Urachal Cancer Survivor

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RE: 43 yo with metastatic urachal adenocarcinoma

by julesgreenb on Mon Aug 22, 2016 05:10 PM

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On Aug 22, 2016 4:10 PM christobell1 wrote:

Hi

Thank you for your response. I am not sure but will check.

Kind regards

C

We are here for you Christobelle. :-) Julia

RE: Urachal Cancer Survivor

by Catalina2 on Mon Aug 22, 2016 09:43 PM

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How are you now ?

RE: Urachal Cancer Survivor

by vtoole on Mon Aug 22, 2016 11:02 PM

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On Aug 22, 2016 9:43 PM Catalina2 wrote:

How are you now ?

That's a great question?how are you feeling right now? And, yes, we are all here to help in any way we can!

RE: Urachal Cancer Survivor

by christobell1 on Tue Aug 23, 2016 07:08 AM

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Thank you for asking. Terrified! Trying to be positive.

RE: Urachal Cancer Survivor

by vtoole on Tue Aug 23, 2016 01:12 PM

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On Aug 23, 2016 7:08 AM christobell1 wrote:

Thank you for asking. Terrified! Trying to be positive.
Christobel - Understood. Keep going back - even 6 years - on this blog - and read all the wonderful stories about folks who have passed the 6, 7, 8, 9 and more years free from this disease!!!! That's what I did almost 7 years ago and here my husband still is after almost 7 years (in December)! He - and others - have completely beat the odds. Look into supplementing your treatment with such things as Tumeric daily (capsule form), Reservatol, Curcumin, etc. and eating whole organic foods. One of the women on this blog in Canada has also spent time seeing a naturopath who is affiliated with cancer patient treatment - look that up in your area - and she was/is under her care concomitant with her "Western medicine" cancer treatment. We continue to send you positive energy and thoughts. Hugs to you!

RE: Urachal Cancer Survivor

by vtoole on Tue Aug 23, 2016 01:17 PM

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On Aug 23, 2016 7:08 AM christobell1 wrote:

Thank you for asking. Terrified! Trying to be positive.
Oh, one more thing. Don't be afraid to ask LOTS of questions and/or seek second opinions. Looking back over this blog, I compiled a long list of treatments others had had and presented them to my husband's doctors every step of the way. Also, inquire about genetic testing (known as Fiundatiin One testing here in the states). My husband has been on 3 different trials that have extended his life. They are continually blazing new trails in cancer every day now! Immunotherapy is one. But genetic testing pinpoints your specific gene abberations and those work for a number of months to slow the progress and/or partial remission. Let us know how you're doing as you go along!!! Hugs.

RE: Urachal Cancer Survivor

by christobell1 on Wed Aug 24, 2016 08:07 AM

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Good Morning,

Thank you so much for your advice.  You have given me hope and I am looking into the historical blogs and feeling more positive.

You say that you have reverted to whole organic foods. Do you eat fish or chicken for example or is your diet based purely on vegtables? I have read a couple of good books - 'Anticancer- A New Way of Life' and 'Radical Remission.' They have been helpful.

Also perhaps a 'silly' question. How have you kept your husband positive? That is the bit that I am also stuggling with. Or for those who have been having the treatment is there anything that I can do to help him ( without being a total woman nag!!).

Thanks again, this is really helping and I feel that I can talk to people who understand.

Greatly appreciated.

C

RE: Urachal Cancer Survivor

by christobell1 on Wed Aug 24, 2016 08:09 AM

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Thank you!

You are an inspiration.

Big hug.

Christina

RE: Urachal Cancer Survivor

by vtoole on Wed Aug 24, 2016 03:26 PM

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On Aug 24, 2016 8:07 AM christobell1 wrote:

Good Morning,

Thank you so much for your advice.  You have given me hope and I am looking into the historical blogs and feeling more positive.

You say that you have reverted to whole organic foods. Do you eat fish or chicken for example or is your diet based purely on vegtables? I have read a couple of good books - 'Anticancer- A New Way of Life' and 'Radical Remission.' They have been helpful.

Also perhaps a 'silly' question. How have you kept your husband positive? That is the bit that I am also stuggling with. Or for those who have been having the treatment is there anything that I can do to help him ( without being a total woman nag!!).

Thanks again, this is really helping and I feel that I can talk to people who understand.

Greatly appreciated.

C

Hello C, I am glad you are reading back in the blog. It is so hopeful to do so. So many great entries of encouragement. With regard to organic foods - fish and chicken, salads, fruits and vegetables. There are vegetables called "cruciferous" that are touted as being more effective than others in their cancer fighting abilities - broccoli, cauliflower, and more. Look up cancer vegetables and fruits and you will see the ones recommended. I spent the first 2 years after my husband's diagnosis making everything from scratch using all organic ingredients. There are vegetable soups that can be made that are delicious! Keeping a positive attitude for you, the caretaker, can be challenging and difficult. There is no doubt about that. Be kind to yourself. This is an arduous journey and there will be ups and downs. I focused all my attention around the care of my husband and did everything I could to make him comfortable, well fed, and do all the medical things he needed done- treatments, appointments, meds, etc. I also spent time reading to him when he was unable to do much more than lay down and rest. He seemed to enjoy just the closeness and the lulling of the words. When he was able, I took him places where we could take a short walk or, if he wasn't up to it- taking him outdoors in a wheelchair when he couldn't walk well -trying to keep him busy and occupied with the beauty of life around us!!! With regard to your boyfriend - the patient - that is a challenge as well. I happen to be married to an extremely upbeat, positive man who gives me a run for my money in that department. I call him "Pollyana" - always looking on the bright side and thinking "everything's possible!" I am quite the opposite - I like to think of myself as a "realist." So, that's been a challenge for us over these 7 arduous years. I am not sure you can help but be "the female nag" when you care about someone and want to do everything you can to help them. Just a snapshot of some of he things I've done and gone through. Hope this will help in some small way. Hugs, Vivian

RE: Urachal Mucinous Adenocarcinoma

by vtoole on Mon Sep 05, 2016 12:41 PM

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On Sep 05, 2016 7:28 AM HashimiSayed wrote:

I had stage 3 melanoma which spread to my lymph nodes. I did 3 months

of cannabis oil, 3X a day, and now am cancer free a year later. I had

a perfect CT scan (Sept 2015), a perfect brain scan (Feb 2016), and

recently a perfect PET scan. No cancer anywhere!

I didn't do any other form of treatment. No surgeries, no chemo,

nothing. I only used cannabis oil. I got my oil from this lady

za1121@outlook.com

https://www.facebook.com/profile.php?id=100011702737316 "" target="_blank" rel="nofollow">https://www.facebook.com/profile.php?id=100011702737316 " target="_blank" rel="nofollow">https://www.facebook.com/profile.php?id=100011702737316

Is there a difference between Urachal Adenocarcinoma and Urachal Mucinous Carcinoma?
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