Any stage 3C colon cancer survivors out there?

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RE: Any stage 3C colon cancer survivors out there?

by anonymous_2018 on Fri Feb 22, 2019 09:05 PM

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Hey guys,

Hope you're all donig well. 

Just a quick update. We met with my dad's oncologst today and his CT scans were all clear. He said that CEA levels usually go up during chemo so he doesn' ive much credence to that until the treatment is done. He has 2 more cycles left and will be done on March 20th.

Thanks for all your well wishes.

RE: Any stage 3C colon cancer survivors out there?

by Sandridge on Fri Feb 22, 2019 11:44 PM

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Thanks for the update! Both of you stay strong!

RE: Any stage 3C colon cancer survivors out there?

by anonymous_2018 on Mon Mar 18, 2019 05:59 AM

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Hi guys,

Hope all is well with you guys.

So, my dad has his last chemo this week but I noticed that he's lost close to 5 kg since the start of his treatment, from 64.7 to 60.0 over a 6 month period. As far as I can tell, his diet has been pretty stable all throughout and he doesn't really have much issues with his bowel movement. He does exercise but not to the point that he over strains himself. I guess my question is, is it normal to lose weight even though his lifestyle has been relatively unchanged? 

Thanks 

Happy St. Patty's day!

RE: Any stage 3C colon cancer survivors out there?

by Snappy50 on Fri May 17, 2019 02:28 PM

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Hello

Yes, I am a stage 3 colon cancer survivor. 5 years this week. I went through the FOLFOX treatment. 12 treatments once every 2 weeks. Had the neoropathy in hands, feet, wore gloves near refrigerator. No cold foods either. Yes, treatment was hard but I sucked it up and took it all.  For past 5 years I got a colonoscopy every year. Dr. found polyps but all benign. Had CAT scans every year as well. All ok. This past Wednesday I had a colonoscopy and Dr. told me I can wait 2 years now for the next one. I am so glad.  Only bad thing with the chemo is I lost a lot of my hearing and now have to wear hearing aids. That and had cataracts removed from my eyes. Other than those two things. Im good. It wasn't all easy but hey, I survived this long. Good luck!

RE: Any stage 3C colon cancer survivors out there?

by onetoughbird on Sat May 18, 2019 06:39 PM

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I've lost weight both times I had chemo. I had it for 6months with ovarian stage 4 in 2000 and 6 months of it for colon stage 3c in 2018. I tell people it's an effictive weight loss program, but one I wouldn't recommend. 

RE: Any stage 3C colon cancer survivors out there?

by anonymous_2018 on Wed Jul 10, 2019 10:05 AM

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Hi,

It's great to hear you're doing well 5 years in. My dad had his complications as well, the worst being an early onset of pneumonia 2 weeks after his chemo was over. He has his CT scan appointment 2 weeks from now and his colonoscopy in September. I just hope all goes well. His CEA levels are decreasing but they're still relatively high. It was around 4 before his surgery and then went up to 9 during chemo. A motnh after his treatment was over, it went down to 6. I heard it's not a very reliable indicator though. His scans have been normal so far. 

Stay positive and keep up the fight. 

RE: Any stage 3C colon cancer survivors out there?

by anonymous_2018 on Wed Jul 10, 2019 10:10 AM

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Wow, 

You're a trooper to have gone through this twice. And yes, it's a program I wouldn't reccommend to anyone. 

Keep us updated on your progress. 

RE: Any stage 3C colon cancer survivors out there?

by phils1950 on Mon Sep 23, 2019 07:18 PM

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I was diagnosed in Feb. 2015 with stage 4 colon cancer with mets to paralymphatic nodes.  I had 12 rounds of Folfox and now I am cancer free.  Cea  is anywhere from 4 to 6 but oncologist is not worried about that.  I have eliminated soda with the exception of ginger ale for upset stomach.  I am receiving maintenance chemo which consists of Leucovorin and 5 FU. only.  It's not harsh at all and I am only taking a minimal amount of anti nausea meds.  Do everything I want to do and stay as active as  can.  I will be 75 next month.  My oncologist is trying maintenance since it is being tried to prevent cancer from coming back  So far so good for me.  I recommend that if maintenance chemo is recommended jump on the chance to receive it.  Good luck to your father.  Help him keep as active as he can be.


RE: Any stage 3C colon cancer survivors out there?

by phils1950 on Mon Sep 23, 2019 07:23 PM

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On Jul 10, 2019 10:05 AM anonymous_2018 wrote:

Hi,

It's great to hear you're doing well 5 years in. My dad had his complications as well, the worst being an early onset of pneumonia 2 weeks after his chemo was over. He has his CT scan appointment 2 weeks from now and his colonoscopy in September. I just hope all goes well. His CEA levels are decreasing but they're still relatively high. It was around 4 before his surgery and then went up to 9 during chemo. A motnh after his treatment was over, it went down to 6. I heard it's not a very reliable indicator though. His scans have been normal so far. 

Stay positive and keep up the fight. 

CEA level only lets the doctor know that if it is increasing that it should be looked into further for the cause.  It is not ann indicator of cancer but a sign that something could be wrong.  My CEA only went down to 4 once and has been around 5-6 ever since.  All scans and colonoscopies have been clear.  In fact they want me to wait 3 years for my next colonoscopy.  I said I would wait 2 years if all else is normal.

RE: Any stage 3C colon cancer survivors out there?

by anonymous_2018 on Wed Oct 23, 2019 07:33 AM

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Thanks for the info. 
That's also what his pncologist told him an his scans look fine. He also had his colonoscopy done last month and they found a few polyps but nothing else.

Thank you again and do take care.

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