Tarceva

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RE: Tarceva Question

by bonnaj on Sun Apr 12, 2009 12:00 AM

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Hi Leslie,

I have been taking Tarceva since January 6,2009. I will have my first ct scan next week and on the 22nd of April I will get either the good or bad news.  The Tarceva has treated me fairly well, I have gotten the rashes and my hair is shedding at the rate of a handfull a day for the past 2 weeks, gettting really thin, I tire easier than I used to but think I am doing well, I will pray for your husband and please wish me luck also.  I will e-mail you by the 24th of April with the news.  God Bless.

RE: Tarceva Question

by jawjagal on Sun Apr 19, 2009 12:00 AM

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My husband has been on Tarceva for three weeks. He is having the same nausea and fatigue symptoms.   After 2 weeks, he was so fatigued, he had to stop going to work.  He has to make himself eat.

Our doctor recommends CT scans every 10 weeks.  My husband just had one four weeks ago.  Insurance won't pay for it, if we get one sooner than 10 weeks.

 Hope this helps.

RE: Tarceva

by DadNSCLC on Mon May 11, 2009 12:00 AM

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Not sure if this is a response to 1 email or all on the message board.

My Dad has Stage IV NSCLC and is terminal.  He has been on Tarceva for approximately 3 months;  after the 1st 2 months he had a scan and it appears to be working and keeping the cancer at bay, for now.

He has diarahhea (and takes over the counter medicine daily for this), along with the rash (looks like really bad pimples) and it is on his face, head, forearms, chest, etc.; from the hip down he seems to be pretty clear.  He has naseau and vomiting on average of once a week; his appetite comes and goes but overall he is not losing any weight.  The medicine, in combination with the cancer, does make him very tired and unstable.  He has found taking the medicine at night before he goes to bed sees to work best as his appetite does not get affected during the day from taking the medicine.

There is assistance for payment; if you have the medicare prescription card, the first 2 months require a hefty payment by the patient as you fall into medicare's "doughnut hole" and need to come out of pocket I beleive $4500; after that, 95% of the medicine is paid for by medicare which will help substantialy.  Ask your doctor or search on line, but there is assistance out there if you can meet the financial criteria (either through the pharmacetucial companies, cancercare.org, heathwell foundation, chronic disease fund, etc.

With regards to other chemotherapy's, I suggest contacting AARP if you do not have supplemental insurance and they will approve you, with a 3 month preexisting condition.  This will help cover the remaining 20% that medicare doesn't pay; whether it be for Dr. visits, scans, iv chemotherapy, etc.

Hopes this helps.

RE: Tarceva

by Elona on Mon May 18, 2009 12:00 AM

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Hi,

My dad had medicaid(emergency coverege only) and he gets it for free, make sure you call them tell and your situations, there is a limit of 70,000 income a year,to get it for free and should have tried at least a chemotherapy(but not always my dad never did chemo)

The phone nr is:1800-530-3083

RE: Tarceva Question

by Elona on Mon May 18, 2009 12:00 AM

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Hi my dad has been on it for 2 years, he did get the rash(not too bad) and some diarreha some times though.

They had to wait a month at least for him they did catscans and MRI to tell if it was shrinking and if they see that they will continue,

Something that i have read is you have to wait at least 2 hours after you eat to have the pills that way your soide effects are not bad

Good luck to you

RE: Tarceva Question

by Chessie on Mon May 18, 2009 12:00 AM

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On 4/19/2005 Leslie wrote:

Sorry. I'm not responding directly, but I haven't figured out how to post a new message. My husband has been on Tarceva for four weeks. He is experiencing nausea and fatigue. We are trying to decide when he should get a scan to see if it is helping. Our thinking is to wait until he is on it for two months. Does anyone have specific information about this? Thanks.

 

Hi Leslie,

The usual scan after starting tarceva is after 3 months.  That will give them a good picture as to whether or not the tarceva is working.

I have blood work every 30 days and a PET scan every 3 months.  I've been doing this for 2 1/2 years now.  Tarceva has given me a good quality of life.  It is truly a God send for me.

I pray that it works as well  for your husband.

God Bless

RE: Tarceva

by CancerStrike2 on Thu May 21, 2009 12:00 AM

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On 4/16/2007 Wanttohelp wrote:

Hi to u too:

Contact:  GENENTECH  INC                               1 DNA WAY                                          SOUTH SAN FRANCISCO                   CA   94080-4990

                  Phone:  650-225-1000                         Fax:  650-225-6000             They make and distribute Tarceva.  I've had lung cancer for 10 yrs. and am still here.  I've been on Tarceva for 3 months now.  Too soon to tell if it's  working but I should know in a few weeks.  I hope this info helps and I'll put mom in my prayers.  IT DOES HELP.  Hang in, there is help.

Dorothy O             

 

           

               

 

 

 


Wow, 10 yrs, congratulation... Could you tell me what stage you were in at the first time you discover it? 

God bless you,

Take care,

Victoria

RE: Tarceva

by babygirl98us on Fri May 22, 2009 12:00 AM

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On 4/18/2005 Drmort wrote:

My wife will be starting on Tarceva. Medicare doesn't seem to pay for it as it had for her previous chemo drugs. Has anyone had experience with getting Tarceva at a reduced cost?

My Mother just started Tarceva about a month ago she has medicare also. Her Dr. had a company that would help her cover her co-pay if she qualified. ( of course she did) the guidlines have a wide range of incomes you may want to talk to your Dr or financal advisor at the cancer center that your wife is going to they would be the best ones to help with finding some one to help cover the out of pocket expence.

RE: Tarceva

by ginny_b_1 on Wed Jun 10, 2009 12:00 AM

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Thank you for your most informative message of 5/11/09.  I just happened to come across it in my research of tarceva, which i will begin taking the end of this week.  Have been in treatment for stage 4 nsclc for a year, including radiation and 2 chemos previously, the last one, alimta did nothing at all & the cancer spread alarmingly while i was on it!  Last chemos on alimta was may 28th.  The dr. Learned thru a ct scan that it was spreading!  I also had major blood clots diagnosed on april 30, 09 for which i've been taking blood thinners, breathing became so difficult my dr. & i thought i was allergic to coumadin.  Not so...results of ct scan showed the rapid growth of cancer had spread to left lung , hence the breathing problems (it also has a large blood clot) as well as over an inch growth in adrenal gland tumor over kidney.   So...........thinking there were no alternatives available i made my peace with my transition    -   then my dr. Told me i could begin taking tarceva (life line?)  Hopefully it will work for me as it has for many other people and i can "stick around" a while yet - not really ready to go.  I have a dear family (i'm a widow.)Also learned today that i'm eligible for assistance thru chronic disease fund and my co-pay is $25.00 month.God is good....and i have kept my positive attitude all along!Sorry this is so long, thanks again for posting.  Ginny 
On 5/11/2009 DadNSCLC wrote:

Not sure if this is a response to 1 email or all on the message board.

My Dad has Stage IV NSCLC and is terminal.  He has been on Tarceva for approximately 3 months;  after the 1st 2 months he had a scan and it appears to be working and keeping the cancer at bay, for now.

He has diarahhea (and takes over the counter medicine daily for this), along with the rash (looks like really bad pimples) and it is on his face, head, forearms, chest, etc.; from the hip down he seems to be pretty clear.  He has naseau and vomiting on average of once a week; his appetite comes and goes but overall he is not losing any weight.  The medicine, in combination with the cancer, does make him very tired and unstable.  He has found taking the medicine at night before he goes to bed sees to work best as his appetite does not get affected during the day from taking the medicine.

There is assistance for payment; if you have the medicare prescription card, the first 2 months require a hefty payment by the patient as you fall into medicare's "doughnut hole" and need to come out of pocket I beleive $4500; after that, 95% of the medicine is paid for by medicare which will help substantialy.  Ask your doctor or search on line, but there is assistance out there if you can meet the financial criteria (either through the pharmacetucial companies, cancercare.org, heathwell foundation, chronic disease fund, etc.

With regards to other chemotherapy's, I suggest contacting AARP if you do not have supplemental insurance and they will approve you, with a 3 month preexisting condition.  This will help cover the remaining 20% that medicare doesn't pay; whether it be for Dr. visits, scans, iv chemotherapy, etc.

Hopes this helps.


 

RE: Tarceva

by Cassi on Thu Jun 11, 2009 12:00 AM

Quote | Reply

 

On 4/18/2005 Drmort wrote:

My wife will be starting on Tarceva. Medicare doesn't seem to pay for it as it had for her previous chemo drugs. Has anyone had experience with getting Tarceva at a reduced cost?

Dr. Mort:
My son has Ewing's Sarcoma and since Tarceva is not FDA approved for that, it was denied.  I have gone through multiple appeals and on the 4th one, it was finally approved.  Genentech (the manufacturer) also has a patient assistance program that may be able to help if you meet financial criteria, and they were very nice.  I had an appeal also filed with them, but when insurance finally came through, I pulled it back.  Be relentless, there are solutions, but they don't come without the fight. 

 Keep the faith!

Signed, One who knows your pain.

 

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