CancerCompass Site Improvements

4 Posts | Page(s): 1 

CancerCompass Site Improvements

by Kelly_B_1 on Tue Dec 04, 2018 03:20 PM

Quote | Reply

For those of you who haven’t met me (virtually or physically), my name is Kelly and I work on the CancerCompass team. 

After 16 years of connecting cancer patients and caregivers with each other to provide support and share knowledge, the CancerCompass team is assessing the community and working to determine how to make improvements for the future. As part of this effort, our team would very much like to know what you would like to see with the new site. In particular, I’d love to have you answer a few key questions in the comments below. 

1. How has CancerCompass helped you through your journey?
2. What do you like most about the CancerCompass experience?
3. What would you like to see different, or see added to CancerCompass? 

Our team is also looking to connect via phone and/or email to a few members to dig a bit deeper. If you’re interested in sharing your insights directly with the team, please comment below or send me a private message. We only need about 30-45 minutes of your time, but your insights will be a huge help. 

Thanks!

RE: CancerCompass Site Improvements

by DizDis on Thu Dec 06, 2018 04:35 PM

Quote | Reply

Through this site, I have met many folks who suffer from the same rare cancer - myelofibrosis - and have learned of different treatments.  I am so grateful.  My only issue is that I wish you had an easier way to access comments about this condition.  Each time I go onto the site, I have to try to recall the steps to take, as there is no direct way to the information.  Please include the term Myelofibrosis in the terms one can search for in the search box on the upper left of the login page.  And thanks for your wonderful site.  Nadya

RE: CancerCompass Site Improvements

by Diamond_David on Thu Dec 06, 2018 07:17 PM

Quote | Reply

People on this site shared better experience than some of my doctors.

I did go to monthly meetings of survivors for head and neck and those folks told em things that I also didn't get from doctors

You may want to consider doing recorded videos shared here where YOU interview specialists and maybe survivors.

Would be helpful

Would like to see some kind of easy acces to archives. i see myself and others retyping the same answers to new people month after month

good job though

RE: CancerCompass Site Improvements

by mbal355 on Fri Dec 07, 2018 02:27 AM

Quote | Reply

1. When I was first diagnosed and going through chemo, I realized that there is a lot of unreliable and scary information about cancer on the internet. I couldn't bear to read anything about cancer until one day when I read an article in the Dr.'s office and saw the link to subscribe to the CancerCompass Newsletter. I found the articles to be very informative and I enjoy reading about cancer research and effective treatments.

2. I like the forum where people can share their experiences, ask for advice, encourage one another and just see that they are not alone in this journey.  I look forward to receiving CancerCompass every week and I have recommended it so many times to people living with cancer or who have family or friends going through it. 

3.  I can't think of anything to add or change.

4 Posts | Page(s): 1 
Subscribe to this message board discussion

Latest Messages

View More

We care about your feedback. Let us know how we can improve your CancerCompass experience.