How to manage these debilitating pains associated with the passing of secretions/mucus?

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How to manage these debilitating pains associated with the passing of secretions/mucus?

by PD_NEC on Fri Mar 29, 2019 02:29 PM

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My 76 year old dad was diagnosed with high grade poorly differentiated neuroendocrine carcinoma of the rectum in May 2018 (slight metastasis to the liver). The tumor location was in such a spot and the fact that the cancer had horizontally pepnetrated through all the layers of the wall, that the doctors advised against surgery and decided to start chemo immediately. He finished his chemo regimen a month ago but now he is dealing with the debilitating pain associated with the passing of secretions/mucus. Anytime he walks, he feels pressure/pain in the rectal area and hence he as to lie down and let the pressure subside.

He did the PET scan today and we are awaiting the results. I am worried and scared. I now feel that in spite of the risks associated with the surgery, the removal/resection of the rectal area would have been the right way to go prior to chemo. 

Unforunately in my absence (dad is in a different country) and the shock of the diagnosis, my dad went ahead with the doctor's suggestion of immediately wheeling him into chemotherapy. I am not blaming him or any doctors but I just wish that a second opinion was taken. The first line chemo (areounf 3 sessions) did help him destory the tumor but the subsequent PET scan after a month showed "metabolic activity" in the same location. So they went ahead with the remainder of the chemo cycles. 

My questions are -

1.

Can anyone advise how to manage these debilitating pains associated with the passing of secretions/mucus? How long will this continue? A year or more?

2.

Regardless of the results of the PET scan, should we get a second opinion and see if surgery is still an option? Because all his other vitals are normal and blood reports etc are fine. The primary problem area is the rectum.

I am asking the above questions on this forum since at this point the doctors are not willing to say or do anything until the PET scan results arrive and also they seem to be heavily against performing the surgery considering my dad's age and the other risks associated with the surgery.

RE: How to manage these debilitating pains associated with the passing of secretions/mucus?

by Beckstyr66 on Thu Apr 25, 2019 05:21 PM

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I was diagnosed with colorectal cancer October of 2017. I went through chemo first, then radiation and then surgery to remove part of my colon. The cancer then Metastasized to the liver. So three surgeries later, I’m on chemo again. This time I’ve been having the same issues as your Dad. Burning pain when I have a bowel movement, pass mucus or gas. It literally feels like glass shards are passing through the rectum. The only relief I have found is sitz baths. Three to four times a day. After the bath, I apply A & D ointment to the painful area. Doctor thinks I have a fissure that just isn’t healing. So sitz baths and a keeping stool soft and moving is my recommendation. Hope this helps. Becky

RE: How to manage these debilitating pains associated with the passing of secretions/mucus?

by PD_NEC on Thu May 02, 2019 05:46 PM

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On Apr 25, 2019 5:21 PM Beckstyr66 wrote:

I was diagnosed with colorectal cancer October of 2017. I went through chemo first, then radiation and then surgery to remove part of my colon. The cancer then Metastasized to the liver. So three surgeries later, I’m on chemo again. This time I’ve been having the same issues as your Dad. Burning pain when I have a bowel movement, pass mucus or gas. It literally feels like glass shards are passing through the rectum. The only relief I have found is sitz baths. Three to four times a day. After the bath, I apply A & D ointment to the painful area. Doctor thinks I have a fissure that just isn’t healing. So sitz baths and a keeping stool soft and moving is my recommendation. Hope this helps. Becky
Thanks a lot for your response. We were able to contain the secretions with one more chemo cycle but it has now come to a point where his body cannot handle any more and just 2 days ago the secretions have restarted and that too on a constant basis. We are now awaiting the onco’s decision.
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