Creons

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Creons

by Beadwooly on Sun Mar 03, 2019 04:27 PM

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I was diagnosed with PC in June 2017, had Whipple in July.My tumor was not resectable, started chemo in August.In January 2018 I has one round of Folfox. I went into Afib and was in the hospital for two days. The cardiologist cleared me. About six weeks ago I began have severe stomach pains after earting. At first certain things, now everything I eat. My oncologist was sure I had an ulcer. She sent me to a gastro doctor and I has an endoscope 2/26. No sign of ulcer other abnormality in the stomach. The Dr. gave creons samples.  I have been taking 3 before each meal. It has not helped yet. How many are others taking, how long do it does it take to show results, what about other pig enzymes? Thank you for any and all information.

RE: Creons

by Baloo on Mon Mar 04, 2019 09:58 PM

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I had severe symptoms mimicking an ulcer too. I could eat, but an hour to an hour and a half later the pain became intolerable. It felt like an ulcer.  The pain for me was caused by the pancreatic cancer,not sure how or why- pancreatic pain seems to resemble stomach issues-  and later I had terrible stomach symptoms caused by a duodenal blockage.An hour after eating my stomach would bloat and cramp, the contents would slosh around and the bloating became so unbearable I would have to induce vomiting to relieve the pain.

Creon and other digestive enzymes do not seem to make a difference to me. I do take them with meats and dairy and fatty foods just in case, but if I forget to take them it doesn't seem to make much of a difference.Try taking fewer creons, I found if I took too many that would cause pain too. I only take 1 25,000 unit pill. But my tumor was in the body/tail and not in the head, and I have not had a whipple, just the removal of the tail. Your symptoms may be caused by something else, but this was my experience. Others say that the Creon helps. 

Folfirinox relieved the ulcer like symptoms and pain after only one session. But Once the folfirinox failed after 23 sessions I went off chemo, and the pain returned. I'm back on gemcitabine/Abraxane (so far only 2 treatments) and that has relieved the pain too. So for me the pain which feels like it's in my stomach is actually due to pancreas pain, I believe.

RE: Creons

by Puddums on Thu Mar 07, 2019 06:57 PM

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What dosage of Creon are you taking?  Usual dosage is 2 24,000 with meals and 1 24,000 with snacks.

RE: Creons

by Baloo on Sat Mar 09, 2019 04:42 PM

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On Mar 07, 2019 6:57 PM Puddums wrote:

What dosage of Creon are you taking?  Usual dosage is 2 24,000 with meals and 1 24,000 with snacks.

I take one single 25,000 unit pill with whatever on occasion, with foods I think might be hard to digest. I'm sorry despite repeatedly trying  I haven't really been able to tell if they help or not. If I do or  don't take one the pain may or may not come an hour after the meal, regardless.  I did not notice greater benefit by taking more, even with fatty meals, and when I tried taking many (5) (only once with dinner),  that caused a lot of pain  (worse than ever) and I won't do that again.

Others swear by the Creon though so it would be helpful if they could respond to your question. I know my experience will not likely help you but I thought I would post anyway, just in case you are like me where the Creon seems to do little or nothing. 

RE: Creons

by denver88 on Fri Mar 15, 2019 10:24 PM

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after my whipple i was on Pertzye enzymes, worked fine, ended most cramping and excessive gas, then insurance stopped covering this enzyme and i went on Creon enzymes, gas returned and other minor digestive problems, you might try Pertzye (speilling might be wrong) but it is very expensive when insurance doesn't pay for most of it

RE: Creons

by artsylady on Sat Mar 16, 2019 05:28 PM

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Every individual and oncologist is different. My partner was diagnosed with PC in June 2018 and immediately went on 24,000 units of creon. He weighs 155-165 and was prescribed two tablets BEFORE snacks and three tablets BEFORE meals. Usually 10/12 per day. Almost immediate relief. Five weeks daily radiation and oral chemo. October 2018 he had distal pancreactomy w spleen removal. No metastasis, no lymph node involvement, clear margins. Duke oncology team recommended a further “dusting and cleaning” with Folfirinox. Twelve five-hour infusions. Every two weeks for six months. We are at hump day. Seventh treatment upcoming. Have added neupogen to stimulate bone marrow/white blood cell count. Also taking low dose anti depressant and now appetite stimulant Energy level goes from 2-9 but we are convinced that our med team is on it and with us.

RE: Creons

by lbern on Thu Mar 21, 2019 08:10 PM

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this is one of my frstrations, getting relief for my bloating and pain. Seems the docs should have enough experience to help guide. I was prescibed 2-6000 units creon wiht meals, but I need to snack all day so I'm guessing what to tke with sbacks.  Consulted dietican who said the 6000 wouldn't be nearly enough. so I'm left experimenting with that plus gas-x (doctor suggested along with Ranitidine) hard to know what's working or isn't. Seems I really bloat after chemo, on folfirinox pump for 3 days sso I wonder if that fluid is bloating me, my stomach gets so distended it's like I'm pregnant & belly button turns into an outty. I get losts of maybe it's this or that (ascites suggested-but then goes down & scans show moderate ascites).  I don't have answers , but plenty of frustration on lack of guidance from people who I feel whould have already seen this in patients before me and have science to figure out what course is best to follow, or at least how to logically try. 

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