Extreme coccyx pain post Robotic Prostatectomy

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Extreme coccyx pain post Robotic Prostatectomy

by Bbu2018 on Tue Jan 08, 2019 01:47 PM

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Post a Robotic Prostatectomy in 2015, (PSA 10.4) my uncle who is now 82 has been suffering from extreme pain in the coccyx region. Currently the status is that he can neither sit nor rest in a sleeping posture for more than 20 minutes because of the pain. His medical treatments have spanned painkillers to the latest of an epidural. The pain seems to worsen . His latest PSA levels are 0.30 and hence the oncologist has ruled out a recurrence. Has anyone else experienced something similar? The pain management has been a failure. He has consulted the range of doctors - urologist, Orthopedician, Neurologist, Oncologist ... apparently after 3 years of medication , painkillers and some physiotherapy last month now his consultants have suggested maybe it is a nerve entanglement during surgery. Any help or guidance will be greatly appreciated. What are the possibilities for managing pain and normalizing life for him at this stage?

RE: Extreme coccyx pain post Robotic Prostatectomy

by tomatoman on Mon Jan 14, 2019 02:04 AM

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I had pain at the very tip of my tailbone (cocyx) for awhile back a few years ago.  The pain seemed to go away when I ate lycopenes, for a few hours.  I gradually eliminated the pain by taking lycopenes frequently in addition to lupron therapy.  Although the pain never showed on a scan, I am pretty sure it came from metasticized prostate cancer, and I believe it was caused by the biopsy I had a few years prior to that.  It was accompanied with a similar pain in my rectum which I also attributed to the biopsy.  I could be wrong, so don't take my word for it, but it is what I believe happened. In my case I did not have surgery but I had radiation therapy, so my metastisis was not very likely caused by the radiation therapy, but more likely, from the biopsy.  The pain started in late 2015, ended after about a month after starting a lupron.  At the time I felt mild pain, not really very significant.  It seemed like the lycopenes caused a tumor or tumors at that location to stop growing temporarily, and therefore the pain disappeared for a short time.  In your uncle's case it might be the same thing but a larger tumor or pc growth.  However, in my case my PSA elevated to about 8 at about the same time.

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