Whipple Procedure

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Whipple Procedure

by WHIPPLE240 on Thu Sep 06, 2018 11:51 PM

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I underwent Whipple Procedure AUGUST 15 2018. Pancreatic cancer was removed from the pancreas and the Liver, since my cancer spread to the liver This is Stage 4 cancer, CHEMO Discussion will take place with Oncologist in a week or so. I have been weening off my pain meds & tylenol 1/2 pill with tylenol the last couple days no meds. I have a Wound Vacumn that was placed on Monday 9/3/18 ordered by my Surgeon to Speed up wound healing. Today 9/8/18 was the "WORSE PAIN" that I have had since my surgery, no energy , can't eat had to take Full pain pill with Tylenol.  I have a Follow-up appt with the Surgeon tomorrow. But looking for any help as to How to manage the pain, and does it get more managable? Any input would be appreciated. 

RE: Whipple Procedure

by WHIPPLE240 on Thu Sep 06, 2018 11:53 PM

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Correction today 9/6/18, I don't even know what day it is.

RE: Whipple Procedure

by JoyceLadouceur on Fri Sep 07, 2018 11:15 PM

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Hi whipple240, yes it will get much better in due time. You need to take your pain meds consistently as your doctor perscribed. Having a Whipple procedure is a big surgery and takes quite awhile to bounce back. And yes, eating and tiredness are a common problem. Eat very small amounts , even if it's just some crackers and cheese or pudding. I lived on ensure and would eat half a peanut butter sandwich which I found hard to finish. But as time went on it got much better. As for chemo, it is usually recommended as a precautionary measure. Don't get discouraged, altho it takes time , you can do this! 

Blessings

Joy

RE: Whipple Procedure

by WHIPPLE240 on Fri Sep 07, 2018 11:45 PM

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Thanks Joy, I was re-admitted to the HOSPITAL  today because at my F/Up exam today, my WBC count was 24 . So they will run a CT Scan sometime tonight to make sure no leaks pancreas. Intestines may have to put drain back in. We'll see. One day at a time. At least they took some of my staples out today.

RE: Whipple Procedure

by StanToronto on Sat Sep 08, 2018 02:47 AM

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WHIPPLE240

  Be ever so grateful that your medical team agreed to go through with a whipple, the only real chance for beating this disease!!

I have only heard of one incident of whipple after it had metastisized the the liver, and that was with a 15 year old boy!

Unfortunately, I live in the Toronto area. Calvin Law at Sunnybrook Hospital, fought off the idea of a whipple until it was too late. I re-submitted my request when Calvin Law was away on holidays, which was reviewed the request couple months later. The request was reviewed by the board of surgeons, who gave a pessimistic surgical prognosis. Surgery was possible, with only a 50% chance of even surviving the surgery. :-(

In retrospect, I should have taken the 50/50 gamble, because without the surgey, becaue my wife was dead 6 months later. :-(  

Stan

RE: Whipple Procedure

by JoyceLadouceur on Tue Sep 11, 2018 02:13 PM

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Hi whiople240,  just wondering how you are doing now . Your wbc was high but I'm sure they will get to your problem as you are in the right place. You will start to feel better as these Staples come out. , Which is an encouraging sign. One day at a time is right and little by little things will improve for you. I prayed for you today ! 

Joy

RE: Whipple Procedure

by Anadabijou on Mon Sep 17, 2018 11:39 AM

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I found that CBD oil and tincture and puffing on some good cannabis helps with pain cessation. Stay away from opiates, they're designed to get you hooked

RE: Whipple Procedure

by denver88 on Thu Sep 20, 2018 02:47 PM

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I had a Whipple in 2017 and fortunately doing well today and tumor, neuroendocrine type, contained for now with monthly injections of lanreotide plus i take enzyme tablets.  My cancer did spread to liver.  Pancreas tumor on head removed and no recurrence, liver tumors contained as of now.  Complications are not uncommon with Whipple and are varied in severity.  Do take the pain meds until problem resolved and do ask for the potency you need to control pain.  I was fortunate in that my only noticeable pain ocurred in the hospital for a brief period of time and thereafter I was pain free from operation but others have responded with more experiences of lasting pain.  Do seek out second opinions.  Note, my tumor was a neuroendocrine tumor and this may not be your situation.  Hang in there

RE: Whipple Procedure

by TomTao on Thu Sep 27, 2018 11:08 AM

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I had Whipples 21 years ago, took me a long time to recover from the surgery, but with someone who loves you and helps you it does eventually get better. Today I have been told I have gastritis, but I have the husband God sent to me 11 years ago, I wouldn't be alive now without him, and I have my faith in God and Jesus to give me strength at the hardest times. Take your medicines until you can wean off them, listen to the doctor and call to God when it gets too much, He does hear you!

RE: Whipple Procedure

by WHIPPLE240 on Thu Sep 27, 2018 02:38 PM

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Hi, Yes I am improving slowly, I actually gained a few Lbs. My energy level is better and my wound is healing. I meet with the Oncology team on 10/5/18.  Looking back maybe I was lucky to have had the Whipple, my surgeon told me if there were signs my pancreas cancer had spread they would not have gone forward with the Whipple Surgery , The liver preliminary test came back negative therefore went forward with procedure and removed.  FULL PATHOLOGY TEST SHOWED CANCER IN LIVER.     State 4 because it spread, but its out??

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