Spread caused by biopsy

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Spread caused by biopsy

by MRTAYLOR on Sun Oct 21, 2018 05:26 AM

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Hi, I’m absolutely certain a biopsy of my pancreas done at Mayo clinic has caused my cancer to spread. Lymph nodes came up after, I have what feels like tumors growing in a number of places and my cea and circulating tumor cells are raised. I spoke to the doctor and he told me there is always a risk, but I wasn’t told about this risk before the procedure. I’m going to an integrative oncologist and they sold me they see it all the time. I’m confused about what to do next? Someone has effectively given me terminal cancer and I’m made to feel like this is normal? Does anyone have any suggestions as to what to do?

RE: Spread caused by biopsy

by Baloo on Sun Oct 21, 2018 01:13 PM

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Was this another biopsy done on a tumor that was already confirmed cancerous? If so, why was the biopsy recommended?

Or, was is a biopsy done to determine whether or not the tumor was in fact cancer?

RE: Spread caused by biopsy

by MRTAYLOR on Sun Oct 21, 2018 01:24 PM

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Hi baloo, thanks for responding. The biopsy came back negative. They are going to rebiopsy in couple of weeks. I have symptoms of pancreatic cancer and after the biopsy I came out positive for circulating tumor cells.

RE: Spread caused by biopsy

by Baloo on Mon Oct 22, 2018 01:24 PM

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Sorry I don't entirely understand your situation, but it seems that the biopsy was necessary. As with everything else concerning pancreatic cancer the choices are between dreadful and worse, so the decisions are difficult and all have the potential for serious negative consequences. I hope that your biopsies continue to be negative. 

RE: Spread caused by biopsy

by Baloo on Mon Oct 22, 2018 01:26 PM

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I should mention, it is possible of course that the circulating cells were there prior to the biopsy and it's only a coincidence. Difficult to prove, either way, without a test prior to the biopsy.

RE: Spread caused by biopsy

by MRTAYLOR on Mon Oct 22, 2018 01:38 PM

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I do have a negative test a few months prior. Which brings me to the question, why doesn’t clinical practice test for ctcs pre and post biopsy? They have proven biopsies increase ctcs, so would this not make sense as clinical practise? Agree for pancreatic cancer every angle is grim. I also don’t remember being warned of risks. I have had to do research after to find out what’s happeninf after the biopsy. Aside from this the doctor is great, I’ve let him know my thoughts. Just not sure if there is a standard process when this happens.

RE: Spread caused by biopsy

by Baloo on Tue Oct 23, 2018 01:05 PM

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I'm not sure how protocols work in the US, but here in Canada each province has its protocol and doctors must stick to it unless (from my experience) a patient asks for something different. I agree, from my research, that tests that seem obvious are ignored, and that changes to protocols move at a glacially slow pace  even when there's research to  back up changes. 

I had, possibly a similar experince. My tumor was stable, but I went for the nanoknife procedure. It did not work, and the tumor has  quickly grown back  and it seems to have  started to spread to the lymph nodes. Not sure if the surgery did it, or possibly the stress from the surgery, or just coincidence, but the result was not what I'd hoped. But I had to take the chance and I would do it again given the same options. 

I would hope that there was a very good reason for the biopsy.  I hope the doctor knew the risks and decided that the biopsy was important and the risks of spreading the cancer were justified. I've also found that doctors in general don't do a good job explaining the pros and cons of procedures and that it's best to thoroughly research procedures and therapies on your own to be able to make the best decision. It's tempting to just trust the doctor to make the best, informed, decisions on a patien'ts behalf but sadly that's not always true. It's unfair to make the patient be their own doctor, but that's what I've found, in my experience. 

Are they recommending chemo to mop up those stray cells?

RE: Spread caused by biopsy

by Janey6 on Thu Oct 25, 2018 10:16 PM

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I hope the “circulating” cancer cells can be irradiated by chemo. Pancreatic tumor is NEGATIVE. Lucky you. You needed that Bx. Best wishes to you.
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