Possibility of Carcinoid

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Possibility of Carcinoid

by Peg541 on Tue Nov 06, 2018 02:28 PM

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Hello. In Early September 2018 my blood pressure suddenly dropped. I almost passed out. Subsequently my BP which is usually high and under treatment has stayed low. Many times a day as low as 90/55. I stopped my blood pressure pill that week. My heart pounds many times a day. Not fast. Just a strong heartbeat that keeps me up at night. I'm anxious and irritable off and on. I do flush but not dramatically. I have always flushed. My PMD finally ordered testing for pheochromocytoma and CGA. My CGA came back 1400. I asked to see an endocrinologist. He did all of the usual testing and my CGA came down to 489 which is still high. Everything else came back within normal ranges. And he left on vacation until the week of thanksgiving. I couldn't get another appointment until 12/24! My BP is still on the low side off of my BP meds. A few times a day it goes as low as 100/60. Usually the same time my heart is pounding. I'm quite light headed most of the time. I called and asked to be put on a list for an earlier appointment. He's a colleague of my husband and I can't push too hard. I'm having an echocardiogram this week due to shortness of breath on and off. On another message board someone contacted me yesterday saying he has Carcinoid of his ileum with liver mets and his blood tests all came back normal two times. I can see this. I'm wondering is this my story as well? That message board isn't very active and not easy to manage. I need some sort of diagnosis and some HELP. I do have some tenderness over my appendix area. Does this story sound familiar to anyone? I'm so tired of postulating and trying to feel better. I don't remember what good feels like.
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