Folfox & Avastin side effects.

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Folfox & Avastin side effects.

by Katsen57 on Sat Mar 15, 2008 12:00 AM

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I am a carcinoid patient since April '07.  I have had the main tumor removed from my cecum and also lymphnodes removed. I had radio frequency ablations done on my liver but there were many smaller tumors left that the surgen could not remove.  now after taking Xyloda and temadar it did absolutely nothing and the tumors on my liver grew and multiplied.  now I am directed to have folfox and avastine administered but while I deal with the insurance, which denied treatment, I was wondering what to expect from this medicine.  I am 41 yrs old and have no children.  I was reading about some of the side effects and it seems to be that it may cause infirtility. Has anyone else experienced this?  Also any other info about this topic will be greatly appreciated.   Katsen

 

 

 

RE: Folfox & Avastin side effects.

by Live4him on Fri Mar 28, 2008 12:00 AM

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Where are you getting treatment - if you dont mind me asking?

RE: Folfox & Avastin side effects.

by Katsen57 on Fri May 16, 2008 12:00 AM

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I have not had folfox /avastin treatment yet.  My insurance has completely denied this type of treatment calling it experimental and/ or unproven.  I would only be approved for Interferon.  You believe that.  Oxford Health Plans is living in the dark ages when it comes to chemotherapy treatment.  It has been 5 months now without treatment so I am having a lawyer interact.  Andrew Cuomo has assigned a staff member of his health care department to investigate my case. (I work in NY).  So that is good news so far. 

RE: Folfox & Avastin side effects.

by Live4him on Wed May 21, 2008 12:00 AM

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I am not sure who your doctors are but one of the top carcinoid specialist is in NYC - Dr. Warner.  If you have not already go to the carcinoid.org website and there is a wealth of information in general, but also under the physician area you will find doctors that specialize in carcinoid - including Dr. Warner.  Best of Wishes to you and I understand the frustration of insurances stating everything is experimental/oinvestigational.

RE: Folfox & Avastin side effects.

by Katsen57 on Wed May 21, 2008 12:00 AM

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On 5/21/2008 Live4him wrote:

I am not sure who your doctors are but one of the top carcinoid specialist is in NYC - Dr. Warner.  If you have not already go to the carcinoid.org website and there is a wealth of information in general, but also under the physician area you will find doctors that specialize in carcinoid - including Dr. Warner.  Best of Wishes to you and I understand the frustration of insurances stating everything is experimental/oinvestigational.

 

I am being treated by Dr. Warner. He was the first doctor I went to when I was diagnosed.  When the insurance co. denied the meds He responded by saying I should consult a lawyer which is what I did.  We have gotten a response from Andrew Cuomo, Attorney General of NY. He appearently is pro active about getting Insurance companies to  stop the beauracracy about approvals, etc. I was just wondering if I should continue to persue the meds or if I should try to get on a clinical trial.  thanks for your help.

RE: Folfox & Avastin side effects.

by john9129 on Fri Sep 26, 2008 12:00 AM

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On 5/16/2008 Katsen57 wrote:

I have not had folfox /avastin treatment yet.  My insurance has completely denied this type of treatment calling it experimental and/ or unproven.  I would only be approved for Interferon.  You believe that.  Oxford Health Plans is living in the dark ages when it comes to chemotherapy treatment.  It has been 5 months now without treatment so I am having a lawyer interact.  Andrew Cuomo has assigned a staff member of his health care department to investigate my case. (I work in NY).  So that is good news so far. 

are you a veteran. they will help you. i have had cancer for 2 yearrs. they are just moving me up to folfox next week. so be patient. but call your va rep and him help you. many of the va's have a place for you to stay if you live out of town. i hope this helps you. may god help you in all your needs. LOVE JOHN

RE: Folfox & Avastin side effects.

by bubbles17 on Sat Nov 08, 2008 12:00 AM

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On 3/15/2008 Katsen57 wrote:

I am a carcinoid patient since April '07.  I have had the main tumor removed from my cecum and also lymphnodes removed. I had radio frequency ablations done on my liver but there were many smaller tumors left that the surgen could not remove.  now after taking Xyloda and temadar it did absolutely nothing and the tumors on my liver grew and multiplied.  now I am directed to have folfox and avastine administered but while I deal with the insurance, which denied treatment, I was wondering what to expect from this medicine.  I am 41 yrs old and have no children.  I was reading about some of the side effects and it seems to be that it may cause infirtility. Has anyone else experienced this?  Also any other info about this topic will be greatly appreciated.   Katsen

 

 

 


 

I am 40- will be 41 in the next 6 months. I just got back from Texas- MD Anderson. I was originally diagnosed with stage iv metatastic colon cancer to the liver- well after 12 treatments (fulfox and avastin) , it didnt touch the stuff. I have peritoneal disease- invading my pelvic area. So, I am searching for a drug to keep it out of my female organs so I can have a baby. I have heard the Xeloda can casue infertility, but who knows- all of these drugs react differently wit all of us. So get tested and find out. Its worth it to know. in the meantime dnt give up-... cry when you feel like it, and dont wait to die. God heals. find a way to believe in miracles if you dont already. There are many hospitals that will take the uninsured. If that doesnt work- find an organization that will help you. I might just know of one... keep me posted and let me know wht I can do to help.

 jennifer

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