Stage 4 Rectal Cancer

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Stage 4 Rectal Cancer

by RomeoJasper on Wed May 08, 2019 11:25 AM

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Hello All! My husband was diagnosed Stage 3 in October 2013 first Colonoscopy at age 50 Stage 3 Rectal Cancer. 6 weeks oral chemo and 25 sessions radiation then surgery and tempory ostomy. 9 month later they reversed his ostomy and 12 more weeks of chemo. March 2018 mets to the liver, 2 masses. 25% of liver removed the other mass they did ablation, Jan. 2019 mass found just above the pancreas inoperable. Just finished his 6th week of chemo (4 different kinds) and 1 week in hospital so they stopped the Panitumumab last treatment on 4/30. He had his CT Scan done on 5/3 tumor shrunk from 21 mm to 11 mm so tomorrow we see the surgeon again to see if he will be able to do surgery now. They are saying it is in the lymph nodes just above the pancreas attached to a major blood supply vessel so he didn't feel he could get it all and it would continue to spread, that is why the chemo was started to try and shrink it enough to get it of the vessel. When we saw him last time he said he would most likely remove the head of the pancreas and possibly end up doing a Whipple procedure. When I asked I was told Rectal Cancer will not spread to the pancreas has anypne else heard this? I guess I 'm confused as to why all this needs to be done if the cancer is not in the pancreas. We were also told he will never be cured and will contine to scan every 3 months. Does anyone know much about the CEA tumor marker blood test? My husbands through out all his cancers has remained at 0.8 completely normal, on 4/30 it came back 2.8 still in the normal range but the highest it has ever been since 2013. He was also move to a Stage 4 with the liver mets. Thanks for listening and comment would be greatly appreciated. Happy Tuesday.

Lisa

RE: Stage 4 Rectal Cancer

by Janey6 on Thu May 09, 2019 10:22 PM

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On May 08, 2019 11:25 AM RomeoJasper wrote:

Hello All! My husband was diagnosed Stage 3 in October 2013 first Colonoscopy at age 50 Stage 3 Rectal Cancer. 6 weeks oral chemo and 25 sessions radiation then surgery and tempory ostomy. 9 month later they reversed his ostomy and 12 more weeks of chemo. March 2018 mets to the liver, 2 masses. 25% of liver removed the other mass they did ablation, Jan. 2019 mass found just above the pancreas inoperable. Just finished his 6th week of chemo (4 different kinds) and 1 week in hospital so they stopped the Panitumumab last treatment on 4/30. He had his CT Scan done on 5/3 tumor shrunk from 21 mm to 11 mm so tomorrow we see the surgeon again to see if he will be able to do surgery now. They are saying it is in the lymph nodes just above the pancreas attached to a major blood supply vessel so he didn't feel he could get it all and it would continue to spread, that is why the chemo was started to try and shrink it enough to get it of the vessel. When we saw him last time he said he would most likely remove the head of the pancreas and possibly end up doing a Whipple procedure. When I asked I was told Rectal Cancer will not spread to the pancreas has anypne else heard this? I guess I 'm confused as to why all this needs to be done if the cancer is not in the pancreas. We were also told he will never be cured and will contine to scan every 3 months. Does anyone know much about the CEA tumor marker blood test? My husbands through out all his cancers has remained at 0.8 completely normal, on 4/30 it came back 2.8 still in the normal range but the highest it has ever been since 2013. He was also move to a Stage 4 with the liver mets. Thanks for listening and comment would be greatly appreciated. Happy Tuesday.

Lisa

Hi Lisa, It sounds like you and hubby have been through a lot already. The positive lymph nodes on top of pancreas may be the reason they want to remove head of pancreas. That’s the problem my husband had. Tumor was around major blood vessels...he wasn’t candidate for Whipple as he had metastasis all over. After the Whipple, it’s a big surgery, chemo is suspended to allow healing...I think that may still be the protocol, so the tumor has to be contained and/or removable. Good luck with the surgeon.....even if he can’t get Whipple he can keep cancer within limits to have a good quality of life. Janey
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