Tonsil cancer

Danny,

Many of us with Tonsil cancer have no symptoms before being diagnosed with cancer except an enlarged lymph node.

It is not cancer until they say it is cancer.

good luck and I hope you do not need to join this exclusive club.

Arman

Danny,

How are things going for you?  Have you seen an ENT yet?

The only symptom I had was a swollen lymph node in my neck.  Sometimes more symptoms mean less disease (meaning not cancer).

Susan

Hi guys sorry for my late response. 

I'm stuck without answers. I feel so sick,  now I feel like my neck is on fire all the time, eating is even more difficult.  I don't know what else to do  . Im totally lost.

On Jul 09, 2019 10:49 AM Danny43 wrote:

Hi guys sorry for my late response. 

I'm stuck without answers. I feel so sick,  now I feel like my neck is on fire all the time, eating is even more difficult.  I don't know what else to do  . Im totally lost.

I don’t know where you are located. I’m guessing somewhere with national health care. But wherever you are you need to go see someone about this. If you are in the USA contact American Cancer Society for guidance. Good Luck.

On Jul 09, 2019 10:49 AM Danny43 wrote:

Hi guys sorry for my late response. 

I'm stuck without answers. I feel so sick,  now I feel like my neck is on fire all the time, eating is even more difficult.  I don't know what else to do  . Im totally lost.

We are so very sorry to hear about this challenge and would like to provide some guidance to you in this time of need.   I would like to learn more about what testing you have had so far and how we can help. One of our experienced Patient Advocates is available now to assist you at 847-342-6493. Please feel free to reach out anytime.

Looking forward to helping you,
Karen Rivera
Cancer Treatment Centers of America
Sr. Patient Advocate

I'm just 30 minutes away from Pittsburgh.  Sorry for my short response I'm at work right now. 

On Jul 09, 2019 2:09 PM Danny43 wrote:

I'm just 30 minutes away from Pittsburgh.  Sorry for my short response I'm at work right now. 

Ok thanks for clearing that up. You should have several options. Even if you don’t have healthcare insurance you still need to find out what’s going on. Keep us posted. Creek

Danny, I’m in a similar situation. I for some reason cannot create a new thread. I had a weird tight/tingly/popping sensation in my neck and then noticed my right tonsil was larger than the left (not inflamed). Saw ENT. She agreed, scoped but said it looked healthy. Ordered CT. While waiting for my CT (two weeks), I discovered 2 palpable lymph nodes bilaterally. They have to sort of be searched for, they aren’t visible in my neck or palpable without putting fingers up under jaw. CT confirmed several prominent nodes, largest 9mm. Deemed to be reactive and my tonsils were deemed to be mildly symmetrically enlarged. ENt explained sometimes tonsils hide a bit so they appear different sizes on visual examination. I’ve had mild ear pain on right wide. Neck still feels funny but I never stop prodding it so who knows. I feel these little twinges or twitches sometimes too, sort of in the area of the nodes. I found another small node on right side. Smaller than the ones I have bilaterally. I am seeing the ENT Monday and I suspect she is going to tell me my CT was normal. I have been on antibiotics for 5 weeks with no changes. I’m so worried that I’ve had the unfortunate luck to have ENTs who are less experience with occult tumors. No one has said why I have these nodes. No one has explored the cause of my ear pain other than to determine no infection is present. TMD was also suggested but no advice on how to alleviate my symptoms. I’ve seen 3 ENTs now. Two are in the same practice, one was a different practice. I’m going to ask on Monday why a FNAB isn’t recommended given that the antibiotics aren’t reducing the nodes and I haven’t had any acute illness. ENT #3 told me nodes smaller than 1.5 are considered normal. Ugh.

On Jul 10, 2019 10:43 PM Coopercoop wrote:

Danny, I’m in a similar situation. I for some reason cannot create a new thread. I had a weird tight/tingly/popping sensation in my neck and then noticed my right tonsil was larger than the left (not inflamed). Saw ENT. She agreed, scoped but said it looked healthy. Ordered CT. While waiting for my CT (two weeks), I discovered 2 palpable lymph nodes bilaterally. They have to sort of be searched for, they aren’t visible in my neck or palpable without putting fingers up under jaw. CT confirmed several prominent nodes, largest 9mm. Deemed to be reactive and my tonsils were deemed to be mildly symmetrically enlarged. ENt explained sometimes tonsils hide a bit so they appear different sizes on visual examination. I’ve had mild ear pain on right wide. Neck still feels funny but I never stop prodding it so who knows. I feel these little twinges or twitches sometimes too, sort of in the area of the nodes. I found another small node on right side. Smaller than the ones I have bilaterally. I am seeing the ENT Monday and I suspect she is going to tell me my CT was normal. I have been on antibiotics for 5 weeks with no changes. I’m so worried that I’ve had the unfortunate luck to have ENTs who are less experience with occult tumors. No one has said why I have these nodes. No one has explored the cause of my ear pain other than to determine no infection is present. TMD was also suggested but no advice on how to alleviate my symptoms. I’ve seen 3 ENTs now. Two are in the same practice, one was a different practice. I’m going to ask on Monday why a FNAB isn’t recommended given that the antibiotics aren’t reducing the nodes and I haven’t had any acute illness. ENT #3 told me nodes smaller than 1.5 are considered normal. Ugh.

Updated 

Yesterday,  I had an endoscopy, the doctor found that I have an ulcer on base of my tongue.  She said there's full of tissue on base of my tongue.  Now she's going to refer me to ENT doctor.  Does anyone know what she means by that?

Thank you 

Danny,

I'd guess that your doctor means that something looks a bit strange to her, but she is not prepared to diagnoe is and wants you to get an expert opinion, which the ENT will provide.

Best of luck to you.

Susan