Anyone there?

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RE: Anyone there?

by NJM01 on Sun Jun 16, 2019 02:30 AM

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Hi Susan, I’ve tried numerous times to start new threads but they get referred for moderator assessment and never seem to get posted. This site - and people like you - were immensely beneficial to me during my treatment and I would like to stay active but don’t seem to have much luck on this board. I do a lot of research into HPV oral cancer and find some fascinating articles but have given up trying to post them for the interest / benefit of others. Cheers, N

RE: Anyone there?

by Sdurnell on Mon Jun 17, 2019 01:22 AM

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That's really too bad, as we are all here to help and get help.  I've noticed that in the last year or so many of my posts go to a moderator first, but usually they end up posted.  I suspect that it's due to flaws in the site.  Another one is that there is no spell check here.

I also participate in the head and neck cancer forum on the Inspire site and find it much more reliable and professionally run. 

Now, will this comment be sent to the censors and make it past?  I shall see!

Susan

RE: Anyone there?

by mtkjohn1 on Fri Jul 19, 2019 02:34 PM

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Thanks Pop,

very happy to see you going strong!! I just returned from my sons Collage graduation in Seattle :-)

11 years out now and very gratfule for the abbility to see and participate in my families life. The side effects afe no joke from all that radiation, and chemo. But as my oncoligist has told me " The price of Admission"

When I complained about side effects:

ME; Dr i am finding these side effect a pian in the ass!!

DR. we discussed then all before starting treatment and you agreed??

ME: But i was Dying from Cancer then ?!?!!!!

DR. YOU DIDN'T -- Next ?

RE: Anyone there?

by mtkjohn1 on Fri Jul 19, 2019 02:38 PM

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Susan, I am here as well, but the time lag of posts does not allow for conversation any longer, which when I came here 11 years ago was what saved my five and I loved it!! people are on a cancer board when they are Scared and need to talk with someone

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