Question about MRI/Advice ?

14 Posts | Page(s): Prev 1 2 

RE: Question about MRI/Advice ?

by Valeriepannone on Fri Feb 15, 2019 03:31 PM

Quote | Reply

On Feb 15, 2019 12:53 AM Mom2angels wrote:

Thankyou so much! I really appreciate your understanding and advice. I feel let down by drs and tests. Before they found the mass everything was centered over some bad genetic variants (not cancer related) I practically had to beg just for the dr to order the u/s. I left there. I had had it. I was on my way to the University to be seen by a Cystic Fibrosis specialist for a consult. Then this happened and my new pcp said he needed to find out about my liver before referring me because all of my symptoms could be related to this and so here I am. I guess I was relieved when finally something showed. I just want to know why im ill. I went through so many previous possible diagnosis .I am just so exhausted by it all. This whole year has been a complete nightmare. Thankyou for taking your time with me. I obviously have read about everything I can get my hands on but with my symptoms and now this pain, the mass, my other symptoms .Its very concerning and so frustrating. 

You are welcome! You can ask me any time.. Yes doctors can give you the run around so you have to research the doctor, check his views and ratings, see how long they've been praticing.. hopefully you will find a doctor that will find the problem and you can get relief and closure too. I was so for 10 months after having the shingles for 6 weeks. After my shingles went away i was getting stomach pains on the left side under my rib cage.. I was throwing up almost every morning and couldn't even think about food, i was so nauseous everyday that at work i had to leave at times because i couldn't stop throwing up, after the first doctor didn't no what to tell me my dad had me call his GI doctor and it took about 3 weeks to know what was wrong, he did every test and endoscopy he can and found my problem. He made me feel so much better. I am so glad i did second opinion because now i'm doing great health wise & its a little over a year. so to me it's important to go with your gut feeling. i did and went  for second opinion and my problems solved. You have nothing to lose. Money can be tight but you have to do what you must to enjoy the gift of life. I don't think anyone understands how much you have to investigate your doctors, some doctors can't be bothered. I hope you get your answers & feel better real soon! let me know what happens, anytime, i'm here for you.  :)

Val Staten Island

RE: Question about MRI/Advice ?

by Mom2angels on Fri Feb 15, 2019 04:18 PM

Quote | Reply

Aw thankyou so much for sharing and being so kind to me it means a great deal. Its starting to drive me crazy not having any answers. I also have medicaid and to be honest it is not very great where I live. It took this dr 2 months just to get the MRI referred. Im sorry you went through so much. I have been reading some stories and its just heartbreaking what people go through. Its like they might as well say ok well sorry you feel like crap go the er if you get worse & just well, deal with it! Since I last seen my new pcp the pain can make me unconscious so I am praying when I tell him this mon he will order some other test. My vomiting has been a bit out of control same as my diarrhea and its the weirdest thing but I have these weird hiccups that feel like dry heaves and its so often and my stomach burns. I have so much going on with my stomach. Its scary to have health problems and feel abandoned by the medical community. My goal was to get to the university and try to build a team of drs I need most but I guess if this mass is causing my issues I just need to find a decent pcp. It helps to talk to others that understand. Thankyou I appreciate it. Is it ok if I ask you do you or someone you love have cancer? 

RE: Question about MRI/Advice ?

by Valeriepannone on Fri Feb 15, 2019 06:55 PM

Quote | Reply

On Feb 15, 2019 4:18 PM Mom2angels wrote:

Aw thankyou so much for sharing and being so kind to me it means a great deal. Its starting to drive me crazy not having any answers. I also have medicaid and to be honest it is not very great where I live. It took this dr 2 months just to get the MRI referred. Im sorry you went through so much. I have been reading some stories and its just heartbreaking what people go through. Its like they might as well say ok well sorry you feel like crap go the er if you get worse & just well, deal with it! Since I last seen my new pcp the pain can make me unconscious so I am praying when I tell him this mon he will order some other test. My vomiting has been a bit out of control same as my diarrhea and its the weirdest thing but I have these weird hiccups that feel like dry heaves and its so often and my stomach burns. I have so much going on with my stomach. Its scary to have health problems and feel abandoned by the medical community. My goal was to get to the university and try to build a team of drs I need most but I guess if this mass is causing my issues I just need to find a decent pcp. It helps to talk to others that understand. Thankyou I appreciate it. Is it ok if I ask you do you or someone you love have cancer? 

Awww it's ok, i no it's scary and if my story can help so be it.. Medicaid covers mostly everything, my parents have it and the both have cancer. My mo had lung cancer 10 years ago, Sloan Kettering operated and took a pieace of her lobe. now it's 10 years later and 2 spots were found on each lumg so in Julu 2018 she went for surgery on one lung and then that August 2018 she did radiation for the other lung for only 1 week. She is a trooper. She's going next month for her results. My dad, oh boy, he was diagnosed with cholangiocarcinoma- liver and bile duct cancer.It has been an abosoute nightmare. He got chemo in august into september, and it's been one set back after the other, he has no amune system left because of chemo and he gets bad infections,c-diff, sepsis, e coli, fungial bacteria in the blood. he was in the hospital for 2 months treating 3 infections at once. he lost alot of weight and muscle mass and can hardly walk now. he was home for new years eve but he goes in and out of the hospital because these infections keep coming back. So being his cancer went un treated for 2 months it has now spread and 2 more lesions are showing on his cat scan. We do get VNS, Aid & hospice. My dad is 74 years old, he was a very active man, he is a builder in PA and he did physical work himself and now he can't even stand up, he went from very active to bed ridden in 4 months. He lost over 50 lbs and he just sleeps. He has very poor quality of life. I am very close to my family so i try to help out when i can. We all pitch in. This cancer he has is very aggressive and rapid. It's rare and usually men get it between 60-75 years old. My dad can't believe it, we can't.. He always took good care of himself, goin to doctors for check ups and stuff and this he didn't no he had until he started turning yellow, thats when you know it's the liver. This poor man is fighting for his life everyday. He saw the doctors about 2 weeks ago and had said he may have a month of life left. We were blown away. He can not treat his cancer because he is way to weak and he'll only die quicker if they tried radiation or chemo or trails.. It's so sad that we just may of had a shot but these infections got to him one after the other, when one was cleared up another was back. It's not the cancer that kills you it's the treatments. We now  ask ourselfs if chemo was the way to go being he got extremely ill. Chemo has aged my father 20 years in 6 months. My dad also went for a second opinion and both doctors 2 different hospitals, 2 different states, both said the same thing. Do your research on doctors and your gut will tell you. I've always went with my gut feeling, and i'm glad i did. you don't have a gallbladder so it's not that, it's just process of illumination. My dad had his gallbladder removed aout 3 -4 years ago also. 

it's a pleasure to write to you! :)

Val Staten Island, N.Y.

RE: Question about MRI/Advice ?

by Valeriepannone on Tue Feb 19, 2019 08:26 PM

Quote | Reply

On Feb 15, 2019 6:55 PM Valeriepannone wrote:

On Feb 15, 2019 4:18 PM Mom2angels wrote:

Aw thankyou so much for sharing and being so kind to me it means a great deal. Its starting to drive me crazy not having any answers. I also have medicaid and to be honest it is not very great where I live. It took this dr 2 months just to get the MRI referred. Im sorry you went through so much. I have been reading some stories and its just heartbreaking what people go through. Its like they might as well say ok well sorry you feel like crap go the er if you get worse & just well, deal with it! Since I last seen my new pcp the pain can make me unconscious so I am praying when I tell him this mon he will order some other test. My vomiting has been a bit out of control same as my diarrhea and its the weirdest thing but I have these weird hiccups that feel like dry heaves and its so often and my stomach burns. I have so much going on with my stomach. Its scary to have health problems and feel abandoned by the medical community. My goal was to get to the university and try to build a team of drs I need most but I guess if this mass is causing my issues I just need to find a decent pcp. It helps to talk to others that understand. Thankyou I appreciate it. Is it ok if I ask you do you or someone you love have cancer? 

Awww it's ok, i no it's scary and if my story can help so be it.. Medicaid covers mostly everything, my parents have it and the both have cancer. My mo had lung cancer 10 years ago, Sloan Kettering operated and took a pieace of her lobe. now it's 10 years later and 2 spots were found on each lumg so in Julu 2018 she went for surgery on one lung and then that August 2018 she did radiation for the other lung for only 1 week. She is a trooper. She's going next month for her results. My dad, oh boy, he was diagnosed with cholangiocarcinoma- liver and bile duct cancer.It "" target="_blank" rel="nofollow">http://cancer.It " target="_blank" rel="nofollow">cancer.It has been an abosoute nightmare. He got chemo in august into september, and it's been one set back after the other, he has no amune system left because of chemo and he gets bad infections,c-diff, sepsis, e coli, fungial bacteria in the blood. he was in the hospital for 2 months treating 3 infections at once. he lost alot of weight and muscle mass and can hardly walk now. he was home for new years eve but he goes in and out of the hospital because these infections keep coming back. So being his cancer went un treated for 2 months it has now spread and 2 more lesions are showing on his cat scan. We do get VNS, Aid & hospice. My dad is 74 years old, he was a very active man, he is a builder in PA and he did physical work himself and now he can't even stand up, he went from very active to bed ridden in 4 months. He lost over 50 lbs and he just sleeps. He has very poor quality of life. I am very close to my family so i try to help out when i can. We all pitch in. This cancer he has is very aggressive and rapid. It's rare and usually men get it between 60-75 years old. My dad can't believe it, we can't.. He always took good care of himself, goin to doctors for check ups and stuff and this he didn't no he had until he started turning yellow, thats when you know it's the liver. This poor man is fighting for his life everyday. He saw the doctors about 2 weeks ago and had said he may have a month of life left. We were blown away. He can not treat his cancer because he is way to weak and he'll only die quicker if they tried radiation or chemo or trails.. It's so sad that we just may of had a shot but these infections got to him one after the other, when one was cleared up another was back. It's not the cancer that kills you it's the treatments. We now  ask ourselfs if chemo was the way to go being he got extremely ill. Chemo has aged my father 20 years in 6 months. My dad also went for a second opinion and both doctors 2 different hospitals, 2 different states, both said the same thing. Do your research on doctors and your gut will tell you. I've always went with my gut feeling, and i'm glad i did. you don't have a gallbladder so it's not that, it's just process of illumination. My dad had his gallbladder removed aout 3 -4 years ago also. 

it's a pleasure to write to you! :)

Val Staten Island, N.Y.

cholecystectomy (removal of the gallbladder) is done when the gallbladderbecomes infected or when gallstones are present, causing symptoms. ... Once theorgan is removed, the main bile duct takes over the function of the gallbladder by carrying more bile from the liver during digestion.

After surgery, your liver still makes enough bile. But you might have difficulty processing fatty foods – at least for a while. More than half of patients who havetheir gallbladder removed have trouble digesting fat.

bile duct injury is damage to the bile ducts that happens during gallbladder surgery. A bile duct can get cut, burned, or pinched. As a result of an injury, the bile duct will not be able to work right, leaking bile into the abdomen or blocking the normal flow of bile from the liver.

While it is not the norm to experience digestive problems after gallbladder surgery, they can include:
  • Difficulty digesting fatty foods. ...
  • Temporary diarrhea. ...
  • Chronic diarrhea. ...
  • Temporary constipation. ...
  • Retained stone in a bile duct. ...
  • Intestinal injury.
People with biliary obstruction usually have:
  • light-colored stools.
  • dark urine.
  • jaundice (yellowish eyes or skin)
  • itching.
  • pain in the upper right side of the abdomen.
  • nausea.
  • vomiting.
  • weight loss.
Bile is important because it helps with the digestion of fat and its transfer from the intestine into the body. When the gallbladder is removed, bile made by the liver can no longer be stored between meals. ... The only clear side effect of removal of the gallbladder is diarrhea. This occurs in about 10% of patients.

Doctors generally recommend that anyone with a bile duct blockage from a gallstone have his or her gallbladder removed to prevent another blockage. It's rare to find bile duct cancer early, but if it is found early, it can be treated with surgery. When cancer is more advanced, surgery cannot totally remove the tumor.

Bile is important because it helps with the digestion of fat and its transfer from the intestine into the body. When the gallbladder is removed, bile made by the liver can no longer be stored between meals. ... The only clear side effect of removal of the gallbladder is diarrhea. This occurs in about 10% of patients.

I hope this will help ...& hope your doing ok

14 Posts | Page(s): Prev 1 2 
Subscribe to this message board discussion

Latest Messages

View More

We care about your feedback. Let us know how we can improve your CancerCompass experience.