Bone/nerve pain

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Bone/nerve pain

by Fulloflovemom on Wed Jan 16, 2019 01:35 AM

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Did anyone have severe nerve/bone pain on one side of their body related to thyroid cancer? I have papillary thyroid cancer and have severe pain and weakness on my right side of body. Thyroid levels are normal. Could the pain be caused by the cancer? It started about 8 months prior to my diagnosis. 

RE: Bone/nerve pain

by butterfly501 on Wed Jan 16, 2019 02:33 AM

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On Jan 16, 2019 1:35 AM Fulloflovemom wrote:

Did anyone have severe nerve/bone pain on one side of their body related to thyroid cancer? I have papillary thyroid cancer and have severe pain and weakness on my right side of body. Thyroid levels are normal. Could the pain be caused by the cancer? It started about 8 months prior to my diagnosis. 

Was your thyroid cancer treated?

RE: Bone/nerve pain

by Fulloflovemom on Wed Jan 16, 2019 02:34 AM

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They removed half my thyroid and I later found out it was cancerous. My specialist is out of the country so I am waiting for them to get back to see if I need any other treatment. We removed half as the fna was not conclusive of cancer. 

RE: Bone/nerve pain

by butterfly501 on Wed Jan 16, 2019 05:48 PM

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On Jan 16, 2019 2:34 AM Fulloflovemom wrote:

They removed half my thyroid and I later found out it was cancerous. My specialist is out of the country so I am waiting for them to get back to see if I need any other treatment. We removed half as the fna was not conclusive of cancer. 

What was the finding from the removed lobe?

RE: Bone/nerve pain

by Fulloflovemom on Wed Jan 16, 2019 05:50 PM

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Papillary thyroid cancer . They did not take any lymph nodes or other tissue since we thought it would not be cancerous. I will have to wait til my doctor is back in the country for more info. 

RE: Bone/nerve pain

by butterfly501 on Wed Jan 16, 2019 10:13 PM

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On Jan 16, 2019 5:50 PM Fulloflovemom wrote:

Papillary thyroid cancer . They did not take any lymph nodes or other tissue since we thought it would not be cancerous. I will have to wait til my doctor is back in the country for more info. 

It must have been small if they left the other lobe in.  Definitely something to speak with your dr. about.

Good luck!

RE: Bone/nerve pain

by Fulloflovemom on Thu Jan 17, 2019 12:18 AM

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Thanks! It was 3cm so not big. The surgeon did not even think it looked cancerous ! Surprise lol 

RE: Bone/nerve pain

by butterfly501 on Thu Jan 17, 2019 02:51 AM

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On Jan 17, 2019 12:18 AM Fulloflovemom wrote:

Thanks! It was 3cm so not big. The surgeon did not even think it looked cancerous ! Surprise lol 

3 cm?  Or 3 mm?  Because 3 cm is pretty big and the other lobe should have been removed; possibly you should have undergone an I-131 (radioactive iodine) ablation.

Definitely something to look into.

RE: Bone/nerve pain

by Fulloflovemom on Thu Jan 17, 2019 03:41 AM

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On Jan 17, 2019 2:51 AM butterfly501 wrote:

On Jan 17, 2019 12:18 AM Fulloflovemom wrote:

Thanks! It was 3cm so not big. The surgeon did not even think it looked cancerous ! Surprise lol 

3 cm?  Or 3 mm?  Because 3 cm is pretty big and the other lobe should have been removed; possibly you should have undergone an I-131 (radioactive iodine) ablation.

Definitely something to look into.

3 cm. I will definitely bring up everything you have suggested with my doctor. Thank you! 

RE: Bone/nerve pain

by BiomedEE on Thu Jan 17, 2019 03:54 PM

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What are your thyroid hormone levels, and thyroid hormones are Free t4, Free T3, and Reverse T3. TSH is a pituitary hormone and is not a direct measure of thyroid hormones. SOmetimes when the Free T4 is too high for an individual it can cause lots of pain, I get that when it goes up but is still in the so called range.

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