SNUC survivor

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SNUC survivor

by Diana519 on Tue Dec 11, 2018 02:11 PM

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Hello, my name is Diana. I'm 43 and live in Michigan. I was diagnosed in May 2012 with SNUC. I was treated at the University of Michigan and am currently a 6 year survivor. I have reached a point of yearly checkups unless any issues arise. In 2014 I was diagnosed with Multiple sclerosis. I have reminded myself throughout this journey of mine every day to "Keep on, Keeping on! Never give up regardless of the odds stacked against you!"

RE: SNUC survivor

by TIG2016 on Wed Dec 12, 2018 03:48 AM

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Merry Christmas Diana. Congrats on just yearly checks!

All the best-TIG

RE: SNUC survivor

by ljayr on Thu Dec 13, 2018 04:30 PM

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Hi Diana,

Congrats on your 6 year survival from SNUC!  I'm sorry to hear about your MS diagnosis.  Are you in the SNUC family facebook group?  I'd like to hear more about your diagnosis and treatment...but maybe I just need to read your posts further back OR you are already on the group.  My brother was diagnosed with SNUC in August, 2016 and lost his battle February, 2017.  Since it is such a rare, aggressive cancer, it is hard to find info, etc. about it.  His biopsy tissue was sent a few months ago to UofM hospital.  They have started a new SNUC research project again.  One of my first cousins has MS, so now I am wondering if there is some connection between the genetic makeup of SNUC/MS, etc.  Lots of rambling here.  I just get encouraged when I see anything with SNUC/SNUC survivor.  Congrats again!  I am very happy for you.  Merry, merry Christmas! 

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