Mom feeling sad and scared

5 Posts | Page(s): 1 

Mom feeling sad and scared

by BTMom on Wed Feb 06, 2019 10:21 PM

Quote | Reply

My son was diagnosed with a very large diffuse astrocytoma almost three years ago at age 16.  I try so hard to be strong for him but recently feel so sad and scared -- I can't help thinking of the life I thought he would lead.  He has had many setbacks but doing ok at the moment.  Not sure why I am posting but lately its just been a struggle trying to keep up the facade of normalcy for my other children and friends.  I can't help but wish this were happening to me instead of him.  I know there is hope with some of the new breakthroughs in treatment but its a tough way to live.  I am sorry for all of you living cancer or who are caring for loved ones.

RE: Mom feeling sad and scared

by Shell2018 on Thu Feb 07, 2019 10:04 PM

Quote | Reply

Hi BTMom

I totally understand your feelings. I feel the same since my 28 years old daughter diagnosed AA(anaplastic astrocytoma)3 last August. Her tumor was very large as well, 90% resection, followed with 6 wks of radiation and chemo. She is on 6 months of chemo now. Doctors at Danna Farber told us for those kind of tumor, it can't be curable but is manageable so think positive. I think your son's one is low grade giolma. There are a lot of People with low grade giolma live in a normal life. 

Best wishes!

RE: Mom feeling sad and scared

by bizzerbee on Fri Feb 08, 2019 04:53 PM

Quote | Reply

Hey BT mama,

My heart hurts for you. My husband has an AA3 and I am struggling to accept his fate. He is such an amazing human being and his presence in the world has a far greater impact than mine. I too wish it were me and not him. If it was my son it would absalutely break my heart. Be strong mama and know that it is also in your right to let the facade down every once in a while. It is good for your other children to see a real person as their mother and not a robot. Sending virtual hugs to you.

RE: Mom feeling sad and scared

by BTMom on Sat Mar 02, 2019 02:42 PM

Quote | Reply

Thank you so much.  I am so sorry about your husband too and hope you can be strong as well. I have great friends who support me but sometimes I feel so alone and don't want to ask too much of people.  There have been amazing advances in science that I hope will benefit the people we love.  Sending virtual hugs back to you. 

RE: Mom feeling sad and scared

by BTMom on Sat Mar 02, 2019 02:46 PM

Quote | Reply

I pray for your daughter as well.  Dana Farber is a great place and there are new advances every day so I hope they will benefit our children.  It helps to express our feelings once in awhile.  I don't know about you but I find I don't talk about it as much with friends as much as after the initial diagnosis so posting on this board helped get my feelings of despair off my chest.  My son is amazingly brave and positive so I will try to follow his lead.  Sending my positive thought to you and your daughter.

5 Posts | Page(s): 1 
Subscribe to this message board discussion

Latest Messages

View More

We care about your feedback. Let us know how we can improve your CancerCompass experience.