fatigue

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fatigue

by Mikee21 on Mon Sep 03, 2018 02:12 PM

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finished my radio and chemo for tonsil cancer 3 weeks ago. Throat doing better, but this fatique is maddening. I am a person who likes to get and do things, how long does it last and is there anything that will help? I appreciate all sugguestions, this is a fabulous site!

RE: fatigue

by JohnnyO on Mon Sep 03, 2018 03:45 PM

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Hi Mike -

6 years post-treatment here.  My advice would be to not push yourself too much.  I was feeling great and decided to go back to lifting weights.  After a week, I felt like it set my energy recovery back for a month or more!

Eat, eat, and eat, all the calories you can.  Protein shakes, fats and good carbs (skip the sugar and junk).  Google diets for people trying to gain weight.  Walk or jog to kick up your metabolism.  Give yourself a year to feel normal again, and all gains prior to that will be gravy.  I was 50 when diagnosed and felt great (despite the setback) in 6 months.

Congrats on finishing your treatment! 

RE: fatigue

by NJM01 on Mon Sep 03, 2018 08:49 PM

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Hi Mike, So glad you completed your treatment - here’s hoping for a complete response! I endorse what Johnny Q said, progress is measured in weeks and months rather than days. Allow about 6 months for the bulk of the fatigue to pass. I found gentle walks helped but anything more strenuous took 6 months or so. I’m 12 months out now and still have some residual fatigue. It doesn’t interfere with my life too much but I do need to be mindful of it. All the best, N

RE: fatigue

by atcbugsy on Tue Sep 04, 2018 01:10 AM

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Hiya Mike,

I'll echo what everyone else has said.  You've been to the gates of Hell.  You'll be back, but it's a S-L-O-W journey back.  Trust your body to tell you what it needs.  Pushing may only make your recovery slower.

Best of luck.

Bugsy

RE: fatigue

by Sdurnell on Wed Sep 05, 2018 03:46 AM

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Mike,

I think we can all understand your frustration with the slow rate of healing after radiation.  Just do a bit more each day, or each week, and some day you'll find that you are doing much better.  In the meantime, allow for more rest and sleep so that you can do whatever else you can manage.  Very gentle exercise is good.  I started not too long after finishing treatment just walking about the yard looking at the process of spring, but it had to be 50° or I'd stay inside!

My primary care doctor recommended a bit of sunshine and natural light and moving about.  After a little while I could walk the dogs a bit, then gradually added on.  But fatigue was still definitely with me for the first year.  After two years I could stay up late or pull the occasional all-nighter as I could before.

Be sure you are eating well.  Your body is working so hard just healing itself that it needs extra rest/sleep to do its job, as well as extra calories and protein, especially if, as most of us, you have lost much weight.  That also takes a long time to fix.

Don't push too hard, as that may set you back.  Each of us has our own recovery route.  Just remember that even when you are tired you are internally healing and that that takes a lot out of you.

Patience--I know, it's not easy.

All the best,

Susan

RE: fatigue

by Mikee21 on Wed Sep 05, 2018 02:02 PM

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Thanks all...yes it is hard and I really appreciate hearing from you folks who have been thru it. It helps hearing that it is just not me..but that others have the same issues..again thank you

RE: fatigue

by tristeve on Wed Sep 05, 2018 03:37 PM

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hi Mike, your poswt brings back memories. I was a hard core triathlete before cancer. I was 100% suprized how much it knocked me down. For months after treatment I was as weak as a kitten, very frustrating. Walking was an issue, 1/4 mile would absolutly kick my a%$.

After 5 months or so I slowly got back to exercise, and every month i would get stronger. I can not say if I ever fully got back to where I was, I did get older, 67 now. But I also did get back to triathlons and still ride/swim/run/life all the time

as I have said, long trail back, one day at a time. we have all been there!  One of these years you will look back and just be amazed that you had such a trip!!!!

Steve

RE: fatigue

by reissens on Sat Sep 29, 2018 10:39 AM

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I am 11 months post treatment..and fatiuge is terrible...but i know that it will take awhile...the chemo destroyed me more i believe.. its true we go to hell, now we have to come back..but we are still here so that is the main thing..

RE: fatigue

by hisprincesstoo on Fri Oct 05, 2018 05:41 PM

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one thing I haven't read here is the damage to the thyroid.  If it has gone hypo, this could explain a bit of fatigue.  Not sure everyone continues to check on this, but won't hurt to ask dr to check on next labs.

I started this hyper thyroid (4 years ago) and was normal after treatment, but went hypo last year, so continuing to check is a good thing.

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