Any stage 3C colon cancer survivors out there?

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RE: Any stage 3C colon cancer survivors out there?

by anonymous_2018 on Mon Dec 24, 2018 02:45 AM

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On Dec 22, 2018 11:18 PM Sandridge wrote:

On Nov 15, 2018 12:52 AM anonymous_2018 wrote:

My dad was diagnosed with colon cancer on August 3rd and had surgery done a month later to remove a 12 inch piece of his sigmoid. We felt pretty confident at the time that we caught it early since his CEA level was 4.0 before surgery and didnt exhibit any symptoms. Plus, he had been getting screened every 2 years using the FIT stool sample test for th past 10 years and they all came out negative except in 2018. THe biopsy results showed that the cancer had spread to most of his lymphs and was diagnosed as 3C. He started chemo in October (FOLFOX) and will be getting 12 rounds. My oncologist sounds very pessimistic and he had us all in tears. I haven't been able to sleep or eat roperly since and Iv'e been looking up anything we can do for him at home to reduce his chances of recurrence. I hate the fact that we're just at the mercy of chemo and I need reassurance that he can fight this. IF anyone has any advice or has beaten cancer then I would welcome any comments.

Thank you

Hi, in early summer 2011, at age 55 I was diagnosed with polycythemia vera. A couple monts later, I was diagnosed with rectal cancer. I took this seriously, but kept a possitive attitude through it all. I was put on Fu5 chemo and had 20+ rounds of radiation. Operation was Jan.11, 2012. I went thru a few more months of Fu5. I am approaching 7 years of being cancer free. I was very lucky as the PV will blindside cancer with no signs of anemia or fatigue. Encourage your dad to keep a possitive attitude and never give up. I beat it! I hope all is well and you may have a very Merry Christms!  Dave

Thanks for sharing your story Dave! It's very uplifting.

This has been a very tough battle for the entire family. My dad still has 6 more rounds with FU5 chemo and then he'll be monitored every 3 months. It's the relapse that I'm most concerned about because his oncologist gave him a 30-35% chance of a relapse and the fact that his tumor had affected almost all his lymphs is just unsettling. I know that the odds of it being entirely removed are quite good (65-70%) but the though of a recurrence eeps me awake at night. 

I probably ask this of everyone who visits the forum but did you take any supplements or make changes to your lifestyle after your treatment was done? Anything that might have helped prevent a relapse? I am looking into entering my dad into some clinical trial that might benefit him but not quite sure how to go down that path. 

As always, congratulatations on being 7+ years cancer free. Every year is a victory and stories like yours' serves as a great motivation for others. 

Merry Christmas and a Happy New Year. 

RE: Any stage 3C colon cancer survivors out there?

by Sandridge on Tue Dec 25, 2018 01:16 AM

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I took no supplements for the rectal cancer. I do take 1 500mg turkey tail mushroom a day for the PV. It is a natural blood thinner. I am on one 5mg. a day of Ramapril for blood pressure. All my bloods counts are still monitored every 3 months and now I see my oncologist every 6 months. He gets and posts the results of every 3 month visit on the hospitals website. I made no changes to my lifestyle. I fully (glad I re -read, double hit the key to the left of "l" in "fully"!) undersand that with the PV I am a walking stroke with a good probability of developing Leukemia. I don't let these probalities affect my day to day life. I simply keep the positive attitude that everyone on this site is encouraging you and Your dad to keep.

RE: Any stage 3C colon cancer survivors out there?

by anonymous_2018 on Tue Dec 25, 2018 06:20 AM

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Thanks Dave!

Sometimes I think a good, healthy and positive attitude goes a very long way. I try to stay positive mostly but it does get hard at times once the fear creeps in. 

Anyway, thank you for your kind words and advice and I wish you all the bestfor the future!

Merry Christmas and a very happy new year!

RE: Any stage 3C colon cancer survivors out there?

by anonymous_2018 on Thu Jan 10, 2019 10:38 AM

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Hey guys,

Here's wishing everyone a very happy 2019.

My dad is officially past the halfway point of his chemo treatment. He still has 6 more infusions to do but his CEA shot up from 4.2 to 9. Do you know if this is normal during chemothrapy? His oncologist thinks that it's most likely to do with all the stress the body is taking but it's got me worried that it may be something else. 

Has anyone had any experience with this?

RE: Any stage 3C colon cancer survivors out there?

by Sandridge on Thu Jan 10, 2019 10:51 PM

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I am not familiar with any of my results back then. Do you know his White Blood Counts from the latest results? Normal range with WVU Medicine is 3.3 to 9.3. If no one has an answer for you, google "reputible cancer hospitals". You'll be able to e them your questionand it shouldn't take more than a couple business days for a reply. Tell Dad to keep his chin up and keep smiling! I am 7 years cancer free tomorrow, I want him to say the same thing to someone 7 years from now!!

RE: Any stage 3C colon cancer survivors out there?

by anonymous_2018 on Fri Jan 11, 2019 06:07 PM

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On Jan 10, 2019 10:51 PM Sandridge wrote:

I am not familiar with any of my results back then. Do you know his White Blood Counts from the latest results? Normal range with WVU Medicine is 3.3 to 9.3. If no one has an answer for you, google "reputible cancer hospitals". You'll be able to e them your questionand it shouldn't take more than a couple business days for a reply. Tell Dad to keep his chin up and keep smiling! I am 7 years cancer free tomorrow, I want him to say the same thing to someone 7 years from now!!

Thank you,

His neutrophils and blood count are still stable and within the normal range. I am hoping that the tumour hasn't spread because of the number of lymph nodes tested positive in his case. 

Thanks for the advice. I will definately check that out.

Congrats on your 7 years of being cancer free. I look forward to hearing many more inspirational and uplifting stories like yours'.

God bless and Happy New Year 2019.

Any stage 3C colon cancer survivors out there?

by anonymous_2018 on Wed Feb 06, 2019 04:49 PM

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Hi guys,

Hope this finds you in good health.

My dad's oncoogist decided to reduce his chemo dosage due to the side effects getting worse and I wasn't quite sure what to think about this. He said that it shouldn't make a difference to the treament but I don't want to take any chances.

Has anyone had any experience with this?

 

RE: Any stage 3C colon cancer survivors out there?

by Sandridge on Sat Feb 09, 2019 02:11 AM

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I hope someone has an answer for you, you know I don't. I hit another hurdle Tuesday, back home and feeling fine now. Nurses loved my attitude, I had just had a heart attack. A possitive attitude toward life will continue to clear the hurdles ahead! I hope you find the answers you are looking for!  Dave

RE: Any stage 3C colon cancer survivors out there?

by anonymous_2018 on Sat Feb 09, 2019 03:36 AM

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I am very sorry to hear that and wish you a speedy recovery.

I believe that this is something I am continuing to learn in this journey; no one has the answers to this horrible disease, not even doctors. I have tried to direct my oncologists' attention to recent studies and research relating the impacts of dietary and lifestyle changes to cancer outcomes. He just ignored all its findings saying that its all heresay and I shouldn't read further into this, even though a lot of articles have come out of Harvard and Yale medical studies and have further been cited in numerous texts, even ASCO reports.

Whatever his opinion is, I continue to believe that a healthy lifestyle and diet, as well as a positive attitude will cross any hurdle in life and your story, as well as many others' on this forum serve as an inspiration.

As always, thank you and I wish you all the best. 

 

RE: Any stage 3C colon cancer survivors out there?

by Sandridge on Tue Feb 12, 2019 11:23 PM

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Thank YOU!  I feel fine. Please keep us all informed!   Dave

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