Just diagnosed last week

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RE: Just diagnosed last week

by Dlynn1210 on Sat Aug 11, 2018 11:11 AM

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This website was created and is sponsored by the Cancer Treatment Centers of America (CTCA) for cancer patients, caregivers, and survivors. It has individual blogs for different types of cancer because every type has different symptoms with different treatments. I was treated at the CTCA in Zion IL in 2007 for tonsil cancer and have been cancer free for 10 1/2 years after undergoing radiation and chemo. There are people from all over the world on Cancer Compass sharing information. There are patients and caregivers asking for reliable information from those who have been down that path already. Survivors come back to pay it forward - to give hope and share our experiences. Unfortunately, there are people who see themselves as experts after searching the Internet on a given subject. They become dangerous when they begin to share ‘their’ beliefs as factual. Head and neck cancers have a very high success rate and many of us are on Cancer Compass. Statistics are derived from past numbers - not current. I’ve often said that if one has to have cancer - head and neck cancer is the one to be diagnosed with. The treatment can be brutal but worth it to hear those words - no sign of cancer anymore. Diana Diana

RE: Just diagnosed last week

by Rocbottum on Sat Aug 11, 2018 12:07 PM

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Interesting. I can still force myself to swallow soft food but a petcan is a week Away. By then who knows. How did you fend off that part?

RE: Just diagnosed last week

by Rocbottum on Sat Aug 11, 2018 12:11 PM

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It is the anxiety of waiting for treatment presently that is overwhelming. A week till this and a week till that. All the while it is growing and the family and everyone waits for the stage.

RE: Just diagnosed last week

by Dlynn1210 on Sat Aug 11, 2018 12:38 PM

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I know it sounds cliche but I took one day at a time putting one foot in front of the other. I concentrated on doing what I needed to right then and making it through that day. I just focused on winning the battle! The only thing I would do differently would be to agree to a feeding tube sooner. I had Cisplatin chemo which is highly nausea producing. Two weeks into treatment and two chemo treatments I had lost weight and was weak as a kitten. I was begging for one then. I can remember something one of my nurses said minutes after I heard the results of my latest scan - no signs of cancer. She said “Now you know why we kicked your butt all those weeks.” I got it!!!!! Most head and neck cancer patients are a later stage when diagnosed due to lack of symptoms. Stage really isn’t as critical or telling in head and neck cancers as it is in other types of cancer. I have a close friend who has been battling GBM Stage IV for two years. That is a nasty cancer and one that she will never be back to who she was before her diagnosis whereas I may have some minor after effects of treatment but I am doing great. I have been on cruises and gone on several mission trips in and outside of our country since my treatment. I have been deployed with my team (Baptist Disaster Relief) after five disasters - Hurricane Irma was my last deployment. My employer terminated me when I had to take a leave of absence for treatment but even that was a blessing because I have more time for my mission work. Surviving cancer gives you an entirely new perspective on life - it definitely rearranged my priorities. There is life after cancer! Prayers definitely help. Diana

RE: Just diagnosed last week

by Dlynn1210 on Sat Aug 11, 2018 12:56 PM

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On Aug 11, 2018 12:11 PM Rocbottum wrote:

It is the anxiety of waiting for treatment presently that is overwhelming. A week till this and a week till that. All the while it is growing and the family and everyone waits for the stage.
I totally understand!!! For 2-3 months I had experienced extreme fatigue - I went to bed tried and got up tired. I knew something wasn’t right but 5 doctors didn’t have a clue what was wrong. One did ask if anyone had ever mentioned that I had an extremely enlarged left tonsil. Actually I had always been told I was born without tonsils like my mother. I was later told they were so tiny they didn’t appear to be there. I started having very very very mild chest pains so made an appointment with a cardiologist because my dad had heart problems that appeared at my age. It was the cardiologist that knew what she was looking at with one tonsil that took up half my throat. She made an appointment with an ENT before I left her office. That was a Monday - I saw the ENT on Wed evening - and I was in surgery the following Mon and diagnosed before leaving the operating room. Once diagnosed I wanted the cancer gone - out of my body. First, I needed to heal from the surgery - then I had to have some dental work - back teeth removed for my upcoming treatment. Waiting can be overwhelming - but head and neck cancers are very slow growing. There will be little, if any difference, by waiting a few weeks. Trust me - I know that is easier for me to say now than I felt 11 years ago while it was me waiting to begin treatment. One day you will be where I am now - and able to reassure someone else who is starting down the path that you once traveled. I went back to CTCA for my checkups and would look at the people who were undergoing treatment and realize I was once there but I was alive and cancer free. You will be there one day!!!! Patience is definitely a virtue while awaiting treatment to begin. Diana

RE: Just diagnosed last week

by CRF450R on Sat Aug 11, 2018 06:10 PM

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Cancer Treatment Centers of America is a huge corporation who have benefited by the demise of millions of good people. There are and always have been cures outside of those that are patented. This is an ugly fact that shills like you are instrumental in throwing dirt upon the graves of millions for profit. That is a fact.

RE: Just diagnosed last week

by Dlynn1210 on Sat Aug 11, 2018 06:50 PM

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The first CTCA was in Zion IL where every street in town was named after books in the Bible. A doctor started the hospital and when he retired a corporation purchased it as a tax write off. Then it was once again for sale. The man who purchased it and started CTCA lost his mother to cancer and was disappointed in how little his mother was kept informed and how little the family was kept informed as to her condition. He bought the hospital with a sole purpose in mind - focus on cancer patients and their families. I was treated at CTCA and know in comparison to many people who find their way to Cancer Compass how blessed I was - alternatives like acupuncture to help patients through treatment, an area to exercise, healthy food provided (I could even order nourishing shakes made with Prosure when I didn’t feel like eating), and a chapel where services are held every Sunday morning with a pastor always available - not to mention the creation of Cancer Compass. Everything is centered on what is best for patients. Since CTCA created and sponsor this site, there are many of us on Cancer Compass who know and have first hand experience with CTCA. You don’t need to be a patient of CTCA to share on Cancer Compass - and in fact, you don’t even need to live in the U.S. Diana

RE: Just diagnosed last week

by CRF450R on Sat Aug 11, 2018 07:14 PM

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And it was all free, right?

RE: Just diagnosed last week

by Dlynn1210 on Sat Aug 11, 2018 07:32 PM

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My insurance paid for treatment - the same as they do for every illness or accident and why I have insurance. Many of the doctors and nurses at CTCA are cancer survivors and why they chose to work for CTCA. I was diagnosed with a brain bleed two years ago - my insurance also paid for my 5 day stay in the hospital.
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