How often do you get an MRI?

6 Posts | Page(s): 1 

How often do you get an MRI?

by FrankeW on Sun Dec 16, 2018 11:42 PM

Quote | Reply

I am almost at the 5 year mark with my Oligodendroglioma Grade 3 brain cancer with no recurrence.  My surgery was February 18, 2014 which removed 98+% of the tumor on my motor strip.  Was on Temodar for one year.  No radiation.  I haven't had a seizure since surgery.  I am not on any medication.  I take CBD oil.  I have been getting my MRI every 4 months.  Just had one yesterday - all clear.  My NO suggests the next MRI in 5 months.  Just wondering if others out there are going longer between MRI's.  Anyone going once or twice a year or waiting even longer between MRI's?

RE: How often do you get an MRI?

by ToddlerFather on Mon Dec 17, 2018 01:43 AM

Quote | Reply

I think you should go with your NO recommendation. Interval between image exams are very dependent on progress, and you get less exposure by doing less exams.

RE: How often do you get an MRI?

by Qz889l on Fri Dec 21, 2018 01:37 AM

Quote | Reply

If by "exposure"you're referring to xray exposure (CT scan) there is none with MRI, as it uses magnetic fields to produce the image.

RE: How often do you get an MRI?

by AussieMarg on Fri Dec 21, 2018 02:54 AM

Quote | Reply

On Dec 16, 2018 11:42 PM FrankeW wrote:

I am almost at the 5 year mark with my Oligodendroglioma Grade 3 brain cancer with no recurrence.  My surgery was February 18, 2014 which removed 98+% of the tumor on my motor strip.  Was on Temodar for one year.  No radiation.  I haven't had a seizure since surgery.  I am not on any medication.  I take CBD oil.  I have been getting my MRI every 4 months.  Just had one yesterday - all clear.  My NO suggests the next MRI in 5 months.  Just wondering if others out there are going longer between MRI's.  Anyone going once or twice a year or waiting even longer between MRI's?

It's Aussie Marg here. My Anaplastic oligodrendroglioma Stage 3 brain cancer was diognised on the 08 /08/2014 at 2.30 pm .I had emergency surgery two weeks later and my brain cancer was far too large to be removed so a little sliver was taken and sent to pathology which took a long week to complete the results. I chose to not have chemotherapy as I have EXTREME chemical sensitivities which always result in quite severe convulsions. I had fifteen double doses of radiation therapy whilst in a High Care level nursing home. The radiation treatment was at the Princess Alexandra Hospital in Brisbane Queensland Australia ????  It took a few months for my brain ?? to settle down and since then there hasn't been any reoccurance of the cancer. On my last MRI brain scan results in late August this year I was told my the oncologist that now I can go onto six monthly ckeck ups. ?? I had all my treatment at one of the major teaching hospitals in Australia ???? As my local hospital in Toowoomba Queensland didn't even take any notice of the ambulance AND the police reports I absolutely LOATHE that hospital. It took FIVE months for me to be diagnosed and by that time the cancer was the size of ONE quarter of my brain ?? and FAR TOO large to remove any of it except a tiny piece for pathology testing.

I hope you continue to do very well. 

Aussie Marg. ?? 

RE: How often do you get an MRI?

by FrankeW on Fri Dec 21, 2018 09:28 PM

Quote | Reply

Hello Aussie Marg!  I asked about the frequency of MRI's because our insurance has sky-rocketed since my diagnosis so the fewer MRI's, the better as our deductible is $8,000.  Of course, I always want to do what is best.  Sounds like you've been through quite a bit.  My NO has told me that he wants to reserve radiation treatment until it is absolutely necessary.  Chemo seems to be keeping my tumor at bay as I had all the good deletions/mutation for it.  This is certainly a "learn-as-you-go" journey.  I hope we both have continued good health for years to come.  Always praying.  Thanks, Franke

RE: How often do you get an MRI?

by Dodgerblue on Thu Jan 03, 2019 09:46 PM

Quote | Reply
Mine were every three months, but I’ve managed to get them out to 4 months at this point Dodger
6 Posts | Page(s): 1 
Subscribe to this message board discussion

Latest Messages

View More

We care about your feedback. Let us know how we can improve your CancerCompass experience.