Seeking advice

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Seeking advice

by Lfarach on Thu Jan 23, 2020 10:22 PM

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My brother was recently diagnosed with stage 1 pancreatic cancer. He had a stint placed in his bile duct to relieve the severe itching and 2 rounds of chemotherapy. He is scheduled for 2 more rounds then the Whipple procedure. He tolerated the chemo well but just told me wants to stop chemo and treat his cancer with diet. I totally don't agree. He has indicated if the diet does not work he can just pick the chemo back up without detimental consequences. Does anyone have experience in advising individuals with this school of thought? I desperate to change his mind...

RE: Seeking advice

by Treasure on Fri Jan 24, 2020 02:07 AM

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Pancreatic cancer is a very sneaky type of cancer and spreads very fast! Any oncologist will tell you the best way to treat this is to have a Whipple procedure and possibly a mild chemo after as a precautionary measure. Diet plays an important role after a whipple . Stage l brings a lot of hope provided a Whipple is done! The sooner the better. I would hope he would talk and ask questions to his oncologist before he makes a  final decision . Stopping chemo, and going on a diet that may not work, gives this cancer a chance to spread.  It's not everyone that qualifies for a Whipple, so he is very fortunate to have this offered to him. 

I certainly wish him the best as he continues on this journey, and it a good idea to get God involved with this. 

Joy

RE: Seeking advice

by bushy on Sat Jan 25, 2020 11:29 PM

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My oncologist recently told me that they now prefer to do chemotherapy before Whipple surgery, the results are less stress on the body before surgery and improved results,as compared to chemo after a Whipple,if he leaves the chemo and surgery to try a diet related improvement ,not a good decision,PC can be a very very aggressive cancer any delay in treatment lessons chances for survival.If he can have a Whipple he is one of the fortunate.

RE: Seeking advice

by ToddlerFather on Sun Jan 26, 2020 02:49 AM

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As others have said before me, PC moves fast, so you and him need to move fast too. While I usually look for developments linked to my condition, I saw this news that might be worth reading:

https://www.onclive.com/conference-coverage/gi-2020/chemothe

Note that this article advises to get a drug besides chemo, not replacing it, and it's conditional to specific genetic mutations. So getting a genetic test of tumor sample is key to guiding treatments instead of doing trial and error, since this challenge could be fast enough to not leave time to do trial and error. 

RE: Seeking advice

by Lfarach on Tue Jan 28, 2020 02:31 PM

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Thank you for your response Joy. He seems to feel he can monitor the growth of the tumor marker in his blood work. I am considered on the accuracy of this.

RE: Seeking advice

by Lfarach on Tue Jan 28, 2020 02:37 PM

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I agree. His thoughts are that the 5 year surival rate after the whipple is approximately 25%, which are discouraging. I try to keep him focused on being a stage 1 and he has a better opportunity to beat this. He is angry with me because I am not supporting his wishes.

RE: Seeking advice

by Lfarach on Tue Jan 28, 2020 02:50 PM

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Thank you for the information.

RE: Seeking advice

by myrnab1022 on Mon Feb 03, 2020 06:07 PM

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I'm sorry to hear that your brother has pancreatic cancer. Unfortunately diet will not treat this cancer. Stopping chemo will allow the cancer to spread and advance. This is why Steve Jobs died. Maybe he should continue the chemo and the diet.

RE: Seeking advice

by denver88 on Wed Feb 05, 2020 01:54 AM

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there is no evidence of diet resolving, killing or inhibiting growth of PC, NONE.  just ask Steve Jobs who would be alive today had he pursued surgery and medical treatment earlier instead of odd treatment hopes.  Stage 1, tell him he is lucky to catch PC early and not push his luck as moving from Stage 1 to Stage 4 can happen quickly.  Diet and cancer cures are pseudo-science.  Also, the chemo for Stage 1 is more effective and less intense than if he goes to Stage 4 where treatment will involve multiple organs and other problems, what is he thinking?

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