What type of specialist did you see?

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What type of specialist did you see?

by Piobaire on Fri Sep 14, 2018 10:48 AM

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My biopsy came back as malignant (still waiting for details re type, stage etc) and I’m waiting to see my GP re: next steps. Unfortunately my GP is not the best and I’ve had to self direct my care many times. What type of referral should I expect? An endocrinologist? An oncologist? An ENT surgeon? I need surgery and further testing to determine any mets but I’m not sure who I should be referred to. Thanks!

RE: What type of specialist did you see?

by Daisy17 on Fri Sep 14, 2018 01:10 PM

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Piobaire, after my husband’s biopsy came back positive our GP set us up with an oncologist who set us up with a gastroenterologist. His cancer is in his intestines with 1 liver NET. It pretty much snowballed after that. Before we knew it we had 7 doctors and 3 radiologists. We were going to a local hospital and those doctors set us up with a specialist about an hour and a half away. We also had slides and scans evaluated by our pick of doctors and everyone is in agreement. Keep in mind we have been in this process for 3 1/2 months and 7 different scans and 3 sets of blood work. If your GP is no help, I would look for an oncologist who has dealt with NETs. He can tell you the next steps. Good luck and God bless.

RE: What type of specialist did you see?

by butterfly501 on Fri Sep 14, 2018 09:06 PM

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On Sep 14, 2018 10:48 AM Piobaire wrote:

My biopsy came back as malignant (still waiting for details re type, stage etc) and I’m waiting to see my GP re: next steps. Unfortunately my GP is not the best and I’ve had to self direct my care many times. What type of referral should I expect? An endocrinologist? An oncologist? An ENT surgeon? I need surgery and further testing to determine any mets but I’m not sure who I should be referred to. Thanks!

You'll want to see a surgeon next, one experienced in thyroidectomy.  Also, you'll need to get an endocrinologist.

Good luck!

RE: What type of specialist did you see?

by butterfly501 on Fri Sep 14, 2018 09:07 PM

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On Sep 14, 2018 10:48 AM Piobaire wrote:

My biopsy came back as malignant (still waiting for details re type, stage etc) and I’m waiting to see my GP re: next steps. Unfortunately my GP is not the best and I’ve had to self direct my care many times. What type of referral should I expect? An endocrinologist? An oncologist? An ENT surgeon? I need surgery and further testing to determine any mets but I’m not sure who I should be referred to. Thanks!

I'm assuming you have thyroid cancer. 

You should not need an oncologist for thyroid cancer.

RE: What type of specialist did you see?

by ToddlerFather on Sat Sep 15, 2018 02:56 AM

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If you can only get one specialist, that would be a Head & Neck surgeon. You need one anyways for the surgery, and most of them are capable enough to handle the clinical aspects of it. 

If you can get both a surgeon and an endocrinologist, it would be better; I see little value though in adding an oncologist at this point. 

RE: What type of specialist did you see?

by butterfly501 on Sat Sep 15, 2018 05:26 AM

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A general surgeon did my thyroidectomy.  He was very experienced and had just returned from volunteer work in south america removing thyroids for children. He did a great job and was very kind.  

Experience matters the most over any title/specialty a surgeon holds.

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