Tarceva

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RE: Tarceva

by Grizabella on Mon Aug 17, 2009 12:00 AM

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On 4/18/2005 Drmort wrote:

My wife will be starting on Tarceva. Medicare doesn't seem to pay for it as it had for her previous chemo drugs. Has anyone had experience with getting Tarceva at a reduced cost?

I am on Medicare and have been on Tarceva for 2 mos. Medicaare pays for it under part B.  The pharmacy is Greater Sacremento Pharmacy and it is sent to me via FedEx.  your wife's Dr. must contact the pharmacy directly.

God bless and NEVER give up, Barb

RE: Tarceva

by msdebsm on Sat Aug 29, 2009 12:00 AM

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My cancer has spread to NSCLC stage 4 brain/bones/other parts; have had more radiation and chemo.  Now the doctor recommends the tarceva, which I will receive by mail from PrecisionRX.

I am praying this puts a stop to the spread---I need more years to get my sons off into the world.

Are the side effects so awful that we want to give it up?

Thanks for all of the information.

RE: Tarceva

by TexasK on Wed Sep 16, 2009 12:00 AM

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My 87-year-old Mother was diagnosed with stage 4 NSCLC in July though she has never smoked nor has anyone in our family or anyone she worked with.  She has been taking Tarceva since mid-July.  There is no way she could have paid for this medication, nor could my sisters or I.  There is a drug foundation that pays for almost all the cost, based on one's income.  It comes to her door via MedfusionRX in Birmingham, AL.  Mother is doing well, feels better than she felt at diagnosis.  She  has had the rash, for which we are thankful since from all indications the rash means the Tarceva is working.  She has ocassional nausea but only one day of vomiting so far. Her apetite is not very good however so weight loss is a problem with her.  The doctor has said Tarceva is slow-acting so they will not do another petscan until November, wanting her to be on it longer than 3 months before testing and so Medicare will pay for the test.  Thank you all for your info via these messages.  It has been the best source of personal-use information for us all. May God bless each of you and your loved ones dealing with cancer.  He is the Great Physician!

RE: Tarceva

by KathyJH on Tue Feb 09, 2010 03:59 PM

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Brenda, what type of cancer does your husband have?

Thanks

Kathy

RE: Tarceva

by Lenny_Peacenik on Wed Feb 10, 2010 10:06 PM

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tarceva comes in pill-form to be taken one hour before you eat, at the same time,every day,with a full glass of water.  your oncologist will dictate the dose to be taken. I am an 85 yr. old, 17 yr. survivor of multiple cancers ,and have been on tarceva for 4 yrs now, because I have had  stage4 lung-cancer since 2004. my dosage is 150 mgs. there are many cyclical side-effects, but my quality-of-life is good, and I recommend exercise & a positive attitude...LOVE & PEACE!

RE: Tarceva

by stronginthelord on Thu Feb 11, 2010 09:05 PM

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My mother in law was diagnosed January '09 with stage IV lung cancer.  She did chemo and radiation which worked great, the she developed mets to her brain.  She did radiation for that which shrunk the lesions, but her original tumors began to grow back.  She started Tarceva 150mg in December.  She is not liking the side effects, she has the rash on her face which has been well controlled with meds, diarrhea, peeling hands, and significant decrease in energy.  Do these side effects subside over time?  Her doc (and me too) would like her to stay on the full dose until her scans next month because if the tumors continue to grow he'd take her off completely.  But if they do and she's only on a partial dose he'd just increase it again.  Any insight would be greatly appreciated.  She's very young, only 56.  We'd love her to be around for a long time to come.  Especially for her little grandchildren.  Thank you, God bless you all in your journeys!

RE: Tarceva

by Chessie on Fri Feb 12, 2010 12:29 PM

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It sounds like the tarceva is working for your mom with those side effects.  The side effects will lessen over time.  Your onc can lower the dose until the side effects calm down if they become unbearable, but I would try to avoid that if I could.  It's not that long until the next scan. 

One thing about tarceva, it crosses the blood/brain barrier and helps prevent brain mets.  Most other chemos do not do that.  This is a big plus for your mom since she has already experienced brain mets.  That's probably one of the reasons her doctor put her on it in the first place.  After the next scan, and you know definitely that the tarceva is working, and if the side effects are still sort of harsh, then ask about lowering the dose to 100 and working back up to the 150/day. 

I've been on tarceva for over 3 years and have had to lower dose a couple of times the first year.  But I am also now in remission due to the tarceva and NO mets anywhere.  So it is worth the extra effort to deal with it if she can.

Don't be surprised after the next scan if they tell you there is shrinkage.  With those side effects, I'm betting there would have to be.  My first scan after starting tarceva showed a 30%+ reduction. 

Good luck, keep your faith, and may God Bless.

RE: Tarceva

by cancersucks25 on Fri Feb 12, 2010 05:32 PM

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On Feb 12, 2010 12:29 PM Chessie wrote:

It sounds like the tarceva is working for your mom with those side effects.  The side effects will lessen over time.  Your onc can lower the dose until the side effects calm down if they become unbearable, but I would try to avoid that if I could.  It's not that long until the next scan. 

One thing about tarceva, it crosses the blood/brain barrier and helps prevent brain mets.  Most other chemos do not do that.  This is a big plus for your mom since she has already experienced brain mets.  That's probably one of the reasons her doctor put her on it in the first place.  After the next scan, and you know definitely that the tarceva is working, and if the side effects are still sort of harsh, then ask about lowering the dose to 100 and working back up to the 150/day. 

I've been on tarceva for over 3 years and have had to lower dose a couple of times the first year.  But I am also now in remission due to the tarceva and NO mets anywhere.  So it is worth the extra effort to deal with it if she can.

Don't be surprised after the next scan if they tell you there is shrinkage.  With those side effects, I'm betting there would have to be.  My first scan after starting tarceva showed a 30%+ reduction. 

Good luck, keep your faith, and may God Bless.

My mother was diognosed in Feb09 with NSCLC. She was a smoker for 40 years and has quit for almost two years now, she also has diabetes. She was given the "cyber-knife" treatment in May09 and in June was told the treatment was successful and tumor had shrunk. Now in Feb10 a PET scan showed that the original tumor had grown slightly and a new spot had developed on her other lung she has now been ordered Tarceva and potentially intravenious chemo. I just was wondering if anyone out there has had a similar experience and what our chances are?  Cancer is a very intimidating word both her and i are frightened and would like some information.

RE: Tarceva

by Farmor on Sun Feb 14, 2010 08:18 PM

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Hi Lenny - you might be the one that will know about hair-growth with Tarceva. I have taken it (150 mg) for about 5  months and I'm starting to have to shave every other day or else I would look like a man. I have had some rash and of-course the dry skin etc. but I am thankful for Tarceva - had a scan yesterday will find out results on Tuesdsay. I am very happy to hear that you are able to live with this and that it has been 17 years. Let's pray for another 17.  I would love to hear from you. This is the first time I logged on to a site talking about the lung-cancer.

Farmor

RE: Tarceva

by diana3000 on Wed Mar 10, 2010 10:22 AM

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 Dear Chessie

  I read your message about tarceva .you wrote: "One thing about tarceva, it crosses the blood/brain barrier and helps prevent brain mets.  Most other chemos do not do that."

I want to know " does tarceva really crosse brain barrier?"

where do you know it? if it is true,it's really wonderfull.

My mother has lung cancer and brain mets and she takes tarceva. 

Diana

 

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