Neuroendocrine cancer intestines liver

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Neuroendocrine cancer intestines liver

by Daisy17 on Fri Sep 14, 2018 01:16 PM

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Hi. I’m new and having trouble finding anyone to talk to about my husband’s cancer. He is 57 and works construction. He began having pains that relate to inguinal hernia. Had a CT, no hernia but small mass in liver. After MRI, they did a biopsy and confirmed a 2cm stage 2 well differentiated NET. Then told us that there is more cancer somewhere in his intestines. After colonoscopy/endoscopy, capsule endoscopy, and octreotide scan they finally found the area in the intestines. All they see is an enlarged lymph node so far. Very hard to find. The only symptoms he has is groin pain, chills, fatigue. He is very constipated but that is his norm. The plan...exploratory surgery, bowel resection, hemicoloectomy, and burn the small one in his liver. The surgeon said he will cut it out and we will be done. No more cancer, just scans for the rest of his life. Of course, we will have to see the Oncologist again for his opinion on that after surgery. Could it really be that simple? Or are they just making sure our stress levels aren’t debilitating? I’m hopeful because the surgeon said the liver tumor is easy and because after ALL those tests they only found one tiny area enlarged in the mesentery. I know there are at least one or more tiny tumors in the intestines and the surgeon said he will find them. My worries...if it metastasized to his liver, even if it’s only one tiny one, he is still in stage 4. If it metastasized through blood or lymph nodes then couldn’t there be more than what they’re saying. The facts...after ALL those tests, only 2 small areas were seen. Thoughts? And thank you for listening.

RE: Neuroendocrine cancer intestines liver

by vjpers on Sat Jan 26, 2019 05:25 PM

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This sounds very similar to my situation.  Always had sporadic stomach pains, and had diarrhea regularly.  Finally the primary tumor in my intestine caused the intestine to kink and this caused a blockage.  They went in and removed the primary, and one other small carcinoid, but found that the cancer had gone into my lymph nodes.  Two years later thay found one operable tumor in my liver.  This was removed, and I have been pretty good for the last 6 years.  Surgery, if operable, is the best way to treat this cancer and halt/slow down progression.  It doesn't go away, but if they can operate and get rid of most of it, you can go for years without other problems.  Good Luck.

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