Myelofibrosis

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RE: Myelofibrosis

by Stimme on Thu Dec 13, 2018 08:20 AM

Quote | Reply

On Dec 13, 2018 6:28 AM jeff3 wrote:

Thank you Roger for sharing the full story on Richard's accident and subsequent death. I will miss him and the passion he shared the protocol that has benefited so many.

Jeff  

Thank you Jeff. Richard was a fine man and, by the news accounts, quite an athletic trainer - amazing record of success!

On Vitamin C I just received an email which slams ascorbic acid products:

https://www.herbdoc.com/blog/ascorbic-acid-vs-real-vitamin-c

Annoying as I have just purchased 2kg of Sodium ascorbate (which could be the same) from tradeingredients.com at a knock-down price. It does not mention produced in China, though. I will email them to find out, and pass on the info!

Meanwhile, this should be a better alternative!

https://www.amazon.co.uk/Acerola-Cherries-Organic-Vitamin-Po

Keep searching (and good practice, of course)

Roger

RE: Myelofibrosis

by Stimme on Thu Dec 13, 2018 08:23 AM

Quote | Reply

On Dec 13, 2018 8:20 AM Stimme wrote:

On Dec 13, 2018 6:28 AM jeff3 wrote:

Thank you Roger for sharing the full story on Richard's accident and subsequent death. I will miss him and the passion he shared the protocol that has benefited so many.

Jeff  

Thank you Jeff. Richard was a fine man and, by the news accounts, quite an athletic trainer - amazing record of success!

On Vitamin C I just received an email which slams ascorbic acid products:

https://www.herbdoc.com/blog/ascorbic-acid-vs-real-vitamin-c ?utm_source=main-list&utm_campaign=1cc11d955a-Eblast_Blog_2018_12_12_Ascorbic_Acid_vs_REAL&utm_medium=email&utm_term=0_e0d85f76a1-1cc11d955a-207818625&mc_cid=1cc11d955a&mc_eid=519dadcca6"" target="_blank" rel="nofollow">https://www.herbdoc.com/blog/ascorbic-acid-vs-real-vitamin-c target="_blank" rel="nofollow">https://www.herbdoc.com/blog/ascorbic-acid-vs-real-vitamin-c

Annoying as I have just purchased 2kg of Sodium ascorbate (which could be the same) from tradeingredients.com "" target="_blank" rel="nofollow">http://tradeingredients.com " target="_blank" rel="nofollow">tradeingredients.com at a knock-down price. It does not mention produced in China, though. I will email them to find out, and pass on the info!

Meanwhile, this should be a better alternative!

https://www.amazon.co.uk/Acerola-Cherries-Organic-Vitamin-Po wder/dp/B00PJ3WBPA"" target="_blank" rel="nofollow">https://www.amazon.co.uk/Acerola-Cherries-Organic-Vitamin-Po target="_blank" rel="nofollow">https://www.amazon.co.uk/Acerola-Cherries-Organic-Vitamin-Po

Keep searching (and good practice, of course)

Roger

Well this looks OK

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RE: Myelofibrosis

by Stimme on Wed Dec 19, 2018 07:05 AM

Quote | Reply

Dr Mercola on the better benefits of liposomal vitamin C over ordinary powder!

Worth reading, I think!

https://products.mercola.com/vitamin-c/?utm_source=dnl&u

Best wishes,

Roger

RE: Myelofibrosis

by jeff3 on Fri Dec 21, 2018 03:55 AM

Quote | Reply

Good information. A lady at church who has leukemia and is in her eighty's told my wife she has raised her hemoglobin from 8.2 to 10.2 in 2 1/2 months using ClorOxygen. I've ordered the gelcaps instead of the liquid primarily because of the liquid's staining power. Yesterday's visit to the oncologist show her hemoglobin at 8.2. The next test is in three months so we'll see what happens.

https://www.luckyvitamin.com/images/brochures/ClorOxygen.pdf

RE: Myelofibrosis

by Stimme on Fri Dec 21, 2018 09:09 AM

Quote | Reply

On Dec 21, 2018 3:55 AM jeff3 wrote:

Good information. A lady at church who has leukemia and is in her eighty's told my wife she has raised her hemoglobin from 8.2 to 10.2 in 2 1/2 months using ClorOxygen. I've ordered the gelcaps instead of the liquid primarily because of the liquid's staining power. Yesterday's visit to the oncologist show her hemoglobin at 8.2. The next test is in three months so we'll see what happens.

https://www.luckyvitamin.com/images/brochures/ClorOxygen.pdf "" target="_blank" rel="nofollow">https://www.luckyvitamin.com/images/brochures/ClorOxygen.pdf target="_blank" rel="nofollow">https://www.luckyvitamin.com/images/brochures/ClorOxygen.pdf

This looks interesting, Jeff, especially the energy-boosting potential. Though, personally, since taking the herbs and supplements prescribed by my Medical Herbalist, Chris, I have had much more energy.

[It is my physical problems - sciatica, past back and shoulder injuries (amongst others) which affect my actual performance and make me feel tired. I have a great Bowen therapist, Helen, who now gives me free sessions if I let her teach her advanced students using me as a model (I have to say having three attractive women working on me at the same time makes me feel quite wonderful!)]

Chris, meanwhile, gives me a great tincture which contains nettle, artichoke and Reishi mushroom, then prescribes Chaga mushroom, a multivitamin (Swansons - cheaper than his first choice  Biocare – Adult Multivitamins and Minerals), a magnesium supplement (he says that while the spray is excellently absorbed, the body values a regular amount regularly absorbed). He is a great one for consistency. He has revolutionised my approach in this and I must say it has shown results. I take the Boron you recommended and a selenium tablet (200mcg Nature's Best but not with my liposomal C) - Nature's Best answered my email about the vitamin C in it. The respondent did some research and said that the amount in this supplement, 80mg, should be alright.) I also take Astaxanthin (Swansons) and a B12 supplement - though I can't remember which is the best version. Can you recall?

I have just bought 'The Green Smoothie Diet' by Robyn Openshaw. She comes highly recommended by several good health sites! She says a goodly supply of (organic) vegetables - between 50-70 gms of fibre per day - is what will build good nutrition.

I heard something similar when I went to a lecture in Leicester given by a doctor working for a glyconutrient firm. He said we should really have 24 helpings of green foods per day (five is the thin end of the wedge to encourage newcomers to the idea, of course).

Probably one should consider the natural as the foundation - eating fruits and shoots as found when out hunting or gathering.

Whenever I get confused by the complexities of detail offered by the science community I always revert to the simple and natural! 

RE: Myelofibrosis

by Amy1234 on Fri Dec 28, 2018 08:18 PM

Quote | Reply
Hi there , I was just wondering how you are getting on with your treatment and if you had any improvement . I’ve been diagnosed with Polycythemia Vera 3 weeks ago and researching alternative treatments. Thanks

RE: Myelofibrosis

by Stimme on Fri Dec 28, 2018 10:24 PM

Quote | Reply

On Dec 28, 2018 8:18 PM Amy1234 wrote:

Hi there , I was just wondering how you are getting on with your treatment and if you had any improvement . I’ve been diagnosed with Polycythemia Vera 3 weeks ago and researching alternative treatments. Thanks

Hi, Amy,

Along with most others following similar protocols of very high vitamin C, selenium, and other vits and minerals my figures have consistently improved in some areas - platelets particularly. Other figures are just out of the norm. (I was diagnosed in 2010 though I presume it must have been there before then as I only went for an age-related general check-up when they found I had MF!) I have to say I go a great deal on how I feel and I just had a Thai massage today ... WOW it hurt at times but I feel rather good now!

RE: Myelofibrosis

by Stimme on Fri Dec 28, 2018 10:31 PM

Quote | Reply

On Dec 28, 2018 8:18 PM Amy1234 wrote:

Hi there , I was just wondering how you are getting on with your treatment and if you had any improvement . I’ve been diagnosed with Polycythemia Vera 3 weeks ago and researching alternative treatments. Thanks

If you want details try reading back. There is a huge amount of positive information here. One supplement you may not know about - my consultant didn't - is Serrapeptase. This is an enzyme which eats up scar tissue - rather good if that is what is causing the problem - no?

I base my supplements on home-made liposomal vitamin C (Sodium ascorbate as it is not acidic as ascorbic acid apparently is!) to a mixture 4 1/4 tablespoons of organic sunflower lecithin (+ 2 cups of water) I add three tablespoons of vitamin C powder and one tablespoon of curcumin (in 1 cup of water) then, having blended these I stir them in my jewellery cleaner for 22 minutes (recommended time by a doctor). I also take other vitamins as mentioned in my previous comments to Jeff!

RE: Myelofibrosis

by Stimme on Fri Dec 28, 2018 11:00 PM

Quote | Reply

On Dec 28, 2018 10:31 PM Stimme wrote:

On Dec 28, 2018 8:18 PM Amy1234 wrote:

Hi there , I was just wondering how you are getting on with your treatment and if you had any improvement . I’ve been diagnosed with Polycythemia Vera 3 weeks ago and researching alternative treatments. Thanks

If you want details try reading back. There is a huge amount of positive information here. One supplement you may not know about - my consultant didn't - is Serrapeptase. This is an enzyme which eats up scar tissue - rather good if that is what is causing the problem - no?

I base my supplements on home-made liposomal vitamin C (Sodium ascorbate as it is not acidic as ascorbic acid apparently is!) to a mixture 4 1/4 tablespoons of organic sunflower lecithin (+ 2 cups of water) I add three tablespoons of vitamin C powder and one tablespoon of curcumin (in 1 cup of water) then, having blended these I stir them in my jewellery cleaner for 22 minutes (recommended time by a doctor). I also take other vitamins as mentioned in my previous comments to Jeff!

I now have a question. Can anyone tell me if they have a symptom which could be called restless leg syndrome? I have and one of the causes is iron deficiency. However, this is the gen on anaemia and iron in MF, (but does that mean one doesn't have an iron deficiency?):


https://www.ncbi.nlm.nih.gov/pubmed/8235941

CONCLUSION:

Most IM patients have decreased bone marrow iron deposits at diagnosis. However, as in chronic myelogenous leukaemia and in essential thrombocytopenia, such finding does not mean a true iron deficiency status.

RE: Myelofibrosis

by Amy1234 on Sat Dec 29, 2018 02:57 PM

Quote | Reply
I’ve just joined this forum and haven’t had a chance to read back , but has anyone been using Bob Beck protocol and what is the feedback. I was dx with Polycythemia Vere 3 weeks ago and started using all four Bob Beck protocol 2 weeks ago . It has help with lots of different cancers but not sure how much t will beneficiary with the one I have as it is not a tumor but over production on Bone marrow . If anyone have any knowledge it would be much appreciated if you can share it . Thanks
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