Astro Stage-1 (post op treatment/approach)

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Astro Stage-1 (post op treatment/approach)

by healingnhope4u on Thu Mar 14, 2019 02:46 PM

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My 27 year old son was dg with an astrocytoma and had a r-lobe brain tumor removed 9 months ago. Surgery removed 100% without complications. Looking to find others with previous/similar situations to find what kind of follow-up treatments are recommended/suitable. My son is adamantly against chemo/rad. not wanting even to consider it because of the side effects. Struggling to find answers, struggling against his strong stances. Looking for advice. Wondering if a wait/watch approach is totally stupid - or maybe justifiable given they removed 100% through surgery. Maintaining hope, worried parent, son is very set on watch/wait.  What should I do?

RE: Astro Stage-1 (post op treatment/approach)

by bizzerbee on Thu Mar 21, 2019 07:57 PM

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Hello,

You are in a really tough spot. Your son is old enough that he is most likely going to do whatever he wishes.. which is his right. However, if you want to have open conversations with him there is plenty of research that shows that Radiation and chemo extends pateints overal survival by almost double. I get that he may worry about side effects. I am sure imagining radiation and chemo it seems so scary and awul. However, the reality is neither has been dibilitating for our family. My husband who is 31 biked to radiation everyday and his biggest side effect came a few weeks after finishing where has was very tired and needing a mid day nap. He has done 8 cycles of chemo and has not had any negative sideffects besides constipation.

Anyway, if I was in your place I would tell my son that ultimatly it is his decision but that he should first do his do-diligence and speak opening with his team because he makes that choice. 

So sorry you are in this terrible position.

RE: Astro Stage-1 (post op treatment/approach)

by healingnhope4u on Thu Mar 21, 2019 08:10 PM

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That's very helpful and greatly appreciated.  Thanks so much for your useful and compassionate response.

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