How often do you get an MRI?

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How often do you get an MRI?

by FrankeW on Sun Dec 16, 2018 11:42 PM

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I am almost at the 5 year mark with my Oligodendroglioma Grade 3 brain cancer with no recurrence.  My surgery was February 18, 2014 which removed 98+% of the tumor on my motor strip.  Was on Temodar for one year.  No radiation.  I haven't had a seizure since surgery.  I am not on any medication.  I take CBD oil.  I have been getting my MRI every 4 months.  Just had one yesterday - all clear.  My NO suggests the next MRI in 5 months.  Just wondering if others out there are going longer between MRI's.  Anyone going once or twice a year or waiting even longer between MRI's?

RE: How often do you get an MRI?

by ToddlerFather on Mon Dec 17, 2018 01:43 AM

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I think you should go with your NO recommendation. Interval between image exams are very dependent on progress, and you get less exposure by doing less exams.

RE: How often do you get an MRI?

by Qz889l on Fri Dec 21, 2018 01:37 AM

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If by "exposure"you're referring to xray exposure (CT scan) there is none with MRI, as it uses magnetic fields to produce the image.

RE: How often do you get an MRI?

by AussieMarg on Fri Dec 21, 2018 02:54 AM

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On Dec 16, 2018 11:42 PM FrankeW wrote:

I am almost at the 5 year mark with my Oligodendroglioma Grade 3 brain cancer with no recurrence.  My surgery was February 18, 2014 which removed 98+% of the tumor on my motor strip.  Was on Temodar for one year.  No radiation.  I haven't had a seizure since surgery.  I am not on any medication.  I take CBD oil.  I have been getting my MRI every 4 months.  Just had one yesterday - all clear.  My NO suggests the next MRI in 5 months.  Just wondering if others out there are going longer between MRI's.  Anyone going once or twice a year or waiting even longer between MRI's?

It's Aussie Marg here. My Anaplastic oligodrendroglioma Stage 3 brain cancer was diognised on the 08 /08/2014 at 2.30 pm .I had emergency surgery two weeks later and my brain cancer was far too large to be removed so a little sliver was taken and sent to pathology which took a long week to complete the results. I chose to not have chemotherapy as I have EXTREME chemical sensitivities which always result in quite severe convulsions. I had fifteen double doses of radiation therapy whilst in a High Care level nursing home. The radiation treatment was at the Princess Alexandra Hospital in Brisbane Queensland Australia ????  It took a few months for my brain ?? to settle down and since then there hasn't been any reoccurance of the cancer. On my last MRI brain scan results in late August this year I was told my the oncologist that now I can go onto six monthly ckeck ups. ?? I had all my treatment at one of the major teaching hospitals in Australia ???? As my local hospital in Toowoomba Queensland didn't even take any notice of the ambulance AND the police reports I absolutely LOATHE that hospital. It took FIVE months for me to be diagnosed and by that time the cancer was the size of ONE quarter of my brain ?? and FAR TOO large to remove any of it except a tiny piece for pathology testing.

I hope you continue to do very well. 

Aussie Marg. ?? 

RE: How often do you get an MRI?

by FrankeW on Fri Dec 21, 2018 09:28 PM

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Hello Aussie Marg!  I asked about the frequency of MRI's because our insurance has sky-rocketed since my diagnosis so the fewer MRI's, the better as our deductible is $8,000.  Of course, I always want to do what is best.  Sounds like you've been through quite a bit.  My NO has told me that he wants to reserve radiation treatment until it is absolutely necessary.  Chemo seems to be keeping my tumor at bay as I had all the good deletions/mutation for it.  This is certainly a "learn-as-you-go" journey.  I hope we both have continued good health for years to come.  Always praying.  Thanks, Franke

RE: How often do you get an MRI?

by Dodgerblue on Thu Jan 03, 2019 09:46 PM

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Mine were every three months, but I’ve managed to get them out to 4 months at this point Dodger

RE: How often do you get an MRI?

by DianneMF on Fri Jul 19, 2019 02:20 AM

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My 28 year old daughter was getting her MRI's every 4 months in NJ. She moved last year to LA & is now seen at UCLA. Last MRI was again stable - She did not have a complete resection She has AA grade 2/3 IDH1 positive... 2 craniotomies, radiation/Temodar & follow up Temodar. . Her neuro oncologist suggested she go to one time per year, but she requested every 6 months to remain on top of things. She is at year 5 of her diagnosis. My daughter is living her life every day in the most positive, joy filled, adventurous way possible She works full time, travels, and has become a Reiki practitioner. She is a vegan, exercises & does yoga/meditation daily K. does take CBD oil She is thriving not merely surviving. I pray for that for everyone reading this post. Believe me, this journey has taken us places emotionally that we never thought we would experience. We still have moments of sadness & sheer terror. But have come to a place of trying to just live in the moment. And try to remember that every day is a precious gift.

RE: How often do you get an MRI?

by FrankeW on Sat Jul 20, 2019 07:35 PM

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My most recent MRI was just before Memorial Day and was once again clear.  Whew!  My neuro oncologist has decided that I can now go every six months.  I am thrilled.  I feel so lucky and more like a normal person now that I have more time between MRI's.  Still on CBD which helps with my anxiety.  Doing great.  I totally agree with you that every day is such a precious gift.  

RE: How often do you get an MRI?

by rward on Sun Aug 04, 2019 04:03 AM

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My wife gets one every six months now. Her oncologist was suggesting yearly but that seemed too drastic a jump from three months. She was diagnosed four and a half years ago.

RE: How often do you get an MRI?

by chalmj on Mon Aug 05, 2019 06:29 PM

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I am a head and neck cancer patient that gets an MRI every 3 months. I googled "gadolinium" which is the heavy metal contrast dye they inject for an MRI and I found a study showed that gadolinium accumulates in the brain and does not leave the body.

Chuck Noris is suing for millions as his wife was on periodic MRI's with contrast and is now experiencing brain issues. 

I do not get the contrast with my MRI's for this reason. Just google gadolinium and you will be shocked at what you find. 

John 

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