Chemobrain

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Chemobrain

by Cervivor on Thu Apr 11, 2019 04:35 PM

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I am almost reaching my 2year survival from stage 2 cervical cancer and believe I am still experiencing chemobrain. I find it difficult to concentrate and have difficulty remembering content that I have just read. I had 12 rounds of two different chemo drugs cisplatin and gemcitabine requiring several transfusions. Anybody else have any similar experiences?

RE: Chemobrain

by DanaDL on Thu Apr 18, 2019 04:09 PM

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I believe I have. My concentration and memory isn't what it used to be. I completed my chemo for Chronic Lymphacitic Leukemia three years ago, and I still have memory problems. I had 6 3-day rounds of treatment. Hang in there!

RE: Chemobrain

by Cervivor on Thu Apr 18, 2019 06:43 PM

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Thank you for your feedback.iIt helps hearing other people’s opinions unfortunately my doctor thinks I should be ok and doesn’t think chemo did this being that I am no longer receiving treatment.I think he is wrong

RE: Chemobrain

by DanaDL on Fri Apr 19, 2019 03:54 PM

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I think he could be wrong, too. You know your body better than anyone, and sometimes doctors forget that!

RE: Chemobrain

by entropy on Sat Apr 20, 2019 11:51 PM

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My husband went through chemo and radiation for Non-Hodgkin’s Lymphoma in 2002 and was 'cured' as in the NHL no longer existed. I could tell something was different with him during the chemo and asked but was told it wasn't the chemo. I didn't believe them, did research and found they were 'discovering' a 'thing' called ChemoBrain. Some people fully recover from the treatment induced ChemoBrain, others not so much. 

Now I have a rare form of leukemia called Myeloproliferative neoplasm Essential Thrombosis or chronic leukemia which means I take a chemo pill(s) daily. Others who have this type of blood cancer also report what I experience with the foggy brain days aka ChemoBrain, memory, focus, decision making. It is hard to adjust to but thankful for sticky notes I use with abandon.  Check the web and you will find validation for what you are experiencing. You are not alone and you are not losing your mind even though it feels like it a times.

RE: Chemobrain

by Mack1994 on Wed May 01, 2019 07:58 PM

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On Apr 11, 2019 4:35 PM Cervivor wrote:

I am almost reaching my 2year survival from stage 2 cervical cancer and believe I am still experiencing chemobrain. I find it difficult to concentrate and have difficulty remembering content that I have just read. I had 12 rounds of two different chemo drugs cisplatin and gemcitabine requiring several transfusions. Anybody else have any similar experiences?

Hello Cervivor, chemo brain is very real, and it is well documented in the medical literature. 

I finished radiation and 6 rounds of PCV chemo the end of May 2018, I finally feel like the fog is lifting, not completly but much better than just a couple of months ago, I have my interest in reading back and can actually recall what I've read.

I saw a neuro-psychologist back in February, I passed the testing though she told me I was "just a little slow" she felt that the chemo brain would clear and was just a matter of time and to try and be patient.

I take a plant based muliB vitamin daily and also Omega-fish oil supplement and I truly beleive that togetehr it is helping.

I have read medical literature that said for some people it takes 3 to 5years to clear and for a few not clear at all. I would suggest you see a neuro-Psychologist.I wish you the best, hang in there, better days are ahead! 

RE: Chemobrain

by Cervivor on Wed May 01, 2019 08:43 PM

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I sincerely thank you for your feedback and will talk with my doctors if things continue to become more problematic. Wish you the best.
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