Confused about condition???

5 Posts | Page(s): 1 

Confused about condition???

by Lisals1962 on Sun Aug 05, 2018 12:13 PM

Quote | Reply

Hi,my name is Lisa. I was diagnosed 14 months ago with stage 4 adenocarcinoma of the pancreas. My oncologists have used so many different terms when describing whatever it is i am being treating for,i cant say exactly what i am being treated for.  

In April in actually said to me that i should have already passed away,if i had been diagnosed correctly. He then sent all of my tests results to 2 different labs to be sure the earlier diagnosis was correct. 

I would greatly appreciate any advice from anyone as to who and where i can get some help figuring this disease out just a bit. 

I have asked my drs to explain better,clearer..with no luck. So im just tryijg to learn as much as i can from whereever o can.

Thank you for your time.

RE: Confused about condition???

by Chrisssy on Sun Aug 05, 2018 07:37 PM

Quote | Reply

Hi Lisa

My advice to you is to get a second opinion....FAST!! Your Dr.'s explanation should be clear to you and/or  your loved ones. I can only recommend a NY Doctor that treats my MOM for pancreatic cancer. All questions are answered as if we were 2 year olds. They are the experts not you. You have to be your own advocate!! Im sure they are not treating you for free and even so you deserve to know!! No question is a stupid question especially when it pertains to your health!! Feel better and demand answers!! Write down all of your concerns!!

RE: Confused about condition???

by teamandrew on Mon Aug 06, 2018 01:35 AM

Quote | Reply
I agree that you need to find a second opinion immediately. And bring someone with you. I go with my husband and I take notes every time. I look things up afterward and refer back to my notes when we forget things. I hope you have someone who can do this for you.

RE: Confused about condition???

by Titograndog on Thu Aug 09, 2018 04:52 PM

Quote | Reply

On Aug 05, 2018 12:13 PM Lisals1962 wrote:

Hi,my name is Lisa. I was diagnosed 14 months ago with stage 4 adenocarcinoma of the pancreas. My oncologists have used so many different terms when describing whatever it is i am being treating for,i cant say exactly what i am being treated for.  

In April in actually said to me that i should have already passed away,if i had been diagnosed correctly. He then sent all of my tests results to 2 different labs to be sure the earlier diagnosis was correct. 

I would greatly appreciate any advice from anyone as to who and where i can get some help figuring this disease out just a bit. 

I have asked my drs to explain better,clearer..with no luck. So im just tryijg to learn as much as i can from whereever o can.

Thank you for your time.

Hello Lisa,

     You did not indicate what type of doctor you were seeing.  Yes, you should get a second opinion by an oncologist that specializes in pancreatic cancer.  This type of doctor is found at most larger hospitals and university teaching hospitals in larger cities.    I would strongly suggest that you get all copies of you test results to take or have faxed to the second opinion oncologist so that he or she may have all pieces of your diagnostic puzzle so far.  It would be a big help for the doctor.  You are by law entitled to everything in your medical file.  Usually, the oncology groups at teaching hospitals consult together to support the best outcomes for diagnosis and treatment.  Understanding the classifications/descriptions of pancreatic cancer staging and details of your lab reports are the major pieces of your cancer puzzle that explain your risks to determine your choice of treatment.  You only have to contact your closest teaching hospital for information if you do not know the names of pancreatic specialists in your area for a doctor recommendation.  You can also research information "IF" you are mentally ready by contacting Pancreatic Cancer Action Network www.pancan.org (877-272-6226), American Cancer Society www.cancer.org (800-227-2345).  There are many trusting sites to inquire about your diagnosis for support but I would caution you to only use sites that are reliable.  Yes, being your own advocate and delving into all the many pieces your cancer puzzle can be so empowering providing you the peacefulness you will need to know you made your decisions on treatment with absolutely no regrets.  You will then live each life moment to the fullest so that cancer does "NOT" rob you with fear.  Thrive on with best wishes.    Christy              

RE: Confused about condition???

by Lisals1962 on Fri Aug 10, 2018 01:34 AM

Quote | Reply

Thank you for your reply to my post. I will most definitely use the links that you've given me. I did go to one of them only to learn that obviously I'm more in the dark than i thought..lol..i learned out of tge 2 choices for type of pan cancet i have ive been given both types in my diagnosis. I am rapidly losing any faith that i had in my oncologist. Im alreafy on my 2nd dr..and its onoy been 1 yr since i found out. The more time that passes only fuels my anxiety especially when it seems that every day i am feeling weaker .my dr refuses to add anxiety medsto my pain meds. He insists i see my pcp for that and he will only follow tge office protocol of meds which i have tried wheb i was furst diagnosed. Unfortunately none of those really helped. I do not understand what these dr fear about prescribing a simple xanax or low dose valium. Instead i go through ativan,buspar.etc...they do not seem to have any effects on my system .Please feel free to offer any suggestions that you may have 

Lisa

5 Posts | Page(s): 1 
Subscribe to this message board discussion

Latest Messages

View More

We care about your feedback. Let us know how we can improve your CancerCompass experience.