Anyone used Keytruda

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Anyone used Keytruda

by DianaPB on Tue Feb 26, 2019 08:15 PM

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Hello

Anyone used Keytrda succesfully. And any tricks to learn to make sure syccesful.

My husband (58) has TCC mets in lungs and he is thinking to take it. 

Your information is greatly appreacited.

RE: Anyone used Keytruda

by djthx on Thu Feb 28, 2019 03:55 PM

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Hello,

I've been on Nivolumab (Opdivo) - another PD-1 inhibitor, for 4 and 1/2 years now.  I was dx stage 4 gastroesophageal, and currently, there is ned.  I suggest you look at (and continue to research) this article:

https://www.uchicagomedicine.org/forefront/cancer-articles/2

All the best,

Edwin

RE: Anyone used Keytruda

by DianaPB on Thu Feb 28, 2019 04:24 PM

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On Feb 28, 2019 3:55 PM djthx wrote:

Hello,

I've been on Nivolumab (Opdivo) - another PD-1 inhibitor, for 4 and 1/2 years now.  I was dx stage 4 gastroesophageal, and currently, there is ned.  I suggest you look at (and continue to research) this article:

https://www.uchicagomedicine.org/forefront/cancer-articles/2 018/january/specific-microbes-in-digestive-tract-can-boost-success-for-cancer-immunotherapy"" target="_blank" rel="nofollow">https://www.uchicagomedicine.org/forefront/cancer-articles/2 target="_blank" rel="nofollow">https://www.uchicagomedicine.org/forefront/cancer-articles/2

All the best,

Edwin

Hello Edwin,

Thanks so much for your response. It is very encoraging that your experinece with Nivolemab is great.

I understand this immuno med is not for GC, and I wonder how did you made the decision to try this one 4.5 years ago. Did your Dr suggested or agreeded with it.

Also, what other things you do help your response to immuno thearppy well, in addition to meditation. (Like exercise, diet, fasting, alkline water, etc..?)

Thanks so mcuh,

Diana 

RE: Anyone used Keytruda

by djthx on Thu Feb 28, 2019 04:35 PM

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Hi Diana,

It was a 2 year clinical trial.  However, since I continued to respond to treatment, I am receiving bi-weekly transfusions on a compassionate basis.  And FYI, I'm doing great; never felt better.

I'm willing to share all my experience, and can also offer suggestions, but right now I'm at work, so it will have to be done after business hours.

in the meantime, a book that I find to be indispensible is The Metabolic Approach to Cancer by Dr. Nasha Winters.

Also, it is very important (crucial) to test for any polymorphisms.

https://www.youtube.com/watch?v=bVV2RFEiqN4&t=33s

Take good care,

Edwin

RE: Anyone used Keytruda

by DianaPB on Thu Feb 28, 2019 09:49 PM

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Hi Edwin,

Also, do you know any tricks to make immunotherapy work  well (or make a patient respond to it well)

Many thanks,

Diana 

RE: Anyone used Keytruda

by djthx on Fri Mar 01, 2019 09:25 PM

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Hi Diana,

Did you look over the first link I posted?  It leads to a scientific article reporting on how immunotherapy is enhanced by certain bacterium in your gut.  It's all about your gut health, aka, your microbiome.  This happens to be one of the fronts or terrains that Dr. Nasha Winters mentions in her book.  Fyi, I regularly take the probiotic bifido bacterium, which is one of the strains mentioned in the article.

You can also google Redo Project, which is a site devoted to taking another look at conventional, older medication, that has been shown (at least in theory in some cases) to have anti-cancer properties like tagamet (an acid blocker) and metformin, which I also regularly take.

You should test for and set ideal levels of certain vitamins and minerals.  That's the reason why it's crucial to test for any polymorphisms.  If we find that our bodies aren't able to absorb an ideal amount of certain vitamins or minerals (vit D, zinc, calcium, b-12, folate, etc.), then our battle becomes that much more difficult if not impossible.  It even occurs to me that these polymorphisms may be implicated (thinking long-term) in our having developed cancer in the first place.

Other areas that are important are our state of miind/motivation; we have to be convinced of victory.  Meditation and/or self-hyponis (which is meditation with an agenda) can help us accomplish this.  Exercise is important.  And fasting is one of the items that are on the top of my arsenal list.  Certain supplements are also key.

Take good care,

Edwin

RE: Anyone used Keytruda

by djthx on Fri Mar 01, 2019 09:27 PM

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By the way, I mistakenly wrote transusions, instead of infusion (biweekly infusions of nivolumab).

RE: Anyone used Keytruda

by DianaPB on Sat Mar 02, 2019 02:52 AM

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Hi Edwin,

Thanks for all the info. & posts and they are very helpful.

I am going to read the articls you mentioned.

To my husband, responding to a Med well is the key of survival now. Any trick will help.

Diana

RE: Anyone used Keytruda

by djthx on Sat Mar 02, 2019 12:18 PM

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Hi Diana,

What medication is he currently on?  If it's some type of chemo, then I suggest fasting.  Of course this is dependent on his weight.  If u research (this means googling only science-based articles or reports) fasting + cancer or fasting + chemotherapy, you will find how effective fasting is in our battle.  And this is also discussed in Dr. Nasha's book.  

Curcumin turmeric, another one 9f my mainstay supplements, is an antioxidant and anti inflammatory, and has also shown to have anti cancerous properties.  It's also a blood thinner, so if he's on blood thinners, it might not be a good idea.  Furthermore, turmeric has also shown to be synergistic with certain chemos (Google it).

Edwin

RE: Anyone used Keytruda

by Bos2007 on Sat Mar 02, 2019 10:08 PM

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In 2014 I was diagnosed with stage 4 MCC (Merkle Cell Carcinoma). I went into remission with chemo. In January 2016 it came back in multiple organs. I went on Keytruda infusions every 3 weeks. In three months there was no evidence of cancer. I was on Keytruda for 12 months and I am still cancer free!

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