Tarceva

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RE: Tarceva

by PositiveNote on Sat Dec 20, 2014 05:43 PM

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Hi Kelly,

 

I have not heard of this ‘pulsed Tarceva ‘ treatment – have you checked out the Tarceva web site?  They have a support contact feature that may help address your treatment options.

 

Has your Oncologist used this treatment with other Tarceva patients?

 

 I to have stage 4 NSCLC  and at 124 pounds the recommended daily dose of 150 mg was too strong for my body. The rash – head to toes, FATIQUE,  dry cracking skin, eye stys and diarrhea did me in after 3 weeks. My hair thinned out too.  I took a 4 week rest to reset my body – it is a slow growing cancer so I was OK without treatments.  I restarted Tarceva at 75 mg per day and after 6 months I can report that the cancer’s side effects of fluid around my lung is almost gone and I can breathe normally.  I still have diarrhea every 6 days or so but the other side effects are much diminished. Dry skin  and rash is a constant battle. Diet has become very plain; no spices, or rich foods and daily at a minimum.  A rest every day is needed – if I fail to do so I am exhausted but can’t sleep.

 I pray that you get the best medical attention and correct dosage to help you though this life challenge.

 May God bless you and your family.

RE: Tarceva

by Kelly1388 on Fri Dec 26, 2014 11:12 AM

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Hi Positivenote, My onc told me that the side effects of this "pulsed dose" treatment aren't worst than the daily dose treatment. Today is only my 3rd day. I took 8 pills (1200mg total) yesterday and and another 1200mg the day before that. I'm not suppose to take anything for the next 5 days. But starting week 2, I will take 1200mg for 2 days and 50mg for 5 and so on. According to my onc, this clinical trial is meant to delay ( hopefully prevent) the cancer cells from remutating and becoming resistant. I'm only 5. 3" and weigh 115lbs. I know it's early but I don't feel tired, diarrhea started last night and I have signs of some rash on my chest. Nothing I can't tolerate (yet!). I'll keep you guys posted with the side effects. Have a very happy new year:)

RE: Tarceva

by debrapro on Thu Jan 01, 2015 04:04 AM

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Genentech has a co-pay card which you can get for free. It is worth $24,000 to help with the cost of the medicine.

RE: Tarceva

by Abran on Tue Jun 28, 2016 04:38 AM

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I have been on Tarceva for 22 months. I have stage 4 lung cancer. I had one spot in the brain that was radiated once and two spots in the spine which the Tarceva took care of them. My lung spot is down to 10mm. I have gone through a few of the side effects. I'm losing my hair, ends breaking off for the second time. I take 150mg I have been stable for 18 months now and I was wondering if going down to 100mg would ease the hair loss. My blood work is perfect. Anyone taking 100mg pls let me know how long you have been on it and how you are doing. Good Luck to all and think positive.

RE: Tarceva

by herbk05 on Tue Jun 28, 2016 11:07 AM

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On Jun 28, 2016 4:38 AM Abran wrote:

I have been on Tarceva for 22 months. I have stage 4 lung cancer. I had one spot in the brain that was radiated once and two spots in the spine which the Tarceva took care of them. My lung spot is down to 10mm. I have gone through a few of the side effects. I'm losing my hair, ends breaking off for the second time. I take 150mg I have been stable for 18 months now and I was wondering if going down to 100mg would ease the hair loss. My blood work is perfect. Anyone taking 100mg pls let me know how long you have been on it and how you are doing. Good Luck to all and think positive.

I started with Tarceva for stage 4 lung cancer ( 150 mg ), after about 3 years of doing great with no signs of cancer, I reduced to 100 mg , it now four and a half years and I am doing great, no signs of cancer on ct scans. Feeling better with 100 mg. Good luck and God bless. Herb

RE: Tarceva

by MargaretFT on Tue Jun 28, 2016 04:44 PM

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I have/had stage3a NSCLC which was first diagnosed in 2018. After surgery it returned and I started on Tarceva 150mgs. in April 2009. Within 3 months my oncologist dropped the dose to 100 mgs. after a CT scan showed I was cancer-free. After a year the dose was reduced to 75mgs., a year later to 50mgs. It has now been 5 years, I take 50 mgs. Tarceva early each morning, have 6-monthly blood checks and an annual CT scan. And I remain cancer-free. I may be very lucky but I also have an excellent careful oncologist whose aim was to reduce side effects while maintaining maximum effectiveness. Yes the Tarceva dose can be reduced if done carefully and slowly. Go for it. Good luck to you! Margaret

RE: Tarceva

by Abran on Tue Jun 28, 2016 10:40 PM

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Thank you. Happy you are doing do well.

RE: Tarceva

by SvitlanaS on Tue Jul 26, 2016 07:22 PM

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what is a pulsed dose?  is that with Tarceva?  my mom has been on tarceva since 11/14 and its becoming resistate.  Her ONC hasnt mentioned this to us yet.

RE: Tarceva

by rdhearne on Wed Aug 03, 2016 08:28 PM

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I have been on 100 mg of Tarceva for 5 years and in September will have had NED for 5 years. My hair has been through a number of incarnations but mostly it has a straw-like quality. I've dealt with the diaahrea for all five years but half of an Imodium every morning helps. It made me sleepy at first but not so much any more. To fight the numbing fatigue my oncologist prescribed 5 mg of Ritalin in the morning and at noon. It allowed me to get up and get moving every day. Good luck!

RE: Tarceva

by Abran on Sat Nov 05, 2016 06:39 PM

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I have EGFR diagnosed stage 4 2014 started on 150 mg my tumor went down to 10mm steady for almost 2 years. I asked my Dr if I could go down to 100mg hoping side effects would be better so far so good. Still have some side effects but, it is better. Good Luck.

 

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