Urachal cancer UK

2 Posts | Page(s): 1 

Urachal cancer UK

by helenm201 on Sun Sep 08, 2019 03:39 PM

Quote | Reply

Hello,

My mum has just been diagnosed with urachal adenocarcinoma.  The urologist at Lincoln has no real idea about this cancer, and os is referring her to Leicester where he expects a partial cystoctomy.  Has anyone any experience of doctors or hospitals in the UK dealing with this stype of cancer?  Thanks, Helen

RE: Urachal cancer UK

by Fiona2020 on Thu Dec 19, 2019 01:12 PM

Quote | Reply

I was fully healthy 60 yo when i had part cystectomy and en bloc removal of urachas / navel and nodes 2017 at MD Anderson Houston TX. All these tissues MUST be removed. After 3 mo at home w lots of abd swelling / pain and gi discomfort i could return to work desk. 6 mo after i had near normal energy thanks to husband's care :-).

now, 2 y post op i have terminal lung mets and am trying to decide if multiple rounds of chemo is worth it just to slow growth (combo gemcitabine, cicplatin, 5FU/Leucovorin) .

Can anyone tell me quality of life undergoing THIS regime? what else should i know/consider?

2 Posts | Page(s): 1 
Subscribe to this message board discussion

Latest Messages

View More

We care about your feedback. Let us know how we can improve your CancerCompass experience.