Anaplastic astrocytoma

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Anaplastic astrocytoma

by walker01 on Thu Apr 18, 2019 12:38 AM

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My husband has recently been diagnosed with astrocytoma. He had a biopsy to confirm the diagnosis. The neurosurgeon recommends surgery,radiation and oral chemo. Surgery comes with possible side effects including temporary or permanent weakness of the affected arm and hand. He is not comfortable with this risk. He is considering radiation and oral chemotherapy. Can anyone give us some insight into how much of a difference the prognosis is with and without surgery and if radiation and chemo only would work as well. Thank you

RE: Anaplastic astrocytoma

by bizzerbee on Fri Apr 26, 2019 07:38 PM

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My husband was diagnosed last may with an Anaplastic Astrocytoma. I can say assurdly that ALL the research shows that a good resection is key to prolonged survival. My husband and I were also very scared at the idea of brain surgery but we were at a good hospital and we knew our surgeon was really good at his job. This confidence in our medical team made it so much easier. My husand was able to have a gross total resection and spent less than a week in the hospital. He has no side effects from his surgery. I would say that most surgeons are going to only resect what they can and will not readily cause patients lasting defficets. 

Where is his tumor located? How confident are you in his medical team? How confident were they about the resection?

I would strongly urge your husband to have the surgery. More people do well having a good resection and skipping out on radiation and chemo than the other way around. Although in my opinion do all three. 

RE: Anaplastic astrocytoma

by schmidtdvm on Sun Apr 28, 2019 03:36 PM

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On Apr 18, 2019 12:38 AM walker01 wrote:

My husband has recently been diagnosed with astrocytoma. He had a biopsy to confirm the diagnosis. The neurosurgeon recommends surgery,radiation and oral chemo. Surgery comes with possible side effects including temporary or permanent weakness of the affected arm and hand. He is not comfortable with this risk. He is considering radiation and oral chemotherapy. Can anyone give us some insight into how much of a difference the prognosis is with and without surgery and if radiation and chemo only would work as well. Thank you
I got diagnosed 10 years and 5 months ago with grade 3 anaplastic astrocytoma when I was 38. The day after my diagnosis I had brain surgery to resect the tumor. I received chemo and radiation after that. My neurosurgeon was very aggressive and got all of tumor out, that was the key to my survival. After surgery I did lose my speech and I had some impairments with my right hand and arm. My speech returned almost back to normal with therapy and my hand return to full function without any therapy. My advise is to get as much of the tumor out as possible with surgery, I am alive today, fully functional, because of this. In the last 10 years I have met many other brain cancer patients, the ones that don’t get surgery or their surgeons were not aggressive are not here today. That is cold, hard fact of this tumor. Get it out, no matter what. I know is scary, it will hard, but in 10 year you can look back and know that you made right decision.

RE: Anaplastic astrocytoma

by Shell2018 on Sun Apr 28, 2019 05:35 PM

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Schmidtdvm ; Wow  your story is so encourage, 10yesrs and 5months!!!!! My 28years old daughter has diagnosed AA3 last August, had 90%+ resection, RT and TMZ,  current is on 6mo TMZ treatment. I want to know if you take any supplement after the STD treatment? Have you ever tried Cocktail therapy? Thanks and best wishes. Shell

RE: Anaplastic astrocytoma

by schmidtdvm on Mon May 06, 2019 12:50 AM

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I was both extraordinary blessed by my excellent surgeon and lucky on my tumor location (on the surface of the brain). Yet, it was big and near my speech center. As a Veterinarian I knew the odds were slim and I asked for a total resection. So there was no visible neoplasia left in my brain. After the surgery I did radiation and Temodar, I stopped chemo 9 months after I started. I completely lost my speech, but regained it with therapy and it is nearly normal now. Enough so that I can do public speeches. I did not really take any special supplements, but I do take fish oil every day and two antioxidants, resveratrol and N-Acetyl-L-Cysteine. I consider myself as a outlier. And do think I was healed by God and by prayers of others.

RE: Anaplastic astrocytoma

by SLY1987 on Sat Jun 08, 2019 05:31 PM

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Hi Walker01, I know this is an older post, but I figured I’d give this a shot. I am also very new to all of this. My fiancé was diagnosed with anaplastic Astrocytoma, as well. 70% of the tumor was resected on May 30th. It was located in the left frontal lobe and the 30% that the doctor decided to leave was in the motor cortex. Right after surgery, my fiancé could not move the right side of his body and could only respond with 1 word sentences (yeah or no). That was a week ago. He is now walking by himself and speaking in full sentences. He can move his right arm, though he is still working on the fine motor skills in his right hand. I feel like this is because all of the IVs were in his hand and it was uncomfortable for him to try to work it when he was still in the hospital. He can move it, make a fiat, and extend all fingers. It just takes him longer than usual. He is in a rehabilitation center right now and sees an occupational, physical, and speech therapist every day. He’s been at this center since June 5th and they are already almost ready to release him. I just wanted to share my story since it sounds similar to yours. My fiancé was scared, as well. He is a mechanic by career and hobby, so the thought of losing the ability to participate in his passion was nerve wracking. But the doctor assured us that any “brain stun” would be temporary. So getting as much of the tumor out as possible took priority. I hope this helps! Praying for you and your husband on this journey.
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