Risk in waiting for PSA to go high enough Axumin PET scan

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Risk in waiting for PSA to go high enough Axumin PET scan

by Ron73 on Sat Jan 11, 2020 11:51 PM

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I'm 73. 4 years out from radical prostatectomy. Gleason was 7.  PSA 0.05 until 12 ago my tests are at 3month intervals. Over 6 months PSA rose to 0.09, 3 months later back to 0.05, 3 months later still 0.05. A few weeks ago it was up again to 0.1. Doctor is urging me to get radiation but admits there is no guarantee the will radiate to right spot.

I have been trying to find out of waiting for the PSA to rise to 0.2 would be worth the rist of the cancer getting into the bones, in order to have an Axumin PET scan in hopes of pin pointing the cancer. Medicare will not cover the cost of the scan untill a clinical recurrence which is a PSA of 0.2. There are no cli ics that do the Axumin PET in Alaska where I live and the doctors here know little about it.

Does anyone out there have any information they can share with me on this. I have another PSA test coming up in 2 weeks. If it has gone higher I know my doctor is going to insist on radiation which here in Alaska will Target the whole prostate be in hopes the hit it.

Help?!

RE: Risk in waiting for PSA to go high enough Axumin PET scan

by Himads on Sat Jan 18, 2020 02:19 PM

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I'm afraid I cannot offer any useful suggestions. This board used to be very active. I'm not sure what happened. Good luck to you.

RE: Risk in waiting for PSA to go high enough Axumin PET scan

by ToddlerFather on Sat Jan 18, 2020 07:23 PM

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Just a warning that there is no guarantee that the growing tumor cells are where they are thinking to radiate, unless a PET Scan pinpoints them.

For instance, in my case I saw thyroglobulin growing higher and any ultrasounds didn't reveal anything in the thyroid bed. It turned out that the tumor cells were in the lungs. But it took years before a PET CT was able to reveal them, because they were too small before that. 

So, even if you get a PET scan now, it might reveal nothing. Gland cancers such as Thyroid and Prostate are usually slow growing. 

Also, it seems that your doctor is assuming that the tumor can only do local metastases to neighboring tissues, while they can follow blood flow and do distant metastases. 

It's impossible to determine a course action with no risk without complete information, which is not available at this point, but I would be more inclined to get more precise information before starting gunning unknowns. 

 

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