Pancreatic cancer next step?

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Pancreatic cancer next step?

by Igalku on Mon Dec 17, 2018 01:13 PM

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Hi all, My mom is 71, diagnosed with pancreatic cancer stage IV. Metastasis to the liver and lungs. Went through Folfirinox, radiotherapy, Gemzar+Abrexane. Nothing seems to help. Physically she is in a good condition, functioning, and no major side affects. What’s next for us ? We live in Israel but she is able to travel if needed. Thanks a lot! Igal

RE: Pancreatic cancer next step?

by WYLife2live on Thu Dec 20, 2018 10:05 PM

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Igal,

Maybe time to look at some alternative therapies?  I was diagnosed with panc cancer in Sept of last year however mine did respond to chemo and radiation.  My tumor is non-resectable and I did not want to continue with chemo indefinitly so I am doing an alternative therapy now that keeps the tumor from growing.  It is an herbal tonic and I started with it 6 weeks ago.  That is just one of many alternative therapies out there that may help you!!

RE: Pancreatic cancer next step?

by Igalku on Thu Dec 20, 2018 10:58 PM

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Hi there ! Thanks for replying, happy to hear treatments work for you ! Can you tell more about your therapy ? Would love to get details ! Thanks Igal

RE: Pancreatic cancer next step?

by CELINEngss on Fri Dec 21, 2018 03:01 AM

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Both my mum and eldest sis passed away of tail pancreatic cancer - adenocarcinoma.  The most common pancreatic cancer.  Both of them were diagnosed at stage 4 and had non resectable cancer.  Both tried chemo and various alternative medicines. Nothing worked. So, dun waste time on alternative medicine. Mum passed away 6 months after diagnosis and sis passed away 11 months after diagnosis.  

As of date, there is no medical cure for stage 4 mets pancreatic cancer.  

RE: Pancreatic cancer next step?

by Igalku on Fri Dec 21, 2018 08:02 AM

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Yeah, chances of trail are statistically 100% fail I was told ...

RE: Pancreatic cancer next step?

by PhilipJax on Fri Dec 21, 2018 07:57 PM

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Where To Find The Most Info
Go https://pancreatic.altervista.org/ " target="_blank" rel="nofollow">tohttps://pancreatic.altervista.org/

Everyone:
          You would be wise to shift to the thread at
https://www.cancercompass.com/message-board/message/all,6312
          Study the past 2 years of posts and STUDY the website and Decision Guide found at
https://pancreatic.altervista.org/
         PhilipJax

RE: Pancreatic cancer next step?

by LupeCruz on Fri Jan 04, 2019 08:09 PM

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I posted the following this morning.

Please note that my husband's father and grandfather passed away in their 30s from the same disease.

Hello everyone,

I'm here to spread the word that it is possible to go from pancreatic cancer stage iv to remission/cancer free.  I've posted on this site before and am a real person with a real story.  I say this because some of you may have doubt.  For those of you who are hanging on to an ounce of hope.  This message is for you. 

On May 2015, my husband was diagnosed with pancreatic cancer iv (spread to liver) and was given 6 months.  He started chemo immediately (oxaliplatini, irinotecan, fluorouracil, and leucovorin).  When the tumor shrunk enough where it was not detectable on a CT scan he stopped the chemo (against doctor’s advice), and continued again when it reappeared.  All while eating well, drinking specialized teas and trying really hard to stay positive even though most of the news we were hearing with respect to this disease was negative.

The doctors were amazed that the cancer wasn’t acting as predicted – for a stretch of 11 months the tumor marker numbers were normal and no sign of tumor on CT scan during rest time (scan did show lesions on the liver). His tumor marker when he was first diagnosed was off the charts >10,000. On October 23, 2018, the tumor board recommended surgery, only if the disease had not spread to any other organs within close proximity. He had a laparoscopy early December and on December 17 my husband underwent surgery to remove the tail of the pancreas, the spleen and 21 lymph nodes. On January 3, 2019 we were told all lymph nodes came back negative, biopsies (5) of the liver during the laparoscopy were also negative. He is recovering and doing well. 

I wanted to hold off in posting this information until more time lapsed, but I think by posting this info now it would give some of you hope during this difficult time. We will continue to stay the course. Believe and have Faith.

RE: Pancreatic cancer next step?

by Jcancom on Sat Jan 05, 2019 04:03 PM

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Igal,

Go to time point 22:10 in the below video. This clinic used a metabolic protocol in advanced pancreactic cancer patients and demonstrated some level of success. Pancreatic cancer is known to almost always express KRAS which results in an increase in glucose intake. A metabolic strategy would thus be reasonable.

https://www.youtube.com/watch?v=tL8rQ3aNvhs

The below patient has had a very very large response to a variant of the above metabolic treatment plan. This patient, though, is still responsive to chemo given in low doses.

https://www.cancertreatmentsresearch.com/case-report-stage-i

Best Wishes to you.

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