rad001

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rad001

by letizia on Fri Sep 21, 2007 12:00 AM

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hello everyone,

My name is Letizia , I am 33 years old and I live in Milan (Italy)

In July 2006 my Oncologist diagnosed me a pancreatic endocrine cancer at the head with a secondary to liver (metastatic), lymph node and pelvis bone left with a carcinoid syndrome.

On the 23rd of August I’m starting the chemotherapy with Cisplatin, 5fluorouracile and folinic acid (regime De Gramont).

I have got six cycles of chemotherapy (too strong for me) and now I feel a little bit better. At the moment the cure has been stopped and medics are looking for a new “experiment” medicine.

 

On the 11 of September I'm starting a new therapy with RAD001.

I'd like to know somebody who already take on it and which are the effect side.

thanks

lety

RE: rad001

by oncorat on Thu Nov 01, 2007 12:00 AM

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On 9/21/2007 letizia wrote:

hello everyone,

My name is Letizia , I am 33 years old and I live in Milan (Italy)

In July 2006 my Oncologist diagnosed me a pancreatic endocrine cancer at the head with a secondary to liver (metastatic), lymph node and pelvis bone left with a carcinoid syndrome.

On the 23rd of August I’m starting the chemotherapy with Cisplatin, 5fluorouracile and folinic acid (regime De Gramont).

I have got six cycles of chemotherapy (too strong for me) and now I feel a little bit better. At the moment the cure has been stopped and medics are looking for a new “experiment” medicine.

 

On the 11 of September I'm starting a new therapy with RAD001.

I'd like to know somebody who already take on it and which are the effect side.

thanks

lety


Dear Lety,

RAD001 so far didn't show any efficacy in pancreatic cancer. In one study in the US about 30 patients were enrolled and all came off the study after 2 cycles due to the desease progression. You should suggest your doctor to look for another clinical trial for you and not waste your time on this one.

All the best to you 

RE: rad001

by pancreaticgary on Sat Dec 15, 2007 12:00 AM

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Lety;

My name is Gary, I am 58 and live in New Hampshire USA.

I have been diagnosed with non-operable pancreatic endocrine cancer for over 20 months, I received Temadar chemo for 6 months which slowed most of the progression but then was deemed to be no longer effective.

For 11 months I have been on RAD001 as part of a Phase 2 clinical trial. My liver leisions have been reduced by 30-50% , my nausea , pain, energy and appetite were restored. Thus far I have seen a significant benefit from this treatment. There are side effects, but for me they have all been acceptable. I recommend that you investigate this treatment, it seems to be very effective against the particular pancreatic cancer which I have.

If you have proceeded with your treatment, I would like to hear how it has been for you.

 Gary

On 11/1/2007 oncorat wrote:

 

On 9/21/2007 letizia wrote:

hello everyone,

My name is Letizia , I am 33 years old and I live in Milan (Italy)

In July 2006 my Oncologist diagnosed me a pancreatic endocrine cancer at the head with a secondary to liver (metastatic), lymph node and pelvis bone left with a carcinoid syndrome.

On the 23rd of August I’m starting the chemotherapy with Cisplatin, 5fluorouracile and folinic acid (regime De Gramont).

I have got six cycles of chemotherapy (too strong for me) and now I feel a little bit better. At the moment the cure has been stopped and medics are looking for a new “experiment” medicine.

 

On the 11 of September I'm starting a new therapy with RAD001.

I'd like to know somebody who already take on it and which are the effect side.

thanks

lety


Dear Lety,

RAD001 so far didn't show any efficacy in pancreatic cancer. In one study in the US about 30 patients were enrolled and all came off the study after 2 cycles due to the desease progression. You should suggest your doctor to look for another clinical trial for you and not waste your time on this one.

All the best to you 


 

RE: rad001

by matthogan on Mon Apr 28, 2008 12:00 AM

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Hello Friends -

 

My dad was diagnosed with stage iv PC with mets to the liver in October 2007.  He tried the usual stuff (chemo - gemzar, tarceva) with some early success and even had RFI ablation to get rid of the 2 spots in his liver.  He found out today that there appear to be 2-3 new spots growing in his liver.  With them being so small, and his tumor marker (ca 19-9) somewhere around 420 he decided to enroll in a trial of tarceva and rad001.  He should start soon - have you guys had any new feelings about rad001?  Thanks - and many thoughts and prayers to you both.

 Matt

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