Journey into prostate cancer at age 67

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Journey into prostate cancer at age 67

by WFG51 on Fri Nov 15, 2019 08:02 PM

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Went to Urologist due to a blood vessel in penis that enlarged and was giving me discomfort - Doc said that it happens sometimes and started to sent me on my way - then Doc decided to give me a prostate exam - bingo hardness in prostate so PSA test with the result of 32. So up the ladder I went and had the biopsy coming back with a 4 + 3 (7) Gleason score. So hurried along for a CT Scan which showed 3 lymph nodes involved with the prostate. Then bone scan came back clear. All this hurry, hurry to get the tests done made my wife and I very nervous. First Urologist said no surgery, wanted to put me on Cosodex right then and there with a Lupron shot to follow in 2 months, and then radiation in three months after that. All of the articles that we read in a span of 2 weeks says get the prostate out, so we decided to go for a second opinion which turned out to be much the same except Lupron shot and then radiation 5 days a week for 8 weeks. Decided to go for it but was not happy. Had shot and then the nurse said see you in 6 months - WHAT! nothing like feeling abandoned by main stream medicine. All this urgency over 2 to 3 weeks and then give me a shot and wait to see what happens in 6 months. Not a happy camper! Went to see the radiologist and he confirmed what the Urologist said so we set up an appt for simulation for the radiation, which was to start in 2 months. Well hot flashes and night sweats became the norm and I was not handling it very well, when my wife suggested I see an acupuncturist to see if that could help. Boy am I glad I did that, still having some hot flashes and nights sweats but something I can handle now. Turned out that the acupuncturist that I went to had a Doctorate in Chinese medicine and we found him to be very easy to talk to and he filled us in on some diet issues that we needed to change and supplements that I needed to take, if I decided not to do the radiation. So out the window went dairy products ( cried over the ice cream), out went the sugar, out went the bad carbs like bread and pasta, out went the wine ( cried over that too) my diet is now made up of fruits, vegetables, protein (lean meat chicken, turkey, ham and small amount of beef. He sent me to get a complete blood work up and we found out things like high cholesterol ( not crazy high but low high if you know what I mean), high blood sugar, low Vitamin D, and HemoglobinA1c was high    ( a candidate for pre-diabetes). Also found out that the Lupron shot was working, PSA was down to 6, testosterone was way down and so was my estradiol. So at least we knew things that the mainstream medicine did not even bother to check. I was not as healthy as they and I assumed. Cancer not only feeds off testosterone but also estrogen and sugar! We are getting on board with the diet, and I am taking lots of supplements, green tea, Co Q 10, calcium, Vitamin D, Magnesium, potassium, Krill oil, Reishi mushroom, liver glandular and ( the next three supplements show lots of promise in prostate cancer studies) Curcumin, Quercetin/Pterostilbene. I plan on having another blood work up beginning of January to see how the diet is progressing, helping! I am researching right now where I can go get a CT scan ( willing to pay cash) as I have little faith right now in mainstream medicine, and once the Urologist knows that I did not go for radiation I do not know if he will even treat me again. The plan right now is to wait and see and I am willing to take another Lupron shot if I feel it is necessary if the other medical issues are not under control by March. Any one going thru this DO YOUR RESEARCH, FIND YOUR OWN ANSWERS and seek out alternative ways to deal with this disease. Mainstream just wants to put you on a drug and tell you that you probably have 5 years maybe ten. There was no discussion about diet, and nothing about supplements, not even a follow up call to see how I am doing. This was no fly by night doctor that we went to see he has a 5 star rating in his field in our area, has written many papers and has great peer reviews. DO YOUR HOMEWORK! I will follow up in January! Wishing all going thru this the best.

RE: Journey into prostate cancer at age 67

by ToddlerFather on Sat Nov 16, 2019 01:28 AM

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The alternative part of your treatment is a good thing, but not doing the conventional treatment as well is not. Keep having a good diet and good supplements, but also applying whatever the standard of care for your case might be. You already did one conventional treatment, hormone therapy, which seems to have done good. Perhaps keep doing it or adding others; consulting an oncologist instead of an urologist might be an option. 

That said, I have been doing alternative treatments with varying levels of success that you might consider.
1) LDN (Low Dose Naltrexone). It made the whole difference for me; an exponential tumor marker growth curve has been turned into a slow decay, buying me years while new treatments research moves forward. No side effects, cheap treatment. 

2) ALA (Alpha Lipoic Acid). Works for some people when added to LDN, hasn't worked for me. Not cheap but not expensive. 

3) DCA (DiChloro Acetate). I just started it so I can't say much of this, except that if you are in a hurry you might throw LDN+ALA+DCA altogether to see if something gets the job done. Note that DCA is incompatible with chemoratepic protocols, so if the conventional angle goes to chemoterapy, refrain from doing DCA. ALA is one of the required side effect controllers for DCA, so even if ALA doesn't work for you, you will need ALA to avoid DCA side effects. DCA and its whole anti-side effects supplements package is somewhat expensive but still much less than chemoterapics. 

RE: Journey into prostate cancer at age 67

by WFG51 on Sat Nov 16, 2019 02:24 PM

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Thank you for the information and the suggestions - LDN sounds promising, I will check it out. Thanks

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