Wife has Stage IV Colon Cancer Metasiszed in Liver now with back pain

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Wife has Stage IV Colon Cancer Metasiszed in Liver now with back pain

by Goose83 on Mon Jan 07, 2019 02:48 PM

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My 35 year old wife was diagnosed with Stage IV Colon Cancer with it Metasized in her liver on 1/2/19. The tumor on her liver is 9cm long. The tumor in her colon is 2cm. Over the last week she has had some pretty bad lower back pain. Dr. is managing this pain with hyrdacodon and Tylenol. She has a PET scan today, final follow up with Dr Tuesday then a consult in Pittsburgh for treatment options.

I was wondering if the back pain means that it is possible that it has spread to her bones or kidneys or just a pain from the liver.

at 35 we never thought we would be dealing with this. Any advice or help would be appreciated.

RE: Wife has Stage IV Colon Cancer Metasiszed in Liver now with back pain

by lymaris1207 on Mon Jan 07, 2019 07:42 PM

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I  am very sorry to hear about your wife, my dad passed away on 11/27/18 of bile duct cancer 3 months after his diagnosis. I did learned so much about this affault disease, and my first advice will be to cut all sugar!!! Not the natural ones found on fruits but the added once. NO Sugar, its the cancer food!!!! It's a hard road ahead but I hope she gets better. I will pray for her. Tell her to also eat fruits in the morning on an empty stomach this helps a lot with digestion and less pain from her liver. My dad did had a lot of pain too in his back but it was from the liver shouting the pain everywhere! Gluck!!

RE: Wife has Stage IV Colon Cancer Metasiszed in Liver now with back pain

by Ronmor on Thu Jan 10, 2019 05:36 PM

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On Jan 07, 2019 2:48 PM Goose83 wrote:

My 35 year old wife was diagnosed with Stage IV Colon Cancer with it Metasized in her liver on 1/2/19. The tumor on her liver is 9cm long. The tumor in her colon is 2cm. Over the last week she has had some pretty bad lower back pain. Dr. is managing this pain with hyrdacodon and Tylenol. She has a PET scan today, final follow up with Dr Tuesday then a consult in Pittsburgh for treatment options.

I was wondering if the back pain means that it is possible that it has spread to her bones or kidneys or just a pain from the liver.

at 35 we never thought we would be dealing with this. Any advice or help would be appreciated.

I am living in the UK and was diagnosed in March 2015 very similar to your wife. My problem was the liver mets were around the vena cava in the liver so inoperable I was told palliative care only. 

I saw a liver consultant in another hospital who said if you can reduce the tumour around the vena cava  and give him some operating space he would do so. I had 6 cycles of brutal chemotherapy and the tumour reduced enough to operate.

The operation took place in the October 2015 and was successful, it was followed in the February 2016 with the bowel operation in which they removed my large bowel taking the primary tumour with it and leaving me with a permanent ileostomy

This was followed up with another 8 cycles of chemo and regular scans

Twice tumours have returned on the liver but been ablated, a simple overnight hospital stay and operation procedure.

Almost 4 years from my first diagnosis I have 5 clear scans since the last recurrence.

I am not daft enough to think the cancer will not return but what I am giving you is a case study and hope. Have faith and be positive. Like me people immediately think this is the end but it does not have to be, a positive state of mind will certainly help.

Even though mine was grade 4 and in at least a third of the lymph glands they removed the chemo and operations have kept it at bay thus far. So be proactive and ask the questions of all the options

My diet has certainly beome more healthy too, and I have added supplements like turmeric/piperine(latter to help absorption) on a daily basis, not sure if I can prove it helps but it helps me to think it does.

I wish your wife a successful outcome but their will be some tough times along the way, that I am sure yourself, family and friends and not least health professional will help you through

Sending good wishes

Ron

RE: Wife has Stage IV Colon Cancer Metasiszed in Liver now with back pain

by Goose83 on Thu Jan 10, 2019 07:37 PM

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On Jan 10, 2019 5:36 PM Ronmor wrote:

On Jan 07, 2019 2:48 PM Goose83 wrote:

My 35 year old wife was diagnosed with Stage IV Colon Cancer with it Metasized in her liver on 1/2/19. The tumor on her liver is 9cm long. The tumor in her colon is 2cm. Over the last week she has had some pretty bad lower back pain. Dr. is managing this pain with hyrdacodon and Tylenol. She has a PET scan today, final follow up with Dr Tuesday then a consult in Pittsburgh for treatment options.

I was wondering if the back pain means that it is possible that it has spread to her bones or kidneys or just a pain from the liver.

at 35 we never thought we would be dealing with this. Any advice or help would be appreciated.

I am living in the UK and was diagnosed in March 2015 very similar to your wife. My problem was the liver mets were around the vena cava in the liver so inoperable I was told palliative care only. 

I saw a liver consultant in another hospital who said if you can reduce the tumour around the vena cava  and give him some operating space he would do so. I had 6 cycles of brutal chemotherapy and the tumour reduced enough to operate.

The operation took place in the October 2015 and was successful, it was followed in the February 2016 with the bowel operation in which they removed my large bowel taking the primary tumour with it and leaving me with a permanent ileostomy

This was followed up with another 8 cycles of chemo and regular scans

Twice tumours have returned on the liver but been ablated, a simple overnight hospital stay and operation procedure.

Almost 4 years from my first diagnosis I have 5 clear scans since the last recurrence.

I am not daft enough to think the cancer will not return but what I am giving you is a case study and hope. Have faith and be positive. Like me people immediately think this is the end but it does not have to be, a positive state of mind will certainly help.

Even though mine was grade 4 and in at least a third of the lymph glands they removed the chemo and operations have kept it at bay thus far. So be proactive and ask the questions of all the options

My diet has certainly beome more healthy too, and I have added supplements like turmeric/piperine(latter to help absorption) on a daily basis, not sure if I can prove it helps but it helps me to think it does.

I wish your wife a successful outcome but their will be some tough times along the way, that I am sure yourself, family and friends and not least health professional will help you through

Sending good wishes

Ron

Thank you so much Ronmor! We are currently seeking treatment at UPMC in Pittsburgh, PA one of the top hospitals in the country, also we have one of the top oncologist as well. My wife gets her port in place tomorrow (Friday) and then starts her first treatment on Tuesday. They want to shrink the tumors (colon tumor and liver tumor) before opting for any surgery. She will be getting chemo every other Tuesday for 6 months. Hoping it responds well to the Chemo and we have a fighting chance. Her attitude has been amazing and I pull off of her strength sometimes. She is amazing and know she can kick this cancers ass. Thank you for your words and the hope that you give us!

RE: Wife has Stage IV Colon Cancer Metasiszed in Liver now with back pain

by rdsd221 on Thu Jan 10, 2019 09:41 PM

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I was diagnosed with mets to liver 11/2014. Her back pain could definitely be from her liver. Shoulder pain is also known to be referred from liver. I would reconsider taking any Tylenol because it is very hard on the liver. It can accumulate and not be processed with a compromised liver. Best wishes.

RE: Wife has Stage IV Colon Cancer Metasiszed in Liver now with back pain

by phils1950 on Thu Jan 10, 2019 11:26 PM

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Hi Raymond,  I was diagnosed in Jan 2015 with stage 4 colon cancer with mets to the para spinal lymph nodes.  Mine was found because I had pain in my back.  The original diagnosis was stage 3 because only 1 lymph node was involved.  Aftwter 6 rounds of chemo the PET scan showed all was clear.  I finished the original 12 rounds of chemo  and was all clear.  My oncologist is very aggressive about treating this disease and I am receiving maintenance chemo until whenever I have decided enough is enough.  I am 3 years into remission and feeling and looking good.  The maintenance chemo is very tolerable just a nuisance.  One half day every every other week and then on my merry way.  Stay positive.  The original 12 rounds can be rough.  Everyone tolerates chemo differently.  Good luck, prayers and hugs your way.  I am from the pittsburgh area but live in the Philly area now.  I know UPM

C very well.  I worked at Children's Hospital for a couple of years way back in the late 60's.

RE: Wife has Stage IV Colon Cancer Metasiszed in Liver now with back pain

by duygu on Fri Jan 11, 2019 08:05 PM

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Please Search for Ann Cameron s Story on colon Cancer and also Study the site of chrisbeatcancer.com

RE: Wife has Stage IV Colon Cancer Metasiszed in Liver now with back pain

by Sunshine73 on Tue Feb 05, 2019 07:31 PM

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Hi there. I'm a newbie to this site, recently commenced on Irinotecan for Stage IV Colon Cancer now Liver Mets. Jan 2019. Life sucks!!!! Was treated successfully in 2016 with Surgery and Poxy Oxy. 1 year post Chemo scan was all clear last March 2018, but my lil friends decided to rock up and take residence on my liver. Bit of a bugger really as my Oncolgy Doctor also says Surgery isn't an option. So what's the deal with sugar?? Yes I'm an Insulin controlled Type 2 Diabetic, but I appear to be not only consuming but craveing sugary foods, this I find very odd as I've never been a sweet toothed guy.?? Welshboy 73.

RE: Wife has Stage IV Colon Cancer Metasiszed in Liver now with back pain

by ToddlerFather on Tue Feb 05, 2019 11:35 PM

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While different primary cancer (thyroid) and mets site (lungs in my case), LDN + High dosage Vitamin D has been effective in reducing my mets. Without breaking any of the recommended protocols for each case mentioned in the thread, perhaps adding LDN could help. More info on:
https://www.ldnresearchtrust.org/
http://www.lowdosenaltrexone.org/

As for sugar, I'm also diabetic, do not need insulin, but in my case sutting sugar radically didn't help a bit. But thyroid cancer is very slow progressing; perhaps this could help colon cancer, I don't know. But considering what the liver does for a living, I find it hard to not let sugar in it... perhaps most other organs can benefit from a sugar-restrained protocol. 

That said, chemo takes a heavy toll on one's health, so anything one can do to get better will decrease chances of needing to stop chemo. 

RE: Wife has Stage IV Colon Cancer Metasiszed in Liver now with back pain

by redintheface on Thu Feb 14, 2019 04:50 PM

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My condolences on the diagnosis of cancer for your wife. I get the cancercompass newsletter because I use the message board for skin cancer. I began chemotherapy again today, but it's nothing like what your wife and others will go through. Over to the side of the news letter I read about colon cancer questions. As I read questions I wonder do I say what I know from my brother in laws journey or do I keep quiet. Knowledge is power and with cancer you need lots of it. My brother in law was diagnosed with colon cancer 9 years ago. He is 66 years old now. He's always worked out, eaten well, and an avid runner. He had surgery to remove it, had the bag, then it was removed, as well as chemotherapy. He rides horses in competition corraling cows and has won many belt buckets for his skill. One time he fell off the horse and hurt his back. He kind of blew it off and moved on, but the pain got worse and worse. Finally he went to the doctor for a MRI and a mass was found. Long story short, they did a PET scan and the cancer has metatasized to his back in several areas and both lungs. Nine years ago he has colon cancer.  His new cancer doctors were surprised he'd gone 9 years as they said it usually  reappears 5 years somewhere else usually the spine, lungs, and liver. His first cancer doctor never told him this. It's said some doctors have hope just like their patients do, that it won't spread. Doctors don't know everything and they don't always tell everything as they don't want a patient to worry or give up hope. Upon this diagnosis he was told he had 2-5 years to live, but things quickly change. They started surgery on his back ro remove the mass, but being it was so close to the nerve they only got part of it not wanting to rist paralysys.  Also they wanted to remove some of the infected bones, but they disintegrated as soon as they tried. They had to put some kind of a "balloon" in place of the bone. He has been told absolutely do no bend over as the balloon can pop and cause instant paralysis. They started chemotherapy for all three locations (back and both lungs) but due to the fact he's already ungone chemotherapy once before it's making him sicker than the first time around and he can't do it. Something else they don't tell you, you get much sicker once you've had it before. Doctors don't tell you everything because if they did no one would do it. It's only been about 6-7 months since diagnosis, now they're telling him he has about 2 to 3 months to live. I'm not positive, but I think his first cancer, colon cancer was stage 3 or 4. With all the pain medications he's taking he have been unable to have a bowel movement for 8 days. Brother in law thinks that's why he can't keep food down, he's all blocked up. He was hospitalized for that and now he's out. They've done a brain scan, for what reason I don't know, but the results will be in soon. My sister is handicapped and not doing well so her daughters are there (one from out of state) taking care of both of them. I'm on the opposite coast and waiting for my turn to come and give care. This is only one story and everyone's is similar, but different and so will the results.

Cancer is an insidious disease and you've got to fight it and fight it hard all the way. 

My best wishes for your wife and everyone else whose lives have been affect by this disease.

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