pelvic ascites

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pelvic ascites

by tweixel on Tue Sep 25, 2018 11:35 AM

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I was dx with pancreatic cancer in May of 2017. So far the cancer hasn't spread. Have had several rounds of chemo and radiation and seems things are stable. After a stay in hospital last week from extreme abdominal pain..clammy..breathing trouble..vomiting and few other symptoms  I was told my ct  scan shows moderate pelvic ascites. Seems there wasn't a concern from the Dr. but after reading about it online I need to know if anyone else has been through this and if this will go away on its own .What I read about it makes me little nervous.

RE: pelvic ascites

by PunkyD on Tue Sep 25, 2018 01:19 PM

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Dear Tweixel,

I think you have every reason to be a little bit nervous. Why would having moderate pelvic ascites NOT be a cause for concern??? Pancreatic cancer is not a cancer to mess around with. It is a very sneaky and stubborn kind of cancer. I am glad though to hear that it hasn't spread. You say: Seems there wasn't a concern from the Dr. That sounds very strange and vague. If you have symptoms and ascites, there is a cause.  Did the doctor tell you what is the cause of the ascites? Some doctors will not give you information unless you specifically ask for it. Did your doctor tell you "Don't worry"? I don't think that ascites appears for no reason or goes away by itself. It usually needs to be drained. 

I am sorry if I am making you scared, but I think that you should ask your doctor for more information and I think you should take your symptoms seriously. Do you have someone going with you to the doctor to ask questions?  You did not mention your age. 

I wish you all the best and a complete recovery. 

Punky

RE: pelvic ascites

by tweixel on Tue Sep 25, 2018 01:59 PM

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Thank you for your response. I'm 58 and usually go alone.  I was there for chemo...currently doing gem and Abraxane. It was cancelled yest.cause my labs were low. I had transfusion in the hosp. 4 days before. Platelets are low and my legs are full of black and blue marks. . She did talk about the fluid being the reason I showed a 13 lb weight gain in a week. Other then that no mention of doing anything for it. My ankles also are swollen. I'm generally more inquisitive but for some reason didn't think much of it. After researching I started worrying. Every symptom listed in what I found I have. Thank you for reassuring me I'm not over reacting.. I am contacting my dr right now. 

RE: pelvic ascites

by StanToronto on Tue Sep 25, 2018 02:09 PM

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Vomiting and ascites is an indicator that there is a blockage preventing food and fluid from draining. My wife was living quite normally and comfortably until the vomiting and ascities developed during her last week. I called the doctor on Wednesday to have her examined, but he said he would be seeing her on Friday, and he would take a look at it then. My wife was awakened in the small hours of Thursday morning, pointing to her abdomen saying 'I hurt!" She was taken to hospital by ambulance, but died an hour later. The reason for death was simply "something ruptured". They didn't do any further investigatigation of the acutal cause.  

RE: pelvic ascites

by tweixel on Tue Sep 25, 2018 02:53 PM

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I am so sorry to hear about your wife. Thank you for sharing. Sounds exactly what I have been going through. Vomiting daily has been my major complaint for awhile. The pain was excruciating to the point I couldn't breathe and I was clammy and my blood pressure took a dive the day I went to ER.  Yest. the pain started again on my way home from appt..I drive an hour each way. Difficult to take a deep breathe. I managed to get through it. I am going to get some answers from my dr today!!

RE: pelvic ascites

by patrigib on Tue Sep 25, 2018 08:29 PM

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Is the pain on the right side, under the ribcage? Mys husband was diagnosed stage 4 sept 2014, has had only chemo. No ascites so far but mets ont the liver. Has sometimes had bad pain on the right side, unable to breathe, but scan says it's ok. Let us know how things are, What a hell!

RE: pelvic ascites

by lisaflo on Tue Sep 25, 2018 09:18 PM

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I don't want to frighten you but I feel compelled to share. My best friend's first indication of pancreatic cancer was ascites and she was diagnosed at stage 4. Initially, the fluid was an indicator of her illness. Not long after, despite 2 paracentesis procedures, her belly continues to be distended and the bloat is because of tumor growth. She's very sick and on 5-FU chemo. My advice is to be your own advocate and not let anyone tell you what is normal or abnormal. Wishing you the best.  

RE: pelvic ascites

by tweixel on Wed Sep 26, 2018 01:35 AM

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Don't be worried about frightening me. I would rather know the truth then not. I talked to the dr I saw yesterday. My reg dr is out of town. She did not think there was anything that needed to be done. I told her I have every symptom listed under pelvic ascites. I have appt. with my reg. dr Mon and I think he will be more informed. In the meantime..I'll be after some more answers from the cancer center I go to. 

I value all you for sharing your stories and telling me what is going on. I know I'm my best advocate. Sometimes it's hard for me so I really needed assurance I was doing the right thing in pursuing this.

I'm thankful for forums like this to help us through. Blessing to all! 

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