Penis swelling

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Penis swelling

by Methuselah on Thu Nov 15, 2018 09:17 PM

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I was diagnosed with prostate cancer in April of this year.  On May 8th I had radical prostatectomy surgery.  I had both nerve bundles removed with the prostate.  I have under gone 38 radiation treatments in August and September.  I have had two PSA tests and both have come back .03, to which my urologiest says is great.  My question has to do with a problem I am experiencing that my urologist never heard of.  There are times that my penis swells and I experience pain at the base of my penis.  This most often happens when I have bowel movements.  I am not having an erection, just swelling.  Has anyone else experienced this or heard about?

RE: Penis swelling

by genemyers on Thu Nov 22, 2018 06:36 AM

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Have never heard of this and this is not a common side effect.  After I had surgery, I had various phantom pain in various pelvic areas that came and wnet for almost a year after the surgury.  My guess is that this is your tissue healing after the radiation.  Radiation does impact the bowel.  What does your radiation oncologist say about the swelling and pain??

It is possible that if you give it a couple more months that this will self resove by itself.  If not there are various treatments you can try after talking with your radiation ocnologist.  Or you can start discussing them right now if the pain is unbearable.

Best wishes,

Gene

RE: Penis swelling

by chaching on Sat Mar 02, 2019 12:33 PM

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On Nov 15, 2018 9:17 PM Methuselah wrote:

I was diagnosed with prostate cancer in April of this year.  On May 8th I had radical prostatectomy surgery.  I had both nerve bundles removed with the prostate.  I have under gone 38 radiation treatments in August and September.  I have had two PSA tests and both have come back .03, to which my urologiest says is great.  My question has to do with a problem I am experiencing that my urologist never heard of.  There are times that my penis swells and I experience pain at the base of my penis.  This most often happens when I have bowel movements.  I am not having an erection, just swelling.  Has anyone else experienced this or heard about?

I've had similar sugery and radiation and have experienced similar pain at base of penis, urethra, and pelvic area (not a lot of swelling).  My doctor says it this is what he calls "hyperactive" nerves caused by surgery and radiation.  My pain continued intermittent for a long time but I ignored for the most part.  After about 3-years from surgery it reached a pinnacle and it was very uncomfortable.  Dr. says hyperactive nerves(a bundle near the base of the bladder) is not curable but there are some medications that can reduce/minimize. I think your pain may subside or increase but check with your Dr about Toviaz, Oxybutinin, Imiprimine, etc.  I think it is more common than Drs admit.

RE: Penis swelling

by chaching on Sat Mar 02, 2019 12:44 PM

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I don't know if this applies to you but the other posting on this message board may apply to you if you had robotic prostatectomy and surgeon used "clips" to stop bleeding.

See

Robotic Prostatectomy Patients - Beware there's more!!

by DEB57 on Mon Nov 11, 2013 05:42 AM

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