Tongue cramps. Frightened.

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Tongue cramps. Frightened.

by Xsheilax on Tue Apr 16, 2019 02:23 PM

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Hi, I am nearly 6 years cancer free from Nasal phyrangael cancer, well I am hoping I am as I am kinda worried at the moment. I went to my local gp as I get occasional tongue cramping which can effect my speech for a short time. A bit like when you come out of the dentist after aneasthetic. I have always had a stiff neck and shoulder since treatment and just got on with as I was glad to be here. She says today that my tongue cramping is weird and is now sending me straight back to ENT department as a fast track case. I honestly thought it was just nerve, muscle damage as when I massage behind my ear for 10seconds it goes. I’m frightened now what they will find . Anyone with similar experience and anything to say I would appreciate. Thankyou.

RE: Tongue cramps. Frightened.

by Sdurnell on Wed Apr 17, 2019 06:03 AM

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I had throat cancer, and both surgery and radiation.  I get occasional neck cramps that go away with massage, so this might be similar.  It sounds like it.

Best of luck to you.

Susan

RE: Tongue cramps. Frightened.

by Xsheilax on Wed Apr 17, 2019 06:58 AM

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Susan, Thankyou for replying. I am going to try and see another go this morning. I have noticed my symptoms increase when anxious, if I relax they just about go away. I think it is coming from my shoulder as it is effecting my arm too. I had chemo and radiotherapy on my head and neck. I’m frightened and feel so sick at the moment

RE: Tongue cramps. Frightened.

by Sdurnell on Fri Apr 19, 2019 07:49 AM

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I have read that some of us get "late radiation effects" years after our treatment has ended.  Mostly voice and swallowing. 

I noticed at about the 6 year mark that my voice quality has started to deteriorate.  Before that the only damage to my voice was singing--I am now about an octave lower, and I can't reliably hit the note I'm aiming for anymore.  But now I often sound as if I have a cold, and I speak more quietly.  Not a good fit these days when my husband is losing his hearing!

I had a modified radical neck dissection to remove lymph nodes on one side, and was told to expect pain and weakness in the shoulder and/or arm on that side.  But aside from a small area of neuropathy on my wrist it never happened.

Just a thought--do you think that if you could take something fro anxiety it might help?  Doctors don't seem to talk about it much, but there can definitely be mental health effects along with along with all the physical ones.  During my treatment I had a panic attack and had to go back on an antidepressant.  And then I got bizarre side effects, which my doctor recognized was from the pill, so I needed to switch drugs.

And as my radiation oncologist said early on, any health issue that appeared during and after my treatment was related to the cancer treated, whether it really was or not.  Meaning, I think, that it all affected how well I'd do overall.

All the best,

Susan 

RE: Tongue cramps. Frightened.

by Xsheilax on Fri Apr 19, 2019 08:07 AM

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Hi Susan. I went to hospital straight from my GP yesterday for a CT Scan, They were looking for signs of a stroke mainly I believe or possibly my cancer returning. I had nasal phyrageal (behind my nose). My bloods and my CTScan came back clear. They are now sending me for a MRI just to be safe ba Aust of my past history. The doctor didn’t seem concerned. The problem was because my tongue evicted to the side and they can’t explain it yet but otherwise I am perfectly fine. Strange you mentioned anxiety as this was the real reason I went to the doctor In The first place. She had advised me to go back on them too. My swallowing is always pretty bad as I had radiation on my throat so it’s dry when swallowing. I can’t count the times I have nearly choked myself . I am hoping to say I was 6 years yesterday. I dare not say it until had my MRI. Sheila

RE: Tongue cramps. Frightened.

by Diamond_David on Fri Apr 19, 2019 11:16 AM

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I had radiation to neck and jaw. get neck cramping 2-6 times a DAY

Went to rehab place (for back and nexk pain) and they did "dry needling"  Almost like accupuncture but different and less annoying. 

Now I get cramps 3 times a week rather than 3 times a day

highly recomend it

RE: Tongue cramps. Frightened.

by Xsheilax on Fri Apr 19, 2019 02:51 PM

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Hi, I had chemo and radiotherapy to my nasal area and the side of my neck. I have a constant stiff neck but only just experiencing cramping. It has got better but my shoulders and neck do not relax ever. The gp saw my tongue and immediately sent me for scans. I know past history comes into it but surely could have been a different reason. It turns out she thought i had had a stroke in previous months or possible cancer returning. Doenst do my anxiety levels any good so now I have to wait for MRI , CT scan was clear on my head which is great but still can’t relax unthinking they have finished with me and said yeah no problems. I appreciate your reply Best wishes Sheila
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