsied in June 2018 and found the scc.  Now it's 1.4 x 1.2 cm.  All cbc mammo pap/hpv normal lung xray showed nothing except mild copd that was 4 mos ago. But pathologist saw staining of hpv possibly they said, but they are not sure. So pet scan next week.  But can't use contrast due to shellfish and iodine allergy.  Has anyone experience this?  They should have biopsied this well before.  The gp and ent then said it is nothing to worry about, now it is.

I was diagnosed with SCC of the left tonsil in 2007. I am also allergic to iodine and all they do is give me two medications - one the night before and one in the early morning (6 AM) - of the scan so they can do a contrast. Without these meds I break out and have trouble breathing which must be addressed immediately to counter. With the meds - no problem. They suspected at one time that the cancer might have returned - and here in FL they were scared to use contrast for the scan because of my allergy]] (liability). I took the results to CTCA and the oncologist said it was worthless without contrast - they prescribed my meds and did one the next day. I was treated at CTCA In Zion. I am not surprised that the GP missed it but most ‘younger’ ENTs now pick up on a potential problem. Mt best friend had a lump in her neck. I continually told her go to an ENT but she had full confidence in her GP. When she went in for her last appointment his assistant told her she was supposed to call her to cancel the appointment but hadn’t. Her GP wanted her to go to an ENT - finally! She made an appointment with mine who did his residency in head and neck cancer oncology at Standford. He told her with minutes that she actually had two lumps and that they needed to be biopsied. He could either do the biopsy then or remove the lumps for biopsy. She chose to have biopsied right then. She sees him again on Tues and praying the results are back. We always believe that every doctor is competent but sadly that is not true. I agree with others who have said I would do some serious research and find another doctor. When I first moved to FL an ENT referred me to a GI doctor - which got me into serious trouble. Long store short I got on the internet looking for an otolaryngologist experience in cancer and found my current ENT. Important - if any radiation is required go with TOMO for tonsil cancer over IMRT. The head of radiology at Siteman in St. Louis took my call and answered my question regarding the two types. A cancer center 12 miles from my home had IMRT - CTCA had TOMO but was a 2 hour drive from my home. I was honest and told her I wouldn’t be coming there because of distance but if this was her or a loved one which would she choose. She said for a non moving organ like tonsil she would go with TOMO - more precise and salvages the salivary glands. I’ve had nodules showing up in my lungs for the last few years but it is not cancer. Tonsil cancer is a slow growing cancer and I’ve often said IF I had to be diagnosed with cancer - tonsil cancer would be my choice because it is treatable. I am 10 1/2 years clear of cancer. Diana

RE: Squamous Cell Carcinoma Rt Tonsil

by CRF450R on Fri Jul 27, 2018 07:41 PM

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Hi Diana, no you do have cancer, everyone does. The bodies imune system is what surpresses it. When the imune system is compromised the disease gets a boost. This is proven fact when the body is infused with nutrition and the toxicity is reduced it heals itself. This your doctor will not tell you this because he has bills to pay. Over and over this simple fact has been proven but instead people are being slowly murdered every day by the present system. Congrats to you for your recovery and lets hope your body is and stays blessed.

RE: Squamous Cell Carcinoma Rt Tonsil

by cagy2 on Fri Jul 27, 2018 07:49 PM

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On Jul 27, 2018 7:41 PM CRF450R wrote:

Hi Diana, no you do have cancer, everyone does. The bodies imune system is what surpresses it. When the imune system is compromised the disease gets a boost. This is proven fact when the body is infused with nutrition and the toxicity is reduced it heals itself. This your doctor will not tell you this because he has bills to pay. Over and over this simple fact has been proven but instead people are being slowly murdered every day by the present system. Congrats to you for your recovery and lets hope your body is and stays blessed.

Quit feeding B.S. to people. Cancer isn't cured by nutrition.  COOOKs like you may lead people not to seek help!

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