Pancreatic cancer!

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Pancreatic cancer!

by Luckydave58 on Tue Jun 11, 2019 04:21 AM

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I went to the emergency room 3 weeks ago as i thought id had the flu! Little did i know that after a ct scan of my stomach i had a softball size tumor over my pancreas this has really shocked me as I wasnt expecting to be diagnosed with cancer, they put a stent in my duct of my pancreas so it would take the yellow away in my eyes and skin! Can someone tell me what im in for? I would appreciate your input! Thanks Dave

RE: Pancreatic cancer!

by PunkyD on Tue Jun 11, 2019 05:58 AM

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Dear Dave,

I'm sorry to hear about your diagnosis.  I can only imagine that it is a shock.

I can't tell you what you're in for, as everyone person copes differently and everyone's medical situation is different, but fighting cancer is never easy. Though I do have several suggestions for you. Surround yourself with a good support group. Someone who will be your advocate, go with you to doctor appointments (for support and to hear what the doctor is saying-sometimes it's so much info, it's hard to process) and help you when you are in need. Don't be shy to ask your doctor whatever questions you have. Don't be afraid to ask for a second opinion. Take life one day at a time.

Have the doctors given you a plan of action? Did they give you information such as staging, surgery, treatments? 

If you are the kind of person that likes to know everything, then do your research. If you aren't, then that's ok too. 

This site is very helpful, so always feel free to come here for support or for info. 

Sending you strength and prayers for a complete recovery.

Punky

RE: Pancreatic cancer!

by riverak on Tue Jun 11, 2019 04:58 PM

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On Jun 11, 2019 4:21 AM Luckydave58 wrote:

I went to the emergency room 3 weeks ago as i thought id had the flu! Little did i know that after a ct scan of my stomach i had a softball size tumor over my pancreas this has really shocked me as I wasnt expecting to be diagnosed with cancer, they put a stent in my duct of my pancreas so it would take the yellow away in my eyes and skin! Can someone tell me what im in for? I would appreciate your input! Thanks Dave

Dave,

We are so very sorry to hear about this challenge and would like to provide some guidance to you in this time of need. One of our experienced Patient Advocates is available now to assist you at 847-342-6493. Please feel free to reach out anytime.

Looking forward to helping you,
Karen Rivera
CTCA Community Engagement and Outreach Team

RE: Pancreatic cancer!

by Luckydave58 on Wed Jun 12, 2019 12:59 AM

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im punky thanks for replying but after ive been up many nites researching this im not sure il even get treatment! As i  read an article pancreatic cancer is the # 3 killer in the united states with only a 9% recovery rated! Thats not good odds to make me sick from chemo an radiation an the whipple surgery I think I will just live this. 1 out as it is also so exspensive! Its basically the worst cancer you can acquire from what ive been reading! I thought about going to cancer treatment centers of america but after thinking about it for a few days im not sure its worth it! I read in a forum here there was a wo.an 72 years old and she turned down all the trreatments an had 9 good months an her last month she slept an 1 day didnt wake up thas how i wanna go! Ive beaten death twice on heart attacks i dont have a good feeling this time thanks Davd

RE: Pancreatic cancer!

by PunkyD on Wed Jun 12, 2019 06:02 AM

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Dear Dave,

Yes, I'm aware of the statistics of pancreatic cancer from personal experience. It is a difficult diagnosis, but don't ever lose hope. I believe there are stage 4 survivors on this site! Are you eligible for surgery? Whatever decision you make, whether to go with treatment or not, is your decision alone. You should do whatever you decide is best for you. 

I wish you the best of luck.........there are many great people and survivors on this site. Maybe you could reach out to them for more info. 

Punky

RE: Pancreatic cancer!

by Treasure on Wed Jun 12, 2019 03:34 PM

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Hi Dave, I too had a large tumour in the head of my pancreas which started to move up into the bile duct. I too had a stent put in and after afew days my colour started to return to normal. I did have the whipple procedure followed by 6 months of chemo. This rotten beast came back in two areas of my liver afew months after finishing treatment. I was given 5-6 months to live and put on a more agressive chemo for pain! 

I was no excepting this and knowng there is a high power I got God involved n my journey! For me, this was xactly what I needed as I askd God to take charge of this journey and bring me through to victory! For me this extra powerful help did just that. 

That was almost 8 years ago, so there s hope , this is a sneaky type of cancer, but it's not the death sentence it once was! Chemo is not like it was years ago as they have many antinausea drugs to help you through this, should chemo be suggested. Not sure what will be recommended for you, but I wish you all the best! 

Life is great! And I know I'm only here by the grace of God!

RE: Pancreatic cancer!

by Barnstable on Wed Jun 12, 2019 03:59 PM

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Hello David,

I so well understand your terror as I've been there recently myself.  I too was diagnosed (in late November) with pancreatic cancer out of the blue at age 70. I'm a healthy woman with no history of anything.    Due to a complication, I had to do the Whipple first, at which time they discovered that I had Stage 3 cancer.  I tried chemo in early March ONLY because my family insisted. I didn't want to do it.  Bad experience for me, so I terminated treatment against everyone's advice, and I've had a wonderful 3 months, full of energy and life.  Ealirer this week, I found that the tumor has returned and I now have roughly 6 months, give or take.  The back pain is uncomfortable, but is managed by opiods. While I imagine things will get rougher as time goes on, I'm glad I have made the decision I have not to treat with chemo and radiation.  For me, quality of life is a greater consideration than length of life, and frankly, I was not convinced that chemo would prolong my life enough to warrant  going through the process.  

Don't make any decisions now; take it slow.  I found that reaching out to others, researching, spending time learning on the internet, and getting more than one opinion, have been critical.  

I wish you the very best. It's terribly frightening but take courage.

Liz

RE: Pancreatic cancer!

by Luckydave58 on Thu Jun 13, 2019 06:09 AM

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Ive got other complications like heart disease an 1 good lung my mass is 22mm in the duct and im just scared to death to even try anything as they brought me back with the paddles if the recovery rate was more than 9% i might consider it but ive already read to many horror stories about this beast! B17 will take the tumors down but the united states government will not allow this form of treatment o have read up on it quite a bit an they stand to loose billions of dollars so they will not let it happen! Its bull crap thanks dave

RE: Pancreatic cancer!

by Luckydave58 on Thu Jun 13, 2019 06:13 AM

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LLiz im only 60 an havent drank in 40 years this thing came on me quick i thought i had the flu! Now since may 24th its in my lungs spleen liver u name it its atacked it i think im like you il ride it out! Thanks for replyingdave

RE: Pancreatic cancer!

by denver88 on Thu Jun 13, 2019 03:00 PM

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First, there are so to speak varieties of pancreatic cancer.  Some are less aggressive than others, some more treatable than others, and above all science has progressed greatly to treat many different types.  I had Stage 4 pancreatic cancer, diagnosed in Dec 2016, had a Whipple, to date cancer has been contained.  I was fortunate in that I had neuroendocrine PC, very treatable with lanreotide monthly injections.  The other classification is  adenocarcinoma.  

You already may know this but when reading responses in this forum most don't differentiate and thus information can be misleading.  Thus, depending on the type of PC the outcomes are different.  We have no idea if you are a candidate for a Whipple but if offered I would accept.  Your surgeon/oncologist is best for information and once you get that information share that with this forum if you like.  You do have options and a second opinion is warranted and won't offend anyone.  I don't know where you are located but major treatment centeres are in places like Denver, Tampa, Houston, Philadelphia, etc.  and they offer second opinions.  Hang in there, get the facts, pursue an aggressive approach.

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