New to bile duct CA

6 Posts | Page(s): 1 

New to bile duct CA

by LGodron on Fri Feb 08, 2019 04:22 AM

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Hello,

I was diagnosed last November after presenting to the  ER with abdominal pain, distention, and jaundice. I am now 5 weeks post Whipple procedure. As a nurse, I  knew what was involved with this procedure, as a person, not so much. 

The surgery was a huge deal and I am relieved that it is in the past. 

I am looking to start chemo soon and am terrified. Crazy. I am not afraid of the changes that will bring, but the idea of having to have a central line sends me around the bend. 

When I was first diagnosed, I made my decision to fight, mostly to have more time to spend with my grandchildren. 

Looking for experiences and information.

Thank you 

RE: New to bile duct CA

by Valeriepannone on Mon Feb 11, 2019 08:59 PM

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On Feb 08, 2019 4:22 AM LGodron wrote:

Hello,

I was diagnosed last November after presenting to the  ER with abdominal pain, distention, and jaundice. I am now 5 weeks post Whipple procedure. As a nurse, I  knew what was involved with this procedure, as a person, not so much. 

The surgery was a huge deal and I am relieved that it is in the past. 

I am looking to start chemo soon and am terrified. Crazy. I am not afraid of the changes that will bring, but the idea of having to have a central line sends me around the bend. 

When I was first diagnosed, I made my decision to fight, mostly to have more time to spend with my grandchildren. 

Looking for experiences and information.

Thank you 

Hi, I'm Val,,

I am so sorry this has happened to you. My dad was diagnosed in July with cholangiocarcinoma and its not operable. He started chemo in September did a few rounds and it's been a nightmare ever since, He has gotten c-diff, sepstis, fungal bacteria and other infections, he is so weak and doesn't have much time. Because of the infections he kept getting it set him back and the cancer went un treated and now it has spread. I wish you all the best and let me know if you have any other questions, and go for second opinion! my dad did he got the same news but at least he tried. It's a very hard cancer to fight. I really wish you the best but keep in touch.

Val  Staten island

RE: New to bile duct CA

by myley06 on Tue Feb 12, 2019 08:01 PM

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Hi I'm Myley,

My husband had the Whipple procedure in 2014. Recovery was prolonged because he contracted infection 2days after the op. He was then in hospital for 5 weeks. He didn't have chemo at that time because he wasn't fit enough. He made a good recovery and we had three good years, although after the op it was hard to imagine him ever being well again. He then made sure his days were occupied and spent a lot of time working in the garden and walking. We have 3 grand children of 7,6 and 4 years and they really enjoyed growing vegetables. My point is that you will recover from th op and have a chance to enjoy life. May be if my husband had been fit to have chemo after the op we would have had more time.

I'm thinking about you and please let's know how you are doing.

RE: New to bile duct CA

by Valeriepannone on Tue Feb 12, 2019 08:23 PM

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On Feb 12, 2019 8:01 PM myley06 wrote:

Hi I'm Myley,

My husband had the Whipple procedure in 2014. Recovery was prolonged because he contracted infection 2days after the op. He was then in hospital for 5 weeks. He didn't have chemo at that time because he wasn't fit enough. He made a good recovery and we had three good years, although after the op it was hard to imagine him ever being well again. He then made sure his days were occupied and spent a lot of time working in the garden and walking. We have 3 grand children of 7,6 and 4 years and they really enjoyed growing vegetables. My point is that you will recover from th op and have a chance to enjoy life. May be if my husband had been fit to have chemo after the op we would have had more time.

I'm thinking about you and please let's know how you are doing.

oh my..I'm so sorry he passed. This is just a terrible cancer, it's so rapid and agressive. My dad is getting weaker and weaker by the day, so sad he's 74 and before he was diagnised he was very active, he's a builder in PA..It's hard to see him go from active to bedridden, it just makes me sick. He is so presious to me and i'm losing him. It's so hard to look in his eyes because there is no life, his eyes are cold where 6 months ago you can see the life he had and how happy he was in his eyes,, it's hard to see him like this, so frail and weak. He lost 80 lbs since september. He's all skin and bones, 

I do hope you are doing ok.... stay in touch in here, your story is amazing and just may help someone :)

Val Staten Island, N.Y.

RE: New to bile duct CA

by myley06 on Tue Feb 12, 2019 09:38 PM

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My husband is still here but I wanted to state that there can be a good life after the Whipple procedure.

In 2017 the cancer returned. He had 6 months chemo in 2017 and had no ill effects at all and was active.  In 2018 he opted for a further 6 months of chemo which was stopped as he was unwell and was admitted to hospital several times with infection. The doctors say he will now be prone to infection.  I expect the next time to be difficult but we are fortunate that the local hospice will support.

RE: New to bile duct CA

by Valeriepannone on Wed Feb 13, 2019 01:45 AM

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On Feb 12, 2019 9:38 PM myley06 wrote:

My husband is still here but I wanted to state that there can be a good life after the Whipple procedure.

In 2017 the cancer returned. He had 6 months chemo in 2017 and had no ill effects at all and was active.  In 2018 he opted for a further 6 months of chemo which was stopped as he was unwell and was admitted to hospital several times with infection. The doctors say he will now be prone to infection.  I expect the next time to be difficult but we are fortunate that the local hospice will support.

Oh my goodness! I am so so sorry, ?? I misunderstood, & I am so happy he is still here, the infections are bad my dad has all at once, c-diff, sepsis, E. coli & fungial bacteria in his blood.hes just not doing good at all. My apologies for the misunderstanding ??????? Keep in touch ?? Val Staten Island, N.Y.
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