Poorly Differentiated Neuroendocrine cancer

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Poorly Differentiated Neuroendocrine cancer

by Diana.P on Wed Dec 05, 2018 02:18 PM

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Hi.  My name is Diana, and my husband Bernie was diagnosed with high grade poorly differentiated neuroendocrine cancer stage 4 on Aug 7,2018. He had colon surgery in July. He just finished 4 cycles of carboplatin/epotoside (spelling?) and we were told yesterday that it didn't work. The lymph nodes are everywhere and they are growing fast. He has now been sent home with oral chemo. The oncologist reminded us how aggressive this cancer is. She told us surgery is not an option. Can someone with experience tell me what to expect? Should we be expecting "the end". I'm so scared and confused.

RE: Poorly Differentiated Neuroendocrine cancer

by CRF450R on Thu Dec 06, 2018 11:57 PM

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No wonder you are confused. This website supports the status quo. Not healing from the inside out. I have received e-mails from the controllers of this site and they edit and sensor comments that do not follow their narrative. When you get cancer it is a death sentence and when these clowns get through with you not only will you be broke but have to suffer before you die. This is being touted in all aspects of the media and medical industry. There is an alternative. We breathe poisoned air, drink poisoned water and eat poisoned food. Oh I have an idea. Give me poison so I can heal. Not, do a complete lifestyle change for instant results in the positive. Check out the Gerson Protocol. I did and I am alive today and have baffled my doctor. He admitted that what I did in stage four six months ago till now cancer free is nothing he can prescribe. Therefore there is hope outside the paradyme made for us. I would be happy to elaborate on the measures your husband must follow, but I have talked with people that have said if I have to give up my steak I would rather die. See ya. 

RE: Poorly Differentiated Neuroendocrine cancer

by lparrilla on Fri Dec 07, 2018 01:02 AM

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Hi Diana,

I'm posting what I hope is some useful information. There are still many options for NETs. Right now is actually a time when new treatments for neuroendocrine tumors are gaining momentum. I am a 9-year cancer patient with a rare form of breast cancer, inflammatory. I have done alternative, integrative and targeted conventional - Not chemo.

This link lays out some of the cutting edge treatments for NET. It is conventional, but "targeted" not chemos, which is what I add to my protocols. My quality of life is just as it would be without cancer. The key thing for NET is to get a genomic profiling test. Any major cancer center oncologist can order it from a handful of companies. I have used FoundationOne repeatedly. Caris is also available. They tell you what smart drugs/targeted therapies and immunotherapies are either FDA approved or in trial study. It's very comprehensive. If a drug is not yet approved for your NET type, you can always use it off label by applying for Compassionate Use in your state. Not sure what state you're in. Here's the link https://www.curetoday.com/publications/cure/2017/rare-cancer

In terms of alternative treatments. There are a million. The old standbys are the Gerson therapy, Hoxsey and a clinic in Tijuana I went to that's been around for about 30 years called CIPAG run by Dr. Castillo. All MDs at the clinic. They also have a traditional onc. It didn't help me. But I saw dozens of people getting well. Still well 10, 20 years later when coming back for their annual treatments.

Hope at least some of this is useful.

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